prednisone question

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aimsgirl16
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Date Joined Jun 2008
Total Posts : 1469
   Posted 6/7/2010 2:22 PM (GMT -7)   
I had a fabulous apt with my rhuemy today! Things are going great. I have been on Prednisone over 40 mg of prednisone for the past few years. A few months ago we started tapering my pred and I was at 10...well, today I was told to go ahead and drop down to 5 mg. I asked several times...so I go from 10 mg down to 5 mg and was told yes. My question...isn't that too quickly? Would you veteran prednisone users taper that quickly? Should I maybe go from 10 to 7.5? If you guys don't think I will have a problem, I will do the 5 mg decrease...Just thought I would get some input before I did!!!

Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 6/7/2010 2:34 PM (GMT -7)   
It works differently for different people. How long ago did you drop to 10 and what was the last over-10 dosage?

You can always try going to 5 mg for a few days and if you feel too bad increase it back to 7.5 -- I am a little surprised but maybe the Dr was too lazy to write a script for the 1 mg tablets?

You think those 5 mg tablets are little & hard to keep track of? The 1's are worse!

Cheers,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


aimsgirl16
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Date Joined Jun 2008
Total Posts : 1469
   Posted 6/7/2010 2:42 PM (GMT -7)   
I dropped to 10 about a month ago and before that I was at 15...once I got to 20 mg, we started doing the 5 mg decrease. The funny thing is about writing a script for it, she wrote me a script for 5 mg today. I know when I went from 15 to 10, I felt like my chest was going burst into flames, but that only happend at night and for the first 3 or 4 nights. If its only 3 or 4 days...I can take that!!

Oh Goodness...I can't imagine what a 1mg pill must look like. You must have read my mind when saw the 5 mg pills today. But hey, that hopefully means I can get it down quicker and not have to taste the prednisone taste!!

Thank you for the quick response Lynnwood :)!!!

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 6/7/2010 7:19 PM (GMT -7)   
Hey Amy, congrats on the taper!! That is a huge accomplishment!

Tapering below 10mg requires a gentle touch so to speak. Dropping the dose by 1mg every week is the standard that I've been told by my rheumy. Think of it in percentages rather than mgs. To drop from 10 to 5 is a 50% decrease. Would you drop from 40 to 20 in one go? No way, right!

You'll be very surprised how different you feel by dropping just 1mg at a time at these low doses.

YAY!!! yeah yeah yeah yeah yeah
Moderator of Lupus and Fibromyalgia forums

36 years old, diagnosed in 2000. SLE, Fibromyalgia, APS, Sjogrens, Raynauds, Thrombocytopenia, Vasculitis, Stroke – 2002, Bilateral sacroilitis, Clinical Depression/PTSD/Anxiety/panic disorder, Optic Neuritis. Prednisone, Imuran, Plaquenil, Coumadin, Cozaar, Zoloft, Didrocal, Seroquel


redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 6/7/2010 9:42 PM (GMT -7)   
I have never been told to drop 5mg at a time unless I was on a short burst dose or dose pack. Other times it was a 2.5mg drop at a time and usually for more than a week between dropping again.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 6/8/2010 4:34 AM (GMT -7)   
When I tappered down from 10 mg to 3 mg, the rhumty tappered it down 1 mg by mg.  I tapered by each mg every month, so far it works pretty good.  He is hoping to taper it off me and only rely on Cellcept. 

DX SLE 1988; APS (Antiphospholipid Syndrome) Pred 7mg, Verapmil 40 mg bd (for migraine headaches), Cellcept 2000 mg;Omerprazole 40 mg; Warfarin; Calcium + Vitamin D 1200mg, Folic Acid 5 mg; Simvastin; pregablin 75 mg


anna24
Regular Member


Date Joined May 2009
Total Posts : 27
   Posted 6/8/2010 8:31 AM (GMT -7)   
Just like redrose, I've been told to reduce by 2.5 mg each time I've been on
prednisone. Thank goodness I'm completely off of it now.
SLE, vasculitis, methotrexate, plaquenil, dapsone & the usual supplements


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 6/9/2010 3:23 PM (GMT -7)   
Thank you everyone. I decided to do 7.5 for 2 weeks and then see how I do at 5 mg. I have 2 months till my next apt and figure as long as I get down to 5mg before my next apt, things will be ok.

Does coming down on prednisone make you emotional? I have heard that being on it can make you cranky or have mood changes. I have not experieced that on the doses I have been on BUT yesterday and today I have been an emotional butterball. One moment I am happy and then the next moment I am crying uncontrollably for no apparent reason. Could this be from the taper? My joints are a little more sensative but only slightly swollen. other than that and the mood swings I feel fine!

Any ideas of things I might be able to do to help counteract this?

challenged nurse
Regular Member


Date Joined May 2010
Total Posts : 69
   Posted 6/9/2010 4:02 PM (GMT -7)   
Well they just decreased my Prednisone yesterday from 60mg to 40mg for 2weeks, 30 for 2weeks, 20mg for 2 weeks. I have been on 60mg for 4 weeks now. I can tell the difference already. I am experiencing more joint pain today than I have in the last 4 weeks. I have been very irritable on the 60mg. Not sure what to expect from the decrease though. Guess I find out soon.
DX: Lupus(UMCTD), Asthma, Mitral Valve Prolapse, Heart Murmur, Anemia, Vitamin D def., B12 def, Hypertension r/t lupus, TIA, muscle weakness, numbness, tingling, headaches, night and day sweats and IBS.

Meds: Imuran 100mg, Prednisone 60mg, drisdol 50,000 units weekly, b12 injections monthly, Protonix, Zantac, Tramadol 4 times daily prn, Align, Kapidex, Amitza, Miralax, Vaseretic/HCTZ Aspirin.

Allergies: Cipro and Bactrim
I can do all things through Christ that strengthens me.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 6/9/2010 4:04 PM (GMT -7)   
Since prednisone affects our blood sugar maybe coming down is making your blood sugar fluctuate leading to mood swings? I dunno, that's all I can think of. If it's that, eat small protein-based meals/snacks more often.

So far when I go below 4mg I just turn into a washcloth...no energy, back in bed/sofa mode. With 4 I feel like a normal person...such a small change, but a big effect.

Cheers,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 6/9/2010 4:19 PM (GMT -7)   
Good idea Lynnwood!!! I will check my blood sugar periodicly tomorrow to see what it is doing. Its so crazy how 1 mg can make such a difference. I hope that you will eventually be able to come off of it all the way in the near future

Hey Challenged, good luck on your decrease. I hope the joint pain doesnt get any worse

challenged nurse
Regular Member


Date Joined May 2010
Total Posts : 69
   Posted 6/9/2010 4:56 PM (GMT -7)   
Thanks, I wanted to point out that it does affect your blood sugar. I checked mine before I went to the doctor and it was 270 and I'm not diabetic. When I got home it was 97. I knew something happened because my energy level hit the floor went I got out of the car. I had to get a wheelchair to go into the doctors office. I stayed that way for the rest of the day. I know the 92 degree weather contributed as well.

Thanks aimsgirl!
DX: Lupus(UMCTD), Asthma, Mitral Valve Prolapse, Heart Murmur, Anemia, Vitamin D def., B12 def, Hypertension r/t lupus, TIA, muscle weakness, numbness, tingling, headaches, night and day sweats and IBS.

Meds: Imuran 100mg, Prednisone 60mg, drisdol 50,000 units weekly, b12 injections monthly, Protonix, Zantac, Tramadol 4 times daily prn, Align, Kapidex, Amitza, Miralax, Vaseretic/HCTZ Aspirin.

Allergies: Cipro and Bactrim
I can do all things through Christ that strengthens me.


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 6/10/2010 3:39 PM (GMT -7)   
Lynnwood, I just wanted to say that you are a genious :)! My blood sugar fluctuating was the problem and I ate snacks today and didnt have mood swings like before :)!

Thank you so much

suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 6/12/2010 6:24 AM (GMT -7)   

Hi! All,

I vote slow is the way to go, my tabs are 5mgs, and scored to half them, (not easy but you can do it), and my rheumy said every other day is a good method to tapering. And I am so grateful for the good advice that is shared here,

hugs, suetoo


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 6/12/2010 6:50 PM (GMT -7)   
when i was taking large dose of pred i was hving bsl that were unreal
i honestly thought i was gt hv to add diabetes to list..
it def does affect your bsl readings imho
lyn
good luck Amy
hugs
lyn

CelticCail
New Member


Date Joined Jun 2010
Total Posts : 8
   Posted 6/19/2010 7:38 PM (GMT -7)   
If you feel more comfortable going to 7.5, do that for the peace of mind. Last time I tapered, I went to 7.5 from 10 and it went well. This time, I'm going to go right to 5 but I've been on pred for less time. You could also try going down to 5 and if symptoms worsen, just go back up. :)
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