NEW MEMBER amyb1121

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Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 3/27/2010 2:17 PM (GMT -6)   
Hi Amyb, I saw your post in the middle of another post and wanted to give you your own thread so people could see you and welcome you to the forum. People have a tendency to get over looks when they start in the middle of another post.
We have others here that have children that are in the same position hopefully that can give you some help
I feel your pain. My daughter was recently diagnosed after 3 years of being sick and visiting numerous specialists. She kept catching every little thing, has many mouth sores, seizures, extreme tiredness, and recently started with joint pain and swelling. She is always tired. Mornings are always the worst for her. The doctors kept treating her symptoms and not the cause. After visting one rheumotolgist who basically dismissed us, we found another one who on our first visit said this is lupus. She ran extensive blood work and it backs up her thought. My daughter was just diagnosed this week. She has an awful time, and most days are bad for her. I'm hoping the plaqunil will help her. Right now, she has low blood sugar (58) and low thyroid t3 as well. The rheumotologist feels it's the lupus causing it. I have learned that you have to be your own child's advocate. Find a doctor that will listen and help you.




nexium,temazepam,predisone,plaquenil,propanalol,effexor,citracal,pottasium, vitB,iron,xopenex,advair,spirivia
Each moment of life is a gift of God. psalms 39:4

Forum Moderator

Date Joined May 2005
Total Posts : 6934
   Posted 3/27/2010 2:31 PM (GMT -6)   
Welcome to HW, AmyB1121. Glad you joined us.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 3/27/2010 9:30 PM (GMT -6)   
Hi Amy,
Another welcome for you. I'm sorry to hear your daughter is dealing with Lupus, but hopefully, her doctor will get her on the right mix of medicines that will help control her symptoms so she will start feeling better soon.

Please keep us updated and you and your daughter will be in my thoughts and prayers.


Forum Moderator

Date Joined Jun 2008
Total Posts : 1469
   Posted 3/28/2010 4:48 PM (GMT -6)   
Hey Amy! Just wanted to welcome you to HW! Hope you stick arounds and give us a chance to get to know you! :-)
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