Sick of lupus...today

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Butterflake
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Date Joined Jun 2006
Total Posts : 1551
   Posted 6/9/2010 10:42 AM (GMT -7)   
Hi Everyone. Last Wednesday I tripped over my front door step and fell. Cut my knee, hurt all over, but okay. I often use my hands and knees to get up from the floor or tub. Last night I was trying to get out of the tub without using my knee and I fell in the tub. I had a headache for a while, but otherwise the usual hurt all over. I love my baths with epsom salts, but I'll have to switch to showering in my tub chair. At least it's only until my knee heals.
 
I'm seeing a doc Friday re gastric by-pass surgery. Blue cross will cover almost all the surgery cause I'm morbidly obese and have high blood pressure, diabetes, and sleep apnea. I really hope that losing half my body weight will restore my sense of balance. I'm so friggin sick of falling. The Butterflake Pillsbury dough boy doesn't bounce like she use to. Love, Butterflake
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease. Cellcept and lots of other meds.  Donna 


Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 6/9/2010 11:10 AM (GMT -7)   
Sorry for the fall, I know how much you must hate that! I hope the dr appointment goes well...you are so funny Mz Butterflake Pillsbury Dough Girl!!!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


aimsgirl16
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Date Joined Jun 2008
Total Posts : 1469
   Posted 6/9/2010 3:25 PM (GMT -7)   
LOL!!! omg, you gave me such a good and much needed laugh today! I love your Pillsbury Dough girl comment :)!

Sorry about your falls. I hope you can get back to your epson salt baths soon! I know I rely on those several times a week and would be devestated if I couldnt do that. Let us know what the doc says on Friday. I have a friend who went through it and she looks so good and feels so much better just having all the extra weight off!!! Good Luck Donna! Keep us posted on how you are doing

puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 6/9/2010 5:35 PM (GMT -7)   
I'm sick of it too, if that's what they decide I have. It may just be a really, really severe case of Sjogren's Syndrome. Whatever... I'm tired of it too.

Jennifer

Taking plaquenil, atenelol,  Flexeril, Claritin, Zantac ,Trazadone, Ambien, Prednisone 5mg a  day,Topamax 100mg, MTX 15mg a week, super B complex, multi- vitamin once a week, folic acid,  and Lortab 10mg 4 times a day, Imitrex for migraines.  Allergic to all NSAID's and Ultram.   Mom of 2 boys 2 1/2 and 7. 

Symptoms: Fatigue, joint pain and swelling,Raynauds,numbness,tingling,weakness, heat/sun sensitivity, mouth and nose sores, malar rash, migraines, awful hives, positive ANA, with speckled pattern, positive RF, negative anti-DSDNA, and positive for Sjorgen's Syndrome.

 

 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 6/10/2010 4:01 AM (GMT -7)   
Amy, thanks for the encouragement! I just can't stop eating when I should and it's so bad for my health.
 
Always, your plan to register abuse sounds good to me! I'm sorry that you fall too. It's amazing how painful falls are. BTW, I have 60 pounds on you. I'm 5 ft tall, wear a 50 DD bra and I have quite the pred face.  My upper arms are huge and often when I look in the mirror I'm reminded of a large toad. At least my warts are only on my hands.
 
So Jennifer, are your mucus membranes so dry they cause your legs to stick together and falls result? That's some serious Sjogrens. I really am sorry that you fall too. Well, I gotta go. Love, Butterflake
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease. Cellcept and lots of other meds.  Donna 


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 6/10/2010 8:09 AM (GMT -7)   
The other night DH and I had to stop right at the begining of you know what, couldn't even get started with lots and lots of KY. I hurt sooooo bad, never had pain like that before. I got those KY Liquibeads, and in a couple of days everything was perfect. I mean, better then it's been in years. Maybe the Sjogren's been affecting me more then I realized. But those things are great. If anyone has miraines, and no problems with Glaucoma and such, I've been taking Topamax for about 3 months now. I've lost 15 lbs and I've only had 3 headaches in two months. I was having them about 2-4 times a week. But I'm back on a 60mg pred taper, so I'm sure the weight will come back on for a while. I'm flaring from a 15 min sun chat in a parking lot. Dummy me.

Jennifer

Taking plaquenil, atenelol,  Flexeril, Claritin, Zantac ,Trazadone, Ambien, Prednisone 5mg a  day,Topamax 100mg, MTX 15mg a week, super B complex, multi- vitamin once a week, folic acid,  and Lortab 10mg 4 times a day, Imitrex for migraines.  Allergic to all NSAID's and Ultram.   Mom of 2 boys 2 1/2 and 7. 

Symptoms: Fatigue, joint pain and swelling,Raynauds,numbness,tingling,weakness, heat/sun sensitivity, mouth and nose sores, malar rash, migraines, awful hives, positive ANA, with speckled pattern, positive RF, negative anti-DSDNA, and positive for Sjorgen's Syndrome.

 

 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 6/11/2010 10:55 AM (GMT -7)   
I had my first visit with the gastric by-pass surgeon today.(My psychiatrist recommended him.) He said I should have few problems with the surgery. I need to get approval from my docs that all my 15 meds can either be crushed or in liquid form for post-op. So now there's lots of paper work to do and I need appts with my primary care, a pulmonologist, and a dietician. I'm actually getting excited.
 
Speaking of excited, I'll have to try the KY Liquibeads Jennifer. I was also having pain so my gyn taught me how to relax my butt and she recommended Astroglide lubricant. Thanks for all the info Jennifer and Always! Love, Butterflake
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease. Cellcept and lots of other meds.  Donna 


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 6/12/2010 6:36 AM (GMT -7)   
Good luck to you butterflake with the gastric by pass. I know a lady who had one recently b/c she kept gaining weight, had diabetes, was on insulin, high BP meds. Within 24 hours of her surgery she was off insulin and all diabetes meds. The only thing sh has to take now is nexium.

Did they say anything about the by pass and your colitis? I have colitis too. Is yours real bad? Have they checked you for crohn's and ulcerative colitis to be sure you don't have them? My crohn's IBD test for crohn's is positive but biopsies negative. These are strange diseases.
Again, good luck and do keep us posted.
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, asthma/allergies,  high BP, fibromyalgia, GERD, restless legs and periodic limb movement in sleep, low thyroid, the list keeps growing..........................
claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, plaquenil back on cymbalta for pain, nexium for reflux (trying again)
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive ANA rheumatologist suspects mixed connective tissue disease 4/2010
Collitis doing OK for now, it's fatigue and joint pain that are plagueing me right now!!!


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 6/12/2010 10:20 AM (GMT -7)   
Hi Jean. I asked about my colitis during my first gastric by-pass seminar and the doc said it shouldn't be a problem. She said it may even help my colitis long term cause the amount of food I can stuff in my face will be greatly reduced :) Love, Butterflake
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease. Cellcept and lots of other meds.  Donna 

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