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PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 3/13/2010 9:17 AM (GMT -7)   
I have developed significant muscle weakness in my legs and arms accompanied by widespread pain. It's difficult for me to get out of a chair and I have started walking with a cane. However, if I take enough hydrocodone, the pain subsides to some degree and the muscle weakness improves a little bit.

If a person has myositis, does the muscle weakness improve as the pain does or would hydrocodone have no impact on the muscle weakness? I would think that it would have no impact on the muscle weakness.

This has come on fairly quickly - I'd say over the past three weeks. My rheumy prescribed the hydrocodone for significant fibromyalgia pain. I went back to see him this week and he ordered a lot of blood work. I have a lot of confidence in him and I'm sure he'll get to the bottom of this, but it's concerning.

My mother developed weakness in her legs when she was a little older than I and by the time she was 70, she was in a wheelchair and didn't have the strength to transfer. She never had a diagnosis. She had a full neurological diagnosis at Mayo, but I could never convince her to see a rheumy.

Thanks,

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lunesta, cymbalta, vitamin D, Calcium, Multi Vit.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 3/13/2010 1:16 PM (GMT -7)   
Pat,
Bless your heart! I hope your doctor will find some answers in the blood tests he took and will come up with something to nip this in the bud before it gets any worse. Please keep us updated and take care. You are in my thoughts and prayers.

Love, Babs

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 3/14/2010 3:11 PM (GMT -7)   
Patty,
 
An optiate is not a treatment for any myositis disease.  If you suspect you have polymyositis or dermatomyositis you should talk to your rheumy about that and get the appropriate testing.  CPK, Sed, aldolase...emg, and a muscle biopsy if there is sufficient evidence that you have it.  Treatment is usually prednisone at first with other pred sparing meds added so pred can be tapered. 
 
Treating the symptom (pain) will have no impact other than masking the problem.  Some myositis patients have muscle pain but some do not.  I had terrible pain for the first few months. Pain and weakness are related but you have to be sure it is muscle pain.  As the muscles weaken there is significant joint pain because they are not supported properly.  Myositis can cause permanent or temporary muscle damage so it should never be untreated.
 
If your mother's weakness was more in her legs and distal muscles and it progressed very slowly over the course of years it could have been inclusion body myositis which is an entirely different disease than pm or dm.  The muscle weakness in pm or dm is usually symmetrical and affects the proximal muscles more.
 
Bill
MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 25mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
 
Remain optimistic and you can overcome the odds.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 3/14/2010 4:41 PM (GMT -7)   
Bill,

My rheumy prescribed hydrocodone and lyrica for intense fibromyalgia pain a couple of months ago and the muscle weakness just started within the past three weeks or so. I went back to see him this past Thursday to discuss the weakness and he order 6 vials of bloodwork including CPK, Sed rate, vitamin D, ANA, and I don't know what else. I expect to hear something early this week. The muscle weakness isn't any worse than it was two weeks ago, and if I take enough hydocodone it's easier to walk, so my limited knowledge of myositis makes me think that it's something else.

I was hoping you'd respond because you are our forum expert on myositis. I suspect you're right about my mother. She didn't experience any pain, but her problems started with occasional falls.

Thanks. And Babs, thanks for you kind words.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lunesta, cymbalta, vitamin D, Calcium, Multi Vit.


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 3/14/2010 6:18 PM (GMT -7)   
Pat,

My DIL was prescribed Lyrica for fibro and within a few weeks, the doctor took her back off b/c she developed muscle weakness. From what she (dil) explained, muscle weakness is a side effect of Lyrica that doctors watch out for. Just something else for you to think about! Hope you get to the bottom of it, quickly!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim, Zantac.
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 3/14/2010 9:36 PM (GMT -7)   
Thanks Fran. I'll be sure to check that out.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lunesta, cymbalta, vitamin D, Calcium, Multi Vit.


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 3/15/2010 12:12 AM (GMT -7)   
((((((Pat))))))

It sounds as though you're in the process of checking everything out, with your doctor and with the online experts here....please keep us posted when you can!

You're in my thoughts and prayers!
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/15/2010 7:05 AM (GMT -7)   
Patty! Thinking about you and hope you are doing better! Please let us know what the doc says!!

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 3/15/2010 10:21 AM (GMT -7)   
Aimsgirl and Nasalady I really appreciate your support. I've been a part of this forum for six years but it's at times like these that I realize how important it is to me. And like everything else that has happened, this too will pass.

And by the way, my little girl, who's no longer a little girl, became engaged on Saturday. It's a real happy time around here. I just need to be strong enough to plan her wedding.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lunesta, cymbalta, vitamin D, Calcium, Multi Vit.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 3/19/2010 7:08 AM (GMT -7)   
I went to the rheumy's office Wednesday to get a B-12 shot and a Kenalog injection. I can't tell if they are helping or not because I'm in Denver taking care of my 4 month old grandson and I'll tell you, I now know why young women have babies. I'm on my foot (that was operated on) way too much. He's a precious and good baby but at 18 pounds he's a lot for me to drag around. I'm loving it be am exhausted. This morning he got up at 2:30 am and 5:30 am so I may not be making a lot of sense. My hubby arrives tonight and he'll be a lot of help.

But on to the good news. While at the doctor's office I asked the nurse how my labs looked and she pulled them up for me to see and everything except my white blood cells are normal. Considering that she took 6 vials of blood, that made me ecstatic. Makes me think that what's going on is a bad flare of my fibro. I wouldn't have believed fibro could hurt this much.

Hope everyone is doing well. Baby just woke up so have to go. :)

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lunesta, cymbalta, vitamin D, Calcium, Multi Vit.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 3/19/2010 7:26 AM (GMT -7)   
sorry it took me so long to say anything, I really hope all this is just a fibro flare. I have weakness on my right side from the last time the lupus affected my cns and am fighting another cns flare. weakness can be a signal of a lot of things so it is important you tell ALL your doctors about it and not just the rheumy. I am glad you are enjoying your grandson.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

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