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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/8/2010 9:28 PM (GMT -7)   
I went to ER yesterday because I gained 10 lbs in 24 hours. which signals CHF. and of course I couldn't jus call my doctor because she was out of town. (again) won't be back until tuesday. Anyway they drew blood took an xray said I'm fine and sent me home. I didn't want to go in the first place but my home health nurse made me. I hadn't peed in over 24 hours. I finally took 180mil. of lasix and started to pee a little bit. After I came home I pretty much slept the whole time  until now. My neice (she's 13) came home and climbed in bed with me and watched some movies. which was nice to at least not be all alone. I can't hardly talk my throat hurts my ears and glands hurt. and I'm ready to go back to sleep. Anyway bottom line is I wanted you to know I'll probably be sleep for a ffew days if you don't here from me. So not to worry. Keeping you all in my prayers and even closer to my heart.
blessings
carol
furosemide,spironel,lisinopril,lortab,azithromyazin,detrol
nexium,temazepam,predisone,plaquenil,propanalol,citracal,pottasium, vitB12 ,iron,xopenex,advair,spirivia,soma,Vitamin D, cybalta
 
Dx lupus, scleroderma, pos. fibro, high blood pressure. COPD, need left lung transplant. cervical cancer survivor, osteoporsis.
 
"Consider it a pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance." - James 1:2&3
 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 5/9/2010 5:43 AM (GMT -7)   

(((Carol))) I'm glad you went to the ER even if they didn't do jack. I know if you felt better you'd want to do Jack (tee hee!) Well it's good you can cuddle with your niece. Get lots of rest. I love you Sweetie. Donna


Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease  Lots of meds.  Donna 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/9/2010 5:55 AM (GMT -7)   
LOL Oh Donna I can't beleive you said that. My head hurts so bad I can't barely move it but I wasn't expecting your comment. Now it hurts even worse! Lousey Lupus migraines! Yeah you're right about jack and joe and john. Some how I wind up with my dog and my neice! What's wrong with this picture? It's kind of the story of my life. shakehead . Still can't pee though. I do worry about the congestive heart failure  though. I still can't swollow.  Do you ever feel like giving up? Oh wait a minute you got the boyfriend I forgot. Does he have a brother?
love ya
carol


furosemide,spironel,lisinopril,lortab,azithromyazin,detrol
nexium,temazepam,predisone,plaquenil,propanalol,citracal,pottasium, vitB12 ,iron,xopenex,advair,spirivia,soma,Vitamin D, cybalta
 
Dx lupus, scleroderma, pos. fibro, high blood pressure. COPD, need left lung transplant. cervical cancer survivor, osteoporsis.
 
"Consider it a pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance." - James 1:2&3
 


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 5/9/2010 6:30 AM (GMT -7)   
Hey Carol! Will deffinatly be thinking about you and if you keep gaining weight, please go back to the ER! Please get the rest you need and let us know how you are doing when you feel up to it!!!

Donna-LMBO!!! You comment deffinatly caught me off guard and made me choke on my juice!!!! LOL!

Love ya both

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/9/2010 7:11 AM (GMT -7)   
Wait a minute....Jack doesn't run around.

Carol, I had a feeling that you've been getting worse, and I'm sorry the hospital sent you home. Sounds like you have a good nurse. Do you like her? I wish you had a doctor who was more available to you.

Take care sweet friend.

Love ya,

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lunesta, cymbalta, vitamin D, Calcium, Multi Vit.


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 5/10/2010 9:09 AM (GMT -7)   
You ladies crack me up!!!!! LOL

Carol, I'm sorry you had to go to the ER and not feeling well. Hang in there my friend and know we are here for you and are praying and thinking of you! Love ya
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 5/10/2010 7:38 PM (GMT -7)   
Carol,
I'm sorry you are feeling so badly. I hope you will go back to the ER if you don't get better or suddenly feel worse. Hang in there and rest.

love ya, Babs



Thanks for the good laugh Donna and Carol....so funny!

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/11/2010 7:24 AM (GMT -7)   
sad Carol, I know that you need more help and I don't want you to give up living in your own house. If we all put our heads together, I just know that something will come up that will make your life easier. Have you ever thought to ask your aide if she or the company pays for her gas or mileage? I'm anxious to find out if you can get some help on the weekends.

Keep your chin up. Things will work out.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lunesta, cymbalta, vitamin D, Calcium, Multi Vit.


AmyTx
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 5/11/2010 8:23 AM (GMT -7)   
im sorry your feeling bad and i wish you the best in getting better,,, with your name being okie are you in oklahoma and did you do well riding out those awful storms..
Female: 38 yrs/old DX: Lupus (dx:'03) MCTD, Raynaud's, Anxiety./panic disorder, GERD, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage 3 & 5 Lupus Nephritis. PRES ,Seizures, Photosensitivity since childhood, vasculitis, left thumb and toe amputated from raynauds, Sjogren's
Meds: cellcept, Plaquenil,Prednisone 10,Miracle mouthwash,bactrim, actonel, caltrate, Xanax, Darvocet, Xopenex inhaler, Xopenex Nebulizer, Spiriva, prevacid, aspirin 325mg, pantaprozole and carafate


jesimae
Regular Member


Date Joined Oct 2009
Total Posts : 109
   Posted 5/12/2010 10:50 PM (GMT -7)   
Sounds more like kidney failure to me. Urinary retention, 10 lbs of fluid... can just be a really bad kidney infection also. Need a u/a. With no chest pain or diff with breathing/clear lungs doesn't sound like CHF. Can't believe they didn't check your kidney function. All it takes is 2 tubes of blood! Get that checked pronto!

Post Edited By Moderator (Lynnwood) : 5/13/2010 7:26:42 AM (GMT-6)


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/13/2010 9:07 PM (GMT -7)   
hi everyone, well I just wanted to stop in long enough to say thank you for the posts. I have a lung infection and can barely get out of bed. doc has me on 750 levequin. I've been crying quiet a bit I'm so tired of fighting this. I can only sleep about an hour at a time. I am eating fruit and sourdough bread. that's about all I can get down. I lost 6 lbs yesterday yeah . I'm pushing myself to do some treadmill sessons about 30 seconds at a time. I thought it would keep my muscles from deterioriating. I'm still looking for the male physical therapist I can show muscles off too. (yeah right). tongue . well I don't have my health, I do have humor and I can still dream.
 
love you all gonna go back to bed now.
your lupie sister
carol
furosemide,spironel,lisinopril,lortab,azithromyazin,detrol
nexium,temazepam,predisone,plaquenil,propanalol,citracal,pottasium, vitB12 ,iron,xopenex,advair,spirivia,soma,Vitamin D, cybalta
 
Dx lupus, scleroderma, pos. fibro, high blood pressure. COPD, need left lung transplant. cervical cancer survivor, osteoporsis.
 
"Consider it a pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance." - James 1:2&3
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/13/2010 9:08 PM (GMT -7)   
hi everyone, well I just wanted to stop in long enough to say thank you for the posts. I have a lung infection and can barely get out of bed. doc has me on 750 levequin. I've been crying quiet a bit I'm so tired of fighting this. I can only sleep about an hour at a time. I am eating fruit and sourdough bread. that's about all I can get down. I lost 6 lbs yesterday yeah . I'm pushing myself to do some treadmill sessons about 30 seconds at a time. I thought it would keep my muscles from deterioriating. I'm still looking for the male physical therapist I can show muscles off too. (yeah right). tongue . well I don't have my health, I do have humor and I can still dream.
 
love you all gonna go back to bed now.
your lupie sister
carol

furosemide,spironel,lisinopril,lortab,azithromyazin,detrol
nexium,temazepam,predisone,plaquenil,propanalol,citracal,pottasium, vitB12 ,iron,xopenex,advair,spirivia,soma,Vitamin D, cybalta
 
Dx lupus, scleroderma, pos. fibro, high blood pressure. COPD, need left lung transplant. cervical cancer survivor, osteoporsis.
 
"Consider it a pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance." - James 1:2&3
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 5/13/2010 9:52 PM (GMT -7)   
((((Carol))))
Bless your heart sweetie! You have such a good sense of humor, even when you are so down...((Gentle Hugs)). I hope the infection clears up soon, so you can pump up the muscles of that Male Physical therapist...:)

You rest and take care.

Love ya, Babs

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/14/2010 8:18 AM (GMT -7)   
Carol, no wonder you feel so bad. I hope you woke up today feeling a little bit better. Take care of yourself!

Love,

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lunesta, cymbalta, vitamin D, Calcium, Multi Vit.


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 5/14/2010 11:40 AM (GMT -7)   
Carol! Hope you feel some better today! As always, you are in my prayers and thank you for updating us on how you are doing!!! I was getting worried!

Love you

puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 5/15/2010 8:10 AM (GMT -7)   
Carol, dear heart, my prayers are always with you. I am so sorry to hear that you always are sufering so much. Take care and God Bless.

Jennifer

Taking plaquenil, atenelol,  Flexeril, Claritin, Zantac ,Trazadone, Ambien, Prednisone 5mg, super B complex, multi- vitamin, folic acid, 15mg er morphine twice a day and Lortab 10 3-4 times a day, Imitrex for migraines.  Allergic to all NSAID's and Ultram.   Mom of 2 boys 2 1/2 and 7.  Symptoms: Fatigue, joint pain and swelling,Raynauds,numbness,tingling,weakness, heat/sun sensitivity, mouth and nose sores, malar rash, migraines, awful hives, positive ANA, with speckled pattern, positive RF, negative anti-DSDNA, and positive for Sjorgen's Syndrome.

 

 

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