Cyclosporine???

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/22/2010 1:52 PM (GMT -7)   
Well tonight I am taking my first dose of Cyclosporine. its 100mg every 12 hrs.. We have stopped the Cytoxan treatments because I don't seem to be getting any benefits from it after doing them for 8 months. So, I have tried to look up Cyclosporine in the HW search and have not been able to find anything. Maybe because not very many people are on it??


Well if you have taken it, what did you experience? Out of Cellcept, Cytoxan, Imuran, and plaquenil, this is the one I am most scared about. I will be getting blood work done every 2 weeks for several months to make sure the drug doesnt cause Kindey Failure (other than lupus) because that is a big risk or Liver failure. And the side effects that are common include tremors, increased hair growth, swollen and painful gums and low blood counts, high BP are JUST a few to mention. It seems to be the most potent one out of the ones I have taken...So any experience would be nice if there are any!!! i need something to calm my nerves. LOL

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 3/22/2010 2:50 PM (GMT -7)   
Hi AMy! Wow, you're on to a new med. I don't know anything about this med. I'll be praying for you! I hope it turns out to be the miracle pill you need! Keep us posted and I hope there are others who can give you some info!

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 3/22/2010 4:16 PM (GMT -7)   
(((( Amy ))))) I am not familiar with this med either, but I will be praying it works for you. Hang in there my friend, hopefully this will be an answer to our prayers smilewinkgrin Love ya
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)


jamsteve
New Member


Date Joined Mar 2010
Total Posts : 4
   Posted 3/23/2010 12:28 PM (GMT -7)   
I took cyclosporine for about five years without any immediate complications. I have auto immune hemalytic anemia though, not lupus. At the time, I was just grateful to find something that would work. I had to stop taking it though because it eventually stopped working. Good luck, sounds like you're on top of things.

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 3/26/2010 2:19 AM (GMT -7)   
Amy how is the new meds working for you? I didn't see anywhere that you posted about it.
hugs
furosemide,spironel,lisinopril,lortab,azithromyazin,detrol
nexium,temazepam,predisone,plaquenil,propanalol,effexor,citracal,pottasium, vitB,iron,xopenex,advair,spirivia
 
Each moment of life is a gift of God. psalms 39:4
 


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/28/2010 2:29 PM (GMT -7)   
Hey Carol! thanks for checking on me. I actually haven't been doing too good but I think things are starting to change for the better.his med has really kicked my tush this time. It is so weird. about 15 minutes after I started taking it my extremties would turn really red and burn almost as if I was steping or leaning on a hot stove. that would last about 2 hours and my eyes would swell up for about 2 hours. Then I get really this feeling almost like on the verge of anxiety/panic attack. But today was the first day it last for a about 45 minutes, so I am hoping its a sign I am adjusting to it. It has shot up my bp but other than that I think I will be ok. I get blood work done Thursday morning to make sure my liver and kidneys are ok and to make sure I don't have a toxic amount of the medicine in my body and see my doc on Friday!!!

jamsteve
New Member


Date Joined Mar 2010
Total Posts : 4
   Posted 3/29/2010 7:47 AM (GMT -7)   
I hope your days get easier and the side effects lesson :-)
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 4:49 AM (GMT -7)
There are a total of 2,734,568 posts in 301,223 threads.
View Active Threads


Who's Online
This forum has 151341 registered members. Please welcome our newest member, Emmyl00z.
274 Guest(s), 4 Registered Member(s) are currently online.  Details
Win2qt4u, Xmaslover, maria2016, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer