Taking plaquenil, atenelol, Flexeril, Claritin, Zantac ,Trazadone, Ambien, Prednisone 5mg a day,Topamax 100mg, MTX 15mg a week, super B complex, multi- vitamin once a week, folic acid, and Lortab 10mg 4 times a day, Imitrex for migraines. Allergic to all NSAID's and Ultram. Mom of 2 boys 2 1/2 and 7.
Symptoms: Fatigue, joint pain and swelling,Raynauds,numbness,tingling,weakness, heat/sun sensitivity, mouth and nose sores, malar rash, migraines, awful hives, positive ANA, with speckled pattern, positive RF, negative anti-DSDNA, and positive for Sjorgen's Syndrome.
Beaches are fun at night, too. Once the sun gets really low in the sky, like between 5 and 7 pm, that's when we planned our outside play. The kids can scoop water from the edge and play in the sand. Don't go in the ocean past toe depth, because the big fish follow the little fish into shallow water at dusk to eat them, especially baracuda. My UV resistant Coolibar jacket helped me alot when I went to visit my daughter. I didn't even feel the usual prickles and itchy hives that attack me even through the car windows, or standing in shade. Please don't exhaust yourself getting ready for your trip, I highly recommend my travel plan: KISS, keep it short and simple, pack light, play clothes can quickly be washed/dried in hotel washer or hung over a balcony with beach towels. DON'T get into a cleaning frenzy before you go. Remind yourself: If you do THIS, you can't do THAT!
Rest alot, play, rest, play, rest, you get the picture hugs, and have fun, suetoo