Hi. I am so sorry you are having these problems. I have heard that there can be some hair changes, but haven't noticed that, unless you count the greys! I too have noticed areas that have become unevenly pigmented and it seems that with every sun exposure, no matter how greased up I am with sunscreen, that brown-ish area/white thing keeps getting worse. I have resorted to long sleeve shirts and sunscreen, which does seem to help and I avoid the sun like the plague!
I understand the embarassment. I am so sorry anyone else deals with that, and hear your words with an especially empathetic heart. I wish there was something else to say other than I do know what you are going through, and I sincerely wish you didn't have these problems.
Oh, I wanted to tell you one thing that may/may not apply to you. My hair loss, and it has happened several times, and then rebounded...it wasn't from Plaquenil, it was from Lupus. Fortunately for me, just about the time I began trying on hair pieces and wigs, and wore hats all the time hoping to cover it up, somehow slowly that stopped and over time, my hair did return. So maybe there is something transient going on.
I do believe that the physical changes alter our internal awareness and maturity levels--over time. It isn't smooth and easy growth, but over the long haul, other people have commented that they have learned from watching me deal with my problems. Although that was kind of complimentary and I passed those things off at first, upon deeper reflection, I have to admit I am not the same person before all the labels appeared. Trying to cobble together meaning and purpose for these diseases isn't always easy, but sometimes it allows us to take the BIG view and accept it easier. You will be in my prayers, especially when I look at my own arms. The spots don't bother me like they did at first, but now that I know someone else is hurting, I will look at my arms and pray somehow you will feel better soon.