Gluten free diet question

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alli sunshine
Regular Member


Date Joined May 2009
Total Posts : 40
   Posted 4/11/2010 6:35 AM (GMT -7)   
I posted this on the celiac board, but have heard nothing, so I am giving this board a try. I have been on an endless journey of doctor visits over the last year and a half, but I still do not have many answers. I have had a high positive ana. I have Raynauds, chronic stomach inflamation, haital hernia, joint pain, tingling in my hands and lower arms (that is new), fatigue, anemia, really low vitamin D levels. I am currently on iv iron treatments, and my last treatment out of 10 is tomorrow. I see the hematologist Wednesday to see how it did for me. I saw a neurologist last week because I had brisk reflexes. He felt that my reflexes, while brisk, were in the normal range. He did check me for vitamin B12 levels. While I have had specific blood testing for celiac disease, if the B12 comes back low, I am thinking of trying a gluten free diet just to see if it makes a difference.

I wondered if any of you have tried this, and if you have, how long it took for you to see any difference in the way you felt.

Forgot to add that I am also scheduled for a trans-esophogeal echocardiogram next week. My ortho doctor is concerned that I may have a variant of Marfan syndrome. While I don't want there to be something wrong with me, I am truly afraid that I am going to go through all this and have no more answers than I did before. That scares me.

Anyway, any info about experiences you have had with a gluten free diet would be greatly appreciated. Thank you!

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 4/11/2010 10:26 AM (GMT -7)   
So sorry you are having so many problems and docs still don't know what's wrong, we all know how frustrating it can be.

I am on a gluten free diet because I have celiac disease and must adhere to it. I have heard non celiac people say being on the GF diet improved their joint pain, etc but my rheumy says it's never been proven to help with lupus or it's symptoms. It may be because on a gluten free diet you can't eat boxed food or food that's not good for you, you can't eat out at most restaurants, etc. You stay close to meat, veggies, fruit, gf products, etc and are limited on processed food or food that's full of preservatives, etc. That is my take on it anyway.

I hope you get some answers soon and begin to feel better.
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 4/11/2010 12:31 PM (GMT -7)   
I too have celiac disease and must stay on a gluten free diet.

It's interesting that many conditions seem to improve on or even require a gluten free diet...including Lyme disease, because a gluten free diet is frequently lower in carbs, and carbs feed the nasty little Lyme bugs. Lyme disease also triggers gluten intolerance in many people.

The diet mentioned by Stacie (meats, veggies, fruits - all natural unprocessed foods) is probably the safest, healthiest diet no matter what ails you! Grains are a very recent addition to the human diet (just the past 10,000 years) and our farmer ancestors have modified them significantly from the way they originally occurred in nature. Our bodies apparently don't process grains well at all.

Before I started on the gluten free diet, I was extremely low in many nutrients, especially Vitamin D and B12. Now my D levels are normal, but I've had to have B12 shots.

Some of my symptoms disappeared immediately: daily migraines, various gastric problems such as diarrhea, etc. Other problems are not yet resolved....but I have so many medical issues that's not surprising.

Best wishes to you....I hope you feel better soon!
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 4/11/2010 12:44 PM (GMT -7)   
FYI - There are a LOT of gluten-free grains out there, see Gluten Free Grain.

My favorite is Purple Quinoa - it is also a complete protein for those who want to go vegetarian.

Cheers,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 4/11/2010 2:52 PM (GMT -7)   
Lynnwood said...
FYI - There are a LOT of gluten-free grains out there, see Gluten Free Grain.

My favorite is Purple Quinoa - it is also a complete protein for those who want to go vegetarian.

Cheers,


Very true, Lynnwood, but it's not just all about gluten. Most grains (like corn for example) have also been modified over the millenia. Quinoa is one of the "ancient" grains which is probably closer to the original form.

I must re-iterate, our bodies truly do NOT do as well on grains (modified or unmodified) as they do without them. This is a matter of historical fact; paleoarcheologists were very surprised at the discovery that the human populations before agriculture were significantly healthier than they were after agriculture was developed. Shorter statures, serious vitamin deficiencies, dental problems, etc. etc. were all evident in the skeletal remains after the development of agriculture. Infant mortality also seemed to be higher in the farming communities.

Therefore, grains are NOT good for us....forget the USDA pyramid.
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com

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