feel bad to complain

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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 4/12/2010 1:04 PM (GMT -7)   
I know a lot of you are in worse shape than I am and that I should be grateful for what I have but today is one of those days I feel like whining. I caught a bad cold and it is affecting me. My psoriasis is acting up because the rheumy thinks the enbrel might be causing my neuro symptoms and had me cut back to every 2 weeks. My neuro symptoms are not improving. My 12 year old was rude and actually mean to me on the phone. I miss my son and can't even seem to get someone to send me a picture. I have no help and really need it for things like laundry and such. Hubby has been on my case lately that all I do is sleep but I feel horrible and my head hurts all the time and there is no real reason for me to bother fighting sleep so why not sleep? I mean it makes the days pass faster, I can't concentrate well enough to read a book. There is no reason for me to even fight this disease anymore except that I hate to give in. I am not depressed just having a bad day because of being sick and hearing about everyone else's good news.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 4/12/2010 2:14 PM (GMT -7)   
Hey redrose!!! There are so many reasons for you to fight this disease! One thing that has helped me is to think about the good days and remember that the good days WILL be back. Listen to your body, it sounds like it is telling you to sleep, so sleep as much as you can. about you hubby, maybe it would be a good idea to let him read the spoon theory again! Maybe something to remind him how difficult it really is. I hope you feel better tomorrow and that you are able to get a restful sleep tonight!!!

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 4/13/2010 7:44 PM (GMT -7)   
Redrose, we don't judge how people feel. One worse then the other. That is not what we are about. We all need support. Sometimes things that make me cry have nothing to do with being sick. I'm so sorry about the problems with your son. One day I'll have to share ome stuff with you. I do understand how you feel as for your daughter kids can be so cruel. The best we can hope for is that some day they grow up. (my son will be 30 in augest) still waitin! LOL no he's pretty good finally.
I can't remeber did you say they aren't doing your surgery now. I think Id see another doctor.
I hope you are feeling better today
hugs
carol
furosemide,spironel,lisinopril,lortab,azithromyazin,detrol
nexium,temazepam,predisone,plaquenil,propanalol,effexor,citracal,pottasium, vitB,iron,xopenex,advair,spirivia
 
Each moment of life is a gift of God. psalms 39:4
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 4/13/2010 10:54 PM (GMT -7)   
I see the new psychiatrist tomorrow night, our network changed and this one is closer to home and has evening appointments too. I see the doc about the surgery Friday, I decided to see the same one I saw in the hopital since mine is still out of the office and will let him do the surgery, it may not happen as quickly as it would have before but by golly it will happen no matter what the bi.... doctor says. I am sorry for the language, but the doctor I saw for the biopsy is the same one who told me no woman with lupus should ever get pregnant and still stands by that. She wants me to have surgery to remove the growth, endometrial ablation, and get an IUD again but that leaves the ovary problem still and I am sick of cysts every 2-3 months. I am still in horrible pain from this round of cysts. Saw the rheumy Friday and he prescribed a new med for the headaches. I just got it today- it had to be ordered cause it is old and not used a lot anymore. So far the headache is still there but less severe. Working about as well as my migraine meds. I need to see a neurologist but keep putting off calling. I will do so tomorrow. I just hate to add another appointment because hubby has to drive me until my rheumy says I can drive again.
 
I fell out of bed last night and in the shower the day before. My right side has taken a beating and I am black and blue. I am still not feeling great but better than when I initially posted.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 4/14/2010 6:38 AM (GMT -7)   
Redrose,

I'm glad that you're seeing a psychiatrist and hope you'll like him and that he'll help you. Sometimes we need someone to help us emotionally weather this storm that is lupus.

Hope you get all your medical problems solved too.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lunesta, cymbalta, vitamin D, Calcium, Multi Vit.

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