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Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 5/25/2010 9:06 AM (GMT -7)   
Okie, Where are you? How are you doing?

Friends, Okie hasn't posted since the 16th and hasn't been on since the 19th.

If anyone knows what's up with her please give us an update.

Thanks,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 5/25/2010 9:33 AM (GMT -7)   
I have been wandering the same thing. I did recieve a cute email from her this past weekend but nothing updating on how she is doing!!!

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 5/25/2010 9:53 AM (GMT -7)   
Hey Lynn, and Amy:

I speak to Carol daily, she's just not feeling the greatest and hasn't been up to coming to the forum. I managed to talk her into getting in touch with her doctor. Carol is retaining fluid yet again, however this time the doctor didn't seem to want to do much for her. I also know she's really sad she needs to give her dog away and that's being really hard on her. She loves that dog but she's not well enough to take care of him. So overall she's struggling and could use some positive energy from you all. I'll keep you updated on how she's doing. Thanks for asking about her.

Hugs,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 5/25/2010 10:36 AM (GMT -7)   
Thanks Barbara & Amy -- I had a feeling someone knew more than I did!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/25/2010 8:47 PM (GMT -7)   
Thanks Lynnwood, Ames, and Barb, Thanks for checking on me and for filling folks in. Like Barb said I'm having a hard time. I'm trying to hold it together but it's hard right now. A lot is going on.
My birthday is next month. It's been a little over a year ago that my dad past away. I was born on fathers day. june 16 1957. (that's enough to depress anyone 53???????
Anyway I gained 18lbs again. my ring was stuck on my finger. I was put on a little over two little bottles of water or fluid whatever and put on double amount of lasixs. I still didn't pee. I have a bad pain in my side and in right front side under my ribs. I tried to get another doctor in enid and after he found out what is wrong with me he said he couldn't take me because I'm to sick!. That was a first for me. Sorry I can't help ya your to sick!. Now for some reason after 6 years I'm having an allergic reaction to my oxygen hose. I feel like my body just quit fighting for me.and yes like Barb said I have to give my dog up. right now it's not so bad because it's warm out but there is no fence here and I have to go outside with him. I left the house maybe 5 times all winter because my lungs can't take the cold. Plus I have to go pick up dog droppings. My neighbor isn't happy with me leaving it there. Besides Taco weighs 60lbs. h's a big boy and I can't take him out and run with him. He's 7 years old and he needs to get out and run. He's a healer he was born to run. Ok now I'm crying I gotta go.
love ya all
carol
furosemide,spironel,lisinopril,lortab,azithromyazin,detrol
nexium,temazepam,predisone,plaquenil,propanalol,citracal,pottasium, vitB12 ,iron,xopenex,advair,spirivia,soma,Vitamin D, cybalta
 
Dx lupus, scleroderma, pos. fibro, high blood pressure. COPD, need left lung transplant. cervical cancer survivor, osteoporsis.
 
"Consider it a pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance." - James 1:2&3
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 5/25/2010 9:13 PM (GMT -7)   
(((Carol))),
I'm sorry you have to give your dog up..:( My heart goes out to you sweetie. Hang in there. You are in my thoughts and prayers.

Love ya, babs

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 5/25/2010 11:09 PM (GMT -7)   
I guess it sounds weird to be upset about my dog. It's just that he's always been there for me since I started getting sick. He's one in a million. I mean lassie ain't got nothin on him lol. Besides it's this lousy disease. I mean I thank God I didn't get sick when my son was little. at this point in my illness I would not be able to take care of him. I don't mean to sound morbid but I know there is nothing left the doctors can do for me. So I'm just going with enjoying the good days. This stupid disease just takes away and never gives back! It's slow and has no mercy!
Good Grief I sound like a soap opera!
THESE ARE THE DAYS OF OUR LIVES!
 
Ok so this is why I havn't been around. I can't even stand myself. Heck now that I think about it Taco will probably be thrillled! LOL If I ever find the right person for him. He's a companion dog he would be great visiting hospital wards. I would never want that gentleness taken out of him.
 
crap another night of not sleeping.
furosemide,spironel,lisinopril,lortab,azithromyazin,detrol
nexium,temazepam,predisone,plaquenil,propanalol,citracal,pottasium, vitB12 ,iron,xopenex,advair,spirivia,soma,Vitamin D, cybalta
 
Dx lupus, scleroderma, pos. fibro, high blood pressure. COPD, need left lung transplant. cervical cancer survivor, osteoporsis.
 
"Consider it a pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance." - James 1:2&3
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 5/26/2010 8:48 AM (GMT -7)   
Aww Carol, I hate to hear you sound so sick, depressed, and fatalistic about your condition. I just feel so helpless and don't quite know what to do to help you. I still believe that you can find a doctor who will treat you with more respect and compassion than the one you have.

Have you thought about getting a kitty? You've had cats before and they don't require any care and never have to go outside. You really need some love in your house.

You do know, though, that you have a lot of love here. Everyone on HW loves you to death and we all wish you the best.

Love ya,

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lunesta, cymbalta, vitamin D, Calcium, Multi Vit.


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 5/26/2010 10:04 AM (GMT -7)   
((((Carol, Sweetie)))) You give so much to me every time I read your posts. Keeping in mind I'm the suicidal, major depression queen of our group: of course I like it when you're funny and feeling well, but all of your posts give me mental strength. No one should have to go thru the #%^# you go thru. Just the fact that you're alive shows me how much courage you have and it helps me.
I'm so very sorry about Taco. I had my 10 y/o cat put down last month. In many ways it's harder finding a good home for your loved one. I love animals and I hope you find him a good home soon. Love, Donna 
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease  Lots of meds.  Donna 


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 5/26/2010 8:17 PM (GMT -7)   
(((((Carol)))))

Sending gentle hugs your way.
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim, Zantac.
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 5/27/2010 3:09 PM (GMT -7)   
Hey Carol! I am praying for you sweetie! I like the cat idea. They are so easy to take care of (except litter box duty) and mine is so affectionate and loving! I think it would be perfect for you. Sorry to hear about Taco, but I know its for the best and I know you will find him a loving home! Stay strong

Love you

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 6/3/2010 12:35 PM (GMT -7)   
Hi Carol, I have been getting worse and not much positive to say. I pray for you and Barb but just haven't had any energy. Something is going on with my COPD, it is getting worse, and I also have a really bad pain in my right side which I attribute to my liver. They say gallbladder. Whatever. Maybe someone in the air? Anyway, I love you guys and miss you but getting on the computer is hard these days. I will keep you in my prayers always and think about you much. Just worn out. Thanks Lynnwood for this post. Love to you as well.
Marji


Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

Post Edited (cured4real?) : 6/3/2010 1:42:22 PM (GMT-6)


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 6/3/2010 3:01 PM (GMT -7)   
Carol, I am sorry you have to give up your dog. We got a cat a few months ago and I got a self cleaning litterbox. That way we don't have to worry about it more than once a week and usually less often. I hope you feel better soon and that Taco finds a loving home.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 6/4/2010 7:02 AM (GMT -7)   
I received an email from Carol. She's very very ill, staying in bed, and has lost 20 pounds in the past 2 weeks, between diuretics, diarrhea, and lack of appetite. She's not sure she's going to have the strength to make it to OKC to the new rheumy. I'm very very worried about her, and worried that she shouldn't be living alone. She needs much more help than she's getting. She also needs for us to rally around her.

So Carol, if you get on here, know that whatever else is going on in your life, however sick you get, you'll always have us to lean on. We'll always be there for you, and we love you!

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lunesta, cymbalta, vitamin D, Calcium, Multi Vit.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 6/4/2010 9:13 AM (GMT -7)   
I am sending positive thoughts, energy, and prayers her way. I am so sorry you are so ill Carol.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

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