Partial Seizures

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Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 4/3/2010 10:09 AM (GMT -7)   
So about 5/6 months ago i went to the er for some symptoms i thought could be stroke related but a friend with cns lupus thought it could be a seizure...i had only ever had seizures in which i lose conciousness(grand/petit mal) and hadnt had any in 6 yrs...plus it didnt occur 2 me that oh you can have more than one type at a time lol so anyway, today loooking at my eeg order i realized my neuro wrote partial seizures on there as the clinical impression. i looked it up and it fit perfectly...anyone have a similar experience? i am def thinking my seizures have always been related to lupus now..as at 15 they came before my other symptoms which followed over a span of yrs later. any info/stories on partial seizures would be great. thanks.
*Lupie Britt*- Epilepsy Dx: 2003 & SLE Dx: 2009-Expecting Baby # 2! :)-Current Meds:Plaquenil-200mg 2x/day, Keppra-500mg 2x/day, Prenatal Vitamin- 1 pill/day, Folic Acid- 1mg 1x/day
 *Due September 25th 2010*


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 4/3/2010 10:32 AM (GMT -7)   
Britt, what do these seizures present themselves as? Do you have any auras?

I had simple partial seizures from 2002 to 2007. They were caused by a stroke I had in 2002. Damage to my temporal lobe resulted in these simple partials.

Mine would start out as a strong sense of deja vu. Followed by an electrical burning smell and numb tongue. I'd have up to 20 a day. Then they progressed into complex partials when I started covering my mouth with my hand and staring at the ceiling, along with the other aura stuff.

The seizures went away after I experienced a horrific medication allergy. I was allergic to Lamictal ( a seizure med). I nearly died. My neurologist suspects that the massive fever I had (106), and the Steven Johnson Syndrome (look that bad boy up), fried the part of my brain that the seizures were happening in. I didn't have any seizures after that experience and I've been seizure free for almost 3 years now.

So that's my seizure story! I hope these aren't seizures that you have. They can be extremely distracting and awful to live with. Keep us posted!

Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 4/3/2010 11:46 AM (GMT -7)   
Its a little fuzzy thinking back on the symptoms that I had with the episode that brought me to the ER those months ago. I dont really rememeber a specific aura, because I had soo many lupus symptoms at the time I just felt awful anyway. In my personal opinion where Lupus is affected by multiple triggers such as lights/photosensitivity(which I suffer horribly from whether it be sun or fluorescents...my school has nothing but fluorescents btw and thats where I was when it happened). I was also in front of a computer screen doing math homework(not sure if that is relevant or not) but I think the first thing that happened was I just felt off and got a sense of fear about me for no reason. Then I felt like things were not real so to speak and that the room/screen was kind of getting smaller or something its really hard to explain. It seemed almost like a dream. Then my from my neck up into my face went numb..moreso on the right side and even my tongue went completely numb and all those areas also tensed up so much that it hurt and I couldn't talk. I even remember a metallic taste at some point but dont know if that couldve been from the mouth ulcers I had at the time(as I do get several at a time in a bad flare). I also dont really know how long this lasted but I was aware the whole time and was actually pming a friend on my phone who happened to be the one who suggested it as a partial seizure...she also has cns lupus, partial seizures & hemorraghes etc...so I txted another friend who came to get me, took me to the er and I had a severe lupus rash on my face, arms and chest. They decided to call it "angioedema" after doing bloodwork and deciding NOT to do an MRI, EEG or anything! They said I had an allergic reaction and shot me up with benadryl and prednisone. Ironically the prednisone took my rash away & after a while I did feel better. Due to this I personally think its all lupus related. I was on prednisone for 3 days after that. The day after the hospital visit before I got the prescrip for the pred, I had another episode just like the day before but it was not as bad and didn't last as long. I was sitting in the living room at the time in a chair and it just happened. The only thing I can think of that happened a few days before was this burning/searing/shooting pain in the back of my neck down my spine at the top...after the episodes I dont really remember having it. My rheumy wouldn't put me on prednisone and I remained on only plaquenil for the lupus and they increased my neurontin. I did have an eeg some time after that but nothing was abnormal. I didn't have anymore of the pains in the back of my neck until last night I had it a few times before bed but have not had it today. I dont know what to make of all this but I read about simple partial seizures and it fits the description of the episode perfectly...but so do mini strokes...so whats your guess? lol 
*Lupie Britt*- Epilepsy Dx: 2003 & SLE Dx: 2009-Expecting Baby # 2! :)-Current Meds:Plaquenil-200mg 2x/day, Keppra-500mg 2x/day, Prenatal Vitamin- 1 pill/day, Folic Acid- 1mg 1x/day
 *Due September 25th 2010*


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 4/3/2010 4:30 PM (GMT -7)   
The impending doom or fear feelings are classic with partial seizures. I get those too. The metalic taste in the mouth is also common. I had normal EEG's until the seizures became often enough that I would have a couple during the test. If you're only getting them once or twice every few months, it'll be very difficult to measure them.

It could be mini strokes too. I had lots of those before my full blown stroke in 2002. I guess the best thing is to keep your rheumy updated any time you get this happening. You're already diagnosed with Epilepsy and you're on Keppra, so that drug might be covering up the symptoms of a partial seizure.

Have you ever been tested for APS? (anti phospholipid syndrome). It's thick, sticky blood that lupus creates. That caused my stroke.

Let me know!

Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 4/3/2010 4:56 PM (GMT -7)   
I was tested back in the summer of 09 when I first started really being evaluated for by a rheumy at JH but not since I dont think. I forgot to mention before with my grand/petit mals I have no auras & some other things w/the one episode/possible partial was the constant ringing in my ears ive had for a yr or so now got louder & ive also had pulsatile ringing at times. I also had pressure in my head especially in my eyes & temples. If I recall anything else about the experience I will let you know.
*Lupie Britt*- Epilepsy Dx: 2003 & SLE Dx: 2009-Expecting Baby # 2! :)-Current Meds:Plaquenil-200mg 2x/day, Keppra-500mg 2x/day, Prenatal Vitamin- 1 pill/day, Folic Acid- 1mg 1x/day
 *Due September 25th 2010*

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