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CATZZ
Regular Member


Date Joined Apr 2007
Total Posts : 39
   Posted 3/12/2010 12:12 PM (GMT -7)   
Hello All,
 
I have been spilling protein and now they are going to do a kidney biopsy.  I'm really upset because I've gone this far with no kidney involvement and I was hoping it would never be an issue.  I'm also a little nervous, I just had a few questions. If you have had this done....what was your experience like?  What were your results? How did your medications change if they found inflammation? Thank you for any answers or advice it is greatly appreciated. Hope everyone has a great day.
 
Mellissa :)

 
Dx:  Lupus, Hashimotos Thyroiditis, Peripheral & Autonomic Neuropathy, Fibromyalgia, Arthritis, Erythromelalgia, GERD, B12 & D deficiency
Rx:  Plaquenil, Imuran, Levoxyl, Lyrica, Flexeril, Tramadol, Hydrocodone, Lasix, Lunesta, Ativan, Ranitidine, B12 injections , Vit D, Potassium


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/12/2010 12:55 PM (GMT -7)   
Hey Melissa!


Kidney Biopsy to very honest is really nothing to worry about. I had one done in January of 09 and wish someone would have told me it was painless. The worst part about it is getting the needle to numb you, which is about as bad as getting a shot. The kidney biopsy for me, lasted about 15 minutes and they got 4 samples of my kidney but most of the time was spent joking around.



You will lie on your stomach with your arms above your head. They will do an ultra sound to see where your kidneys are exaclty and have you inhale and exhale to see how much your kidneys move on each breath. Then they will have you take a deep breath, hold the breath...the doc stick the needle in and get a piece of kidney and then you will exhale. I promise, it is nothing to get panicked about. They will probably take several samples to make sure they have a good one and then you will go back to your room and lay flat on your back for around 6 hrs to make sure you give your kidneys a chance to heal where the biopsy was taken from.



My results...well I had lost most of my kidney function so while I was in the hosptial they gave me 1000 mg of solu-Medrol for 3 days in a row to help get the inflamation down in my kidneys and then they had me orally take 80 mg for several months along with Cellcept. I had some scarring on my kidneys but certaintly not at end stage renal failure. I was on cellcept for a few months and once the prednisone kept coming down we realized that cellcept wasnt working so they moved me to Cytoxan. they also put me on Lisinopril ( a blood pressure med) to help control the protein spilling into my urine.



What other questions do you have??? Hope this helps a little!!! I am actually gonna have another biopsy done late this month, when are you gonna have yours done?

aylish
New Member


Date Joined Sep 2009
Total Posts : 3
   Posted 3/12/2010 12:57 PM (GMT -7)   
Hey mellissa, i had a kidney biopsy about 9 years ago because my kidney's started to fail.  Before the biopsy they did a kidney scan then gave me a local aneasthetic.  I had to lie on my tummy with a pillow under my hips to make my kidneys more prominent.  The biopsy itself was really quick, they took two samples from different parts of my kidney.  Before the procedure i had to sign a form saying i understood there was a 1 in 100 chance i could end up losing the kidney they took the biopsy from; i also gave permission for them to use any left over tissue for research.  Afterwards i had to lie flat (without a pillow) for 24 hours which was a bit boring to say the least!! I don't know if there's any connection but sometimes the kidney they took the samples from aches a bit.  The biopsy showed there was inflammation in  my kidneys but no indication of why it was happening.    I was only diagnosed with lupus a few months ago and they have told me that it's the lupus that caused my kidney's to fail all those years ago. It's very possible that the procedure's changed a bit since i had my biopsy but the thought of what they were going to do was worse than the actual procedure itself.  I hope it all goes well for you and if there's any more info you want let me know. Good luck. 

DQueen
Regular Member


Date Joined Jun 2008
Total Posts : 88
   Posted 3/17/2010 8:16 AM (GMT -7)   
Hi Melissa! Amy is right on the nose with her description of the kidney biopsy. I was really nervous as well, but it was really no big deal & over in no time. I was put on CellCept before my biopsy because of my diminishing kidney function. CellCept worked wonders for me, and now, 3 years later, I am completely off of CellCept & my kidneys seem to be doing great! I wish u the best of luck!!! :)
Lots of Love!
DQueen
 
 
 
Lupus, Rheumatoid Arthritis, High Blood Pressure, Anemia, Congestive Heart Failure, Kidney Failure


CATZZ
Regular Member


Date Joined Apr 2007
Total Posts : 39
   Posted 3/18/2010 11:35 AM (GMT -7)   

Thanks everyone for all the info. My first appt. with the new doc is on the 30th and then they will schedule the biopsy after that. I'm more worried about my results than the actual procedure itself. I'm afraid they will tell me I have kidney damage. I'm afraid of the new medications they would use and all the side effects. Are the side effects of the cytoxin etc. as bad as I've heard? I've only been on steriods a few times and I felt horrible while I was taking them, I felt like I was hit by a truck. Later on I felt better and had many improvements it was just while I was taking them I felt sicker. I just can't stand all the waiting either. It will probably be at least 6 weeks before I know whats going on with my kidneys. That's a long time to worry and wonder. Thanks again.

Have a great day all! Mellissa :) 


 
Dx:  Lupus, Hashimotos Thyroiditis, Peripheral & Autonomic Neuropathy, Fibromyalgia, Arthritis, Erythromelalgia, GERD, B12 & D deficiency
Rx:  Plaquenil, Imuran, Levoxyl, Lyrica, Flexeril, Tramadol, Hydrocodone, Lasix, Lunesta, Ativan, Ranitidine, B12 injections , Vit D, Potassium


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/18/2010 1:24 PM (GMT -7)   
I can understand hating the waiting game. It is just more time to worry, worry, and worry some more. For me personally, the Cytoxan isn't as bad as what I thought it would be. It causes a lot of nausesnss, tiredness, low blood counts and nose blisters but I have felt so much better on it because it helps with my joint pain. I would guess you might start out on Cellcept which is becoming the new gold standard treatment for lupus nephritis. For most people, it causes very minimal side effects if any.

I am supprised about the prednisone although I hear that time to time. It really has helped me feel much better a few hours after I take it. Please keep us updated and I pray your waiting time will go by quickly for you!
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