I am so confused

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louise47
Regular Member


Date Joined Feb 2010
Total Posts : 138
   Posted 4/6/2010 8:26 PM (GMT -7)   
I had another apoint with the rheumy today and after 2 blood tests that came out high posative for ANA he says they are now negative. I still have all the symptoms so he diagnosed me with Fibromyalgia. Have any of you ever had that happen? 

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 4/6/2010 9:17 PM (GMT -7)   

Hi Louise, yeah it happens. Sometimes it changes because of your medicines. I have never had my ANA go neg. but it has droped from 2560 to 1280. There are also people here that have NEVER had a possitive ANA and still have been diagnoised with lupus.

Now as for the rheumy tell you that you have fibro simply because he /she has no real explination sounds to me that you might want a different rhummy. Not all rhummy's are made the same.

Try not to get to stressed though. This is the dog gone most frustrating disease. I don't even think it knows what it's doing half the time.

hugs

carol


furosemide,spironel,lisinopril,lortab,azithromyazin,detrol
nexium,temazepam,predisone,plaquenil,propanalol,effexor,citracal,pottasium, vitB,iron,xopenex,advair,spirivia
 
Each moment of life is a gift of God. psalms 39:4
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 4/7/2010 7:48 AM (GMT -7)   
Louise, many if not most of us have gotten second and third opinions simply because lupus, fibro, RA, and other AI diseases are so darn hard to diagnose. And if not diagnosed properly, we're often given the wrong meds. I'm on my 4th rheumy and after 6 miserable years, I finally feel much better. In fact almost normal. So don't give up. Take your health into your own hands. Did your rheumy talk to you about fibro? give you a med to take? So many don't and it's incredibly frustrating. I have lupus and fibro as many of us do. And your rheumy should not that a person's ANA can go from positive to negative and back again. Sorry for the ramble, but don't give up till you get answers that you feel are right.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lunesta, cymbalta, vitamin D, Calcium, Multi Vit.


louise47
Regular Member


Date Joined Feb 2010
Total Posts : 138
   Posted 4/7/2010 12:15 PM (GMT -7)   
Yeah he put me on cymbalta about a month ago. I do feel alot better during the day. Some days I can't seem to stay awake though. I almost always get the muscle pain at night now instead of all the time. Some nights are worse then others. I hate it but its better then all the time. He wants to see me back in 6 months or sooner if I need him. He is a real nice Doctor and he seems to be pretty thorough.

louise47
Regular Member


Date Joined Feb 2010
Total Posts : 138
   Posted 4/7/2010 12:16 PM (GMT -7)   
BTW the only thing that came up posative in my test was my cortizol level? Don't know anything about that. I will have to look it up.
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