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nolatoco
Regular Member


Date Joined Jun 2009
Total Posts : 66
   Posted 5/3/2010 10:06 PM (GMT -7)   
So, I was just thrilled about getting off of the prednisone the other day.
 
However, just got out the shower and my hair is falling out a ton more than it was and my heart rate while I am sitting here in bed is 116 and feels like my hard is pounding out of my chest.  I mentioned feeling this way to my rheumatologist when I was on the prednisone and she said it was a side effect of the prednisone.  Not sure why it's happening now, but I'm not having any chest pain or anything critical going on, so I'm waiting it out.
 
Any ideas guys?
Is an impending flare on its way?  Could the hair loss happen due to the lack of prednisone now?  Sigh.
Not sure what to make of this.
I'm not having any achiness or pain, but I guess I'll have to see how I feel in the morning.
 
Diagnoses- UCTD 2009, ovarian cysts 2008, asthma 2001
Daily Meds- Plaquenil, Vitamin D, Wellbutrin, Lodine 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 5/3/2010 10:15 PM (GMT -7)   
Yup, see how you feel in the morning and try not to stress yourself out. Our stress can cause a Lupus flare!

I hope things settle down & make sense soonest.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


nolatoco
Regular Member


Date Joined Jun 2009
Total Posts : 66
   Posted 5/3/2010 10:18 PM (GMT -7)   

Thanks, Lynnwood!

Trying not to stress out.

:-)

 
Diagnoses- UCTD 2009, ovarian cysts 2008, asthma 2001
Daily Meds- Plaquenil, Vitamin D, Wellbutrin, Lodine 


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 5/4/2010 11:12 AM (GMT -7)   
Hi there! My heart rate is normally resting at around 100. At first we thought it was the prednisone but the more and more we come down on the prednisone, my heart rate hasnt come down any. Now we think its just the lupus, but as long as their is no chest pain, things are ok! They listen extra closly to my heart at my apts but so far, so good. its been about this fast for at least 6 months now.

I am not sure how you long you have been on plaquenil but I have heard from several people that it has caused their hair to thin considerably! Hey, at least it will be cooler for summertime!! Like Lynnwood said, don't stress out over it, then you will be in a flare if you let the stress get to you!

Also, congrats on being off the prednisone. I know that must be exciting :)

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 5/4/2010 4:40 PM (GMT -7)   
Oh no, not hair loss with plaquenil..... Mine's thinned out so much already. I was lucky to start with a ton of hair, so I still have a lot but it is much finer.
diagnosed 1/09 with colitis location: sigmoid colon with some diverticular disease as well
IBS, asthma/allergies, prediabetes, high BP, fibromyalgia, GERD
low thyroid
claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, plaquenil back on cymbalta for pain, nexium for reflux (trying again)
Blood test positive for Crohn's via prometheus ibd serology panel
Positive ANA rheumatologist suspects mixed connective tissue disease 4/2010


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 5/5/2010 8:18 AM (GMT -7)   
Hi Nolo. I get the very chest symptoms you describe. After I lie down awhile they subside. I had a complete cardiac workup. I love Amy's comment that it's just lupus. I've had so many strange things happen to my body and the docs favorite diagnosis is, it's just lupus.
 
Regardless, be aware of any symptoms that can be heart attack; chest pain, pressure in chest (like an elephant is sitting on it), pain radiating down the jaw or arms, a feeling of indigestion that doesn't go away.  
 
Lastly, I lost lots of my hair but it all came back. Don't stress wink   Love, Butterflake
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease  Lots of meds.  Donna 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 5/5/2010 9:20 AM (GMT -7)   
I had some hair thinning with Cellcept, but not from prednisone or plaquenil....I forget which med we're talking about and feel too lazy to page up & see. LOL. Didn't get my 12 hours of beauty sleep last night.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 5/6/2010 6:00 AM (GMT -7)   
I've had hairloss ever since I've started getting sick.  I always lose some here and there, but when it really starts shedding all over the place I know it's a sign that I'm about to start to feel really crappy.  Only now it's been thinning pretty bad lately and I'm starting to feel more energetic then ever.  I was out of the house running errands for four hours yesterday, expected to come home and collapse in pain and exhaustion, but didn't.  Expected to wake up this morning in severe pain pain dead tired and unable to move, but didn't.  Started MTX 3 months ago, could something actually be working????  OH GOD,PLEASE LET IT BE!!!!!!  I'd lose all my hair for a drug that actually worked!  Hang in there.

Jennifer

Taking plaquenil, atenelol,  Flexeril, Claritin, Zantac ,Trazadone, Ambien, Prednisone 5mg, super B complex, multi- vitamin, folic acid, 15mg er morphine twice a day and Lortab 10 3-4 times a day, Imitrex for migraines.  Allergic to all NSAID's and Ultram.   Mom of 2 boys 2 1/2 and 7.  Symptoms: Fatigue, joint pain and swelling,Raynauds,numbness,tingling,weakness, heat/sun sensitivity, mouth and nose sores, malar rash, migraines, awful hives, positive ANA, with speckled pattern, positive RF, negative anti-DSDNA, and positive for Sjorgen's Syndrome.

 

 

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