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king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 3/22/2010 10:51 PM (GMT -7)   
Have any of you had pancreas inflammation with lupus? I am not diagnosed, but for 2 yrs have been suffering from neuropathy (muscle twitching all over my body, stabbing/zinging/burning pains that migrate around to my joints), odd eye pains, ridges on all my nails, livedo riticularous rash twic on my legs...for the past yr I have had bouts of  pancreas inflammation though it does not show on scans---drs are stumped, labs were clear when first checked about 1 1/2 yrs ago
 
I also have reynauds
----------------------------------------------------------------------
34 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
2/09-UPPER LEFT SIDE AB PAIN MID CENTER BURNING "DX" AS MILD PANCREATITIS-STILL UNDERGOING FURTHER TESTING.
 
 
 
 
 
 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 3/27/2010 6:53 AM (GMT -7)   
Hi King. I'm sorry no one has answered you sooner. It looks like all of us veterans are falling behind. As for your question, lupus can attack any organ so pancreatitis due to lupus is possible.
Without a lupus dianosis I think the best you can do is to treat your symptoms. BTW it took 2 years for me to get diagnosed. I really hope you get a dianosis soon. Love, Butterflake
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease  Lots of meds.  Donna 


AmyTx
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 3/27/2010 8:40 AM (GMT -7)   
i have had pancreatitis before but mine mainly causes severe bloating and normally i was told do a liquid diet for 24 hours until the buot of pancreatitis dissapears.. i think amylace and lipace i believe is what is tested for this.. hope you find answers soon..mine didnt show on scans either just lab work
Female: 38 yrs/old DX: Lupus (dx:'03) MCTD, Raynaud's, Anxiety./panic disorder, GERD, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage 3 & 5 Lupus Nephritis. PRES ,Seizures, Photosensitivity since childhood, vasculitis, left thumb and toe amputated from raynauds, Sjogren's
Meds: cellcept, Plaquenil,Prednisone 10,Miracle mouthwash,bactrim, actonel, caltrate, Xanax, Darvocet, Xopenex inhaler, Xopenex Nebulizer, Spiriva, prevacid, aspirin 325mg, pantaprozole and carafate


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 3/27/2010 8:51 AM (GMT -7)   
I had pancreatitis last year that was eventually diagnosed to be lupus related. Amylase levels were off and a lot of pain. Ended up on a pred taper that seemed to finally get it under control. Seems to flare just slightly every once in a while since then but nothing like that original time. Hope you feel better.
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim, Zantac.
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 3/27/2010 11:04 AM (GMT -7)   
Thank you all for youre responses. I have not been dxd, but I dont think the muscle twitching, nerve pains, nueropathy, ridges in all nails etc.. are caused by my pancreas-I think SOMETHING is causing it all to happen.
 
I have been sick 4 times since Dec with fever/flu. That is not normal, I used to NEVER get sick
 
Now I have these blood splinters under on finger nail and a couple toe nails, read it usually is related to lupus?
 
For those with pancreas issues in the past, how long did it last for? Mine has been on and off for a yr but yet nothing shows on any scans (thankfully as dad died of pancancer).
 
How long does it take for lupus to show in the blood? This is frustrating, I WANT soemthing to show so I can stop wondering what this could be.
----------------------------------------------------------------------
34 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
2/09-UPPER LEFT SIDE AB PAIN MID CENTER BURNING "DX" AS MILD PANCREATITIS-STILL UNDERGOING FURTHER TESTING.
 
 
 
 
 
 

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