more blood in urine and pain

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 3/28/2010 6:27 PM (GMT -7)   
Hi.  Lately I've had a whole bunch of new things popping up and just wondered if anyone else has experienced this type of pain or problem-and what I should be doing about it.
 
First of all, I literally get scalp pain from laying my head on my pillow all night.  My pillow is soft, and it's not like I've just layed there and slept for 12+ hours.  I normally get about 8 hours of sleep, but I will wake up with pain on the surface of my scalp.  Really weird.  Anyone else?
 
I've also had pain in some of my vertebrae going down my back.  They feel like they are warmer to the touch than normal and painful.  When I've had these types of pains, my legs somehow hurt worse too.  I'm not sure if that's because of the inflammation in general or if my back has something to do with the extra pain in my legs. 
 
Also, my most recent urine tests showed an increase of rbc per high powered field.  I used to only have 10-25 and that number has increased to 50-100.  I've made an appointment with the nephrologist again as my rhuemy requested, but I'm wondering if anyone else has had their numbers increase, and what they may do about it.  I go to the neph dr. on the 15th of April. 
 
So, just a bunch of questions/symptoms for anyone who might be on the same page with me.  Thanks!
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis


AmyTx
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 3/28/2010 7:50 PM (GMT -7)   
not sure about the tingling i get that from time to time but im not sure what it is... as far as increased RBC's in urine are you spilling protein.. was it around your woman cycle..i was class II two years ago now im Class III (active) and Class V (inactive) have you ever had abiopsy of your kidneys before..if you havent they may want one and its not too bad..well i jjust saw your Class II so y es you have had one..its good to get those every once in a while if they feel like there are changes..

you will have to keep me posted... heres wishing you a pain free night... i love squishy pillows but sometimes i wake up and feel like it was a rock..but i have started sleeping elevated and it does make a difference
Female: 38 yrs/old DX: Lupus (dx:'03) MCTD, Raynaud's, Anxiety./panic disorder, GERD, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage 3 & 5 Lupus Nephritis. PRES ,Seizures, Photosensitivity since childhood, vasculitis, left thumb and toe amputated from raynauds, Sjogren's
Meds: cellcept, Plaquenil,Prednisone 10,Miracle mouthwash,bactrim, actonel, caltrate, Xanax, Darvocet, Xopenex inhaler, Xopenex Nebulizer, Spiriva, prevacid, aspirin 325mg, pantaprozole and carafate


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 3/29/2010 5:30 AM (GMT -7)   
Thanks for responding. I am spilling some protein, but about half of the amount that I was about a month ago. It's still not great. I was kind of wondering if it were possible to switch classes for nephritis. That's definetely been in my head as of late. I will find out on the 15th I guess what they are wanting to do to me. I had a biopsy about 3 years ago, and it went well, so I'm not going to stress over that as much as I will my health. I'm too new to all of this to know what comes next.

Thank you!
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/29/2010 6:16 AM (GMT -7)   
Hey Tammy! It is very possible to switch classes of nephritis. It depends on how active your lupus is. At my biopsy over a year ago I was at stage 3. Now we are pretty sure I am at stage 4, but we are tyring not to do another biopsy again, but I guess time will tell.

Are you on Cellcept??? What medicine are you on to treat your nephritis?

AmyTx
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 3/29/2010 6:41 AM (GMT -7)   
aimsgirl im currently on cellcept and i have been for 3 months and i dont really see a difference with my kidneys... how long did it take you.. cellcept didnt work for you did it?
Female: 38 yrs/old DX: Lupus (dx:'03) MCTD, Raynaud's, Anxiety./panic disorder, GERD, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage 3 & 5 Lupus Nephritis. PRES ,Seizures, Photosensitivity since childhood, vasculitis, left thumb and toe amputated from raynauds, Sjogren's
Meds: cellcept, Plaquenil,Prednisone 10,Miracle mouthwash,bactrim, actonel, caltrate, Xanax, Darvocet, Xopenex inhaler, Xopenex Nebulizer, Spiriva, prevacid, aspirin 325mg, pantaprozole and carafate


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/29/2010 6:49 AM (GMT -7)   
Hey Amy, NOPE cellcept never did work. I kept getting worse. Actually ended up in Kidney Failure on it so we changed meds. I was on it from Jan-August and then they moved me to Cytoxan. Which didnt work either. LOL! So know they have moved me to Cyclosporine. I keep telling myself 3rd try is a charm...

AmyTx
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 3/29/2010 8:52 AM (GMT -7)   
the only thing i have noticed is my proteins are going down..but while on cellcept i keep getting sick even though im on bactrim..
Female: 38 yrs/old DX: Lupus (dx:'03) MCTD, Raynaud's, Anxiety./panic disorder, GERD, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage 3 & 5 Lupus Nephritis. PRES ,Seizures, Photosensitivity since childhood, vasculitis, left thumb and toe amputated from raynauds, Sjogren's
Meds: cellcept, Plaquenil,Prednisone 10,Miracle mouthwash,bactrim, actonel, caltrate, Xanax, Darvocet, Xopenex inhaler, Xopenex Nebulizer, Spiriva, prevacid, aspirin 325mg, pantaprozole and carafate


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 3/29/2010 6:24 PM (GMT -7)   
Currently I'm only on prednisone because my rheumy said I could be off meds so we can try to start a family. I'm starting to worry a little bit that the family might have to wait yet again. I'm 33 and ready for children. Maybe I'll just have to get a surrogate. I didn't take meds to treat the nephritis itself, as my rheumy said that class II normally isn't treated. I was taking methotrexate and getting along pretty well on it.
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 3/29/2010 6:48 PM (GMT -7)   
Oh Tammy, that's wonderful about wanting to have a family. I know it might take a little different route then most but babies are babies and we love them no matter what.
Anyway about the back pain and the legs. I notice the bottom of my back starts bothering me and there must be something there that has to do with the legs because if one hurts either the other hurts do or goes so numb I start beating on my legs trying to get some feeling in them. I have never had a problem with protein and urine. At least nothing the doctor ever thought meant anything. The only thing the doc ever said to me about protein was I need to have a high protein diet my anemia is getting worse no matter what I do. Now this lousey not being able to chew meat threw me a curve. Oh well it's always somthing ain't it? You said you were to new to understand all this stuff. Girlfriend let me tell ya I don't know nothin about it. Everytime I think I do I here somthing i never heard of before so you are right there with most of us. I hope the doc can figure out something to make you more comfortable.
hugs
carol
furosemide,spironel,lisinopril,lortab,azithromyazin,detrol
nexium,temazepam,predisone,plaquenil,propanalol,effexor,citracal,pottasium, vitB,iron,xopenex,advair,spirivia
 
Each moment of life is a gift of God. psalms 39:4
 


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 3/30/2010 6:13 AM (GMT -7)   
Okie,
Have you tried protein shakes? There are some really yummy ones out there. My hubby gets cookies n cream and chocolate shakes, and although I don't think I'm supposed to have too much protein, I like to have a taste now and then. They are kind of pricey, but if you can get to a GNC you can buy them there. That might help with your anemia.

I'm so sore this morning and headed to the chiropractor hopefully for some relief. Another new thing is my insurance has large co-pays when I go to the dr, so I'm alot more hesitant to even go, but today I don't think I have a choice.

Take care!
~Tammy~
 "Challenges make you discover things about yourself you never really knew."
 SLE and Class II Lupus Nephritis

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 3:01 PM (GMT -7)
There are a total of 2,734,920 posts in 301,257 threads.
View Active Threads


Who's Online
This forum has 151366 registered members. Please welcome our newest member, Thankuall.
372 Guest(s), 17 Registered Member(s) are currently online.  Details
Bololidat, ppm guy, dismissed, NiceGuyEddie, Girlie, mpost, Splashdancer, Jack84, Dazza, pmm73, Dmc695, FL, tallguy, sam12, pitmom, julymorning, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer