MCTD and hoarseness

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NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 533
   Posted 6/17/2010 12:50 PM (GMT -7)   
Hi,
 
This is a question/observation for those who have MCTD.  I have noticed this past year that whenever I have overdone it I lose my voice.  I have been relating it to flaring because along with the hoarseness I have extreme fatigue and pain.  If I stay in bed a couple of days or until the hoarseness is gone I feel better.
 
Does anyone else have this happen and should I mention it to my dr?
 
Thanks,
Mary Ann
 
** MCTD,Fibromyalgia,Raynaud's June 2005
**Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
**Meds:  Plaquenil, MTX, Lyrica, Folic Acid, Metoprolol, Lotrel, Vicodin
 "No matter what happens, God is in control.  He is God, I am not, what a relief!"


challenged nurse
Regular Member


Date Joined May 2010
Total Posts : 69
   Posted 6/17/2010 12:58 PM (GMT -7)   
I have been battle hoarseness for the last year. They told me that it was related to reflux. My vocals were inflammed and all they gave me was
prevacid. I just had a TIA 4 weeks ago and now have a paralyzed vocal cord. go figure. But yes I have been through the same thing. Not sure if they knew what they are talking about. Because my GI doc things its not reflux.
DX: Lupus(UCTD), Asthma, Mitral Valve Prolapse, Heart Murmur, Anemia, Vitamin D def., B12 def, Hypertension r/t lupus, TIA, muscle weakness, numbness, tingling, headaches, night and day sweats and IBS.

Meds: Imuran 100mg, Prednisone 60mg, drisdol 50,000 units weekly, b12 injections monthly, Protonix, Zantac, Tramadol 4 times daily prn, Align, Kapidex, Amitza, Miralax, Vaseretic/HCTZ Aspirin.

Allergies: Cipro and Bactrim
I can do all things through Christ that strengthens me.


NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 533
   Posted 6/17/2010 1:15 PM (GMT -7)   
Thank you for your reply, challenged nurse.
 
I have been to an ENT and they scoped me and couldn't find anything wrong.  I've also been allergy tested and no allergies.  I guess I just have to live with it.  I don't think it is reflux because we tried that route and none of those meds helped either.
 
I'm sorry to hear that you had a TIA and now have a paralyzed vocal cord.  I have high blood pressure and always worry about having TIA's or a stroke.  Were you on meds for high blood pressure?
 
Mary Ann
 
** MCTD,Fibromyalgia,Raynaud's June 2005
**Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
**Meds:  Plaquenil, MTX, Lyrica, Folic Acid, Metoprolol, Lotrel, Vicodin
 "No matter what happens, God is in control.  He is God, I am not, what a relief!"


challenged nurse
Regular Member


Date Joined May 2010
Total Posts : 69
   Posted 6/17/2010 2:11 PM (GMT -7)   
No, never had problems with high blood pressure until I had the TIA. I'm on it now though. I had a lot of strange things happening to me lately. I still have hoarseness off and on. But I am taking Protonix and Zantac for reflux and it doesn't help either. It could be part of your warning sign for the flares. I'm not positive because I'm still feeling my way through this disease as well. I'm only 9 months into my diagnosis so I don't know what to tell you other than to keep them updated on what is happening. Maybe someone else on here may have more information to give. Hope everything gets better for you.
DX: Lupus(UCTD), Asthma, Mitral Valve Prolapse, Heart Murmur, Anemia, Vitamin D def., B12 def, Hypertension r/t lupus, TIA, muscle weakness, numbness, tingling, headaches, night and day sweats and IBS.

Meds: Imuran 100mg, Prednisone 60mg, drisdol 50,000 units weekly, b12 injections monthly, Protonix, Zantac, Tramadol 4 times daily prn, Align, Kapidex, Amitza, Miralax, Vaseretic/HCTZ Aspirin.

Allergies: Cipro and Bactrim
I can do all things through Christ that strengthens me.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 6/17/2010 2:50 PM (GMT -7)   
NanaBee/MaryAnn

When I am stressed and start to feel the neuropathy or fatigue that indicates a minor Lupus flare for me -- sometimes I also get hoarse. It usually only lasts as long as the fatigue, so I've always figured it means whatever inflammation is associated with that particular flare happens to be in the throat.

While I report it to the rheumy at my next regular appointment (just to keep complete records) I've never felt it was anything out of the ordinary for this crazy disease!

Cheers,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 533
   Posted 6/17/2010 6:38 PM (GMT -7)   

I guess I have always just figured that that was the weakest part of my body for some reason and that is where my flare decides to show up.  Pretty much just what you said Lynnwood.  I'll mention it the my doctor the next time I see her.  Untill then I will just keep track of it.

It's funny, though, because I work in a school and sometimes the younger students get scared and won't talk to me when I am hoarse.  They don't like it. :-)


 
** MCTD,Fibromyalgia,Raynaud's June 2005
**Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
**Meds:  Plaquenil, MTX, Lyrica, Folic Acid, Metoprolol, Lotrel, Vicodin
 "No matter what happens, God is in control.  He is God, I am not, what a relief!"


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 6/17/2010 7:04 PM (GMT -7)   
I seem to have this problem too. Will be seeing my rheumy the end of the month and have already added it to my list. This disease never ceases to amaze me and what part of the body it can attack mad Let us know what your doctor says. Take care
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 6/19/2010 12:34 PM (GMT -7)   
Mary Ann,
 
MCTD is a combo of lupus, scleroderma and polymyositis so there are number of possibilities for your problem.  PM weakens muscles and many have problems with acid reflux/gerds/barretts as a result of weakened spincter muscles at the top of your stomach which can cause the problem.  You said your ent found nothing and that is good.
 
Another possibility is that your muscles are weakened and this can include the muscles you use to talk and swallow.  The timing of your problems and coincidence of fatigue would make me suspect you are having a flare.  Muscle weakness could be produced by either lupus or pm.
 
Do you have problems swallowing during these episodes?
 
Bill
MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 25mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
 
Remain optimistic and you can overcome the odds.


NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 533
   Posted 6/19/2010 4:48 PM (GMT -7)   
Thanks for posting Bill.
 
I usually can't swallow very well because it almost feels like my neck muscles and larynx are really tight and painful.  I have to just try and not talk and rest.  Sometimes I feel a panicky feeling and feel like I can't swallow.  I have to really concentrate and tell myself that I can and then I do.  But it does get scary for a few seconds.
 
I think I will discuss it with my rheumatologist.  I will see her in August.
 
thanks again, Bill.
 
Mary Ann tongue
 
** MCTD,Fibromyalgia,Raynaud's June 2005
**Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
**Meds:  Plaquenil, MTX, Lyrica, Folic Acid, Metoprolol, Lotrel, Vicodin
 "No matter what happens, God is in control.  He is God, I am not, what a relief!"


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 6/20/2010 7:44 PM (GMT -7)   
I get the same thing when I get upset. I think part of it has to do with those muscles there that get tight when you are stressed and get weirdly tight in people with autoimmune disease, but the other part is definitely my thyroid. I think sometimes the thyroid is enlarged when starting to flare and I don't really realize it, then, when I get upset, the thyroid sorta flares along with everything else, since so much more blood is going to that area. The not beling able to swallow and brassy or hoarse voice are pretty characteristic of thyroid. For the muscles, I use voltaren gel, a muscle relaxer, I also use that when my arms get hard, but I use that on my shoulders and it goes to my neck. It helps almost immediately with the muscle contractions. I get that from the rheumy.  My thyroid just wavers between low and normal as it dies. Since thyroid disease is so common in people with autoimmune disease and is usually underdiagnosed, then we get pred which makes any thyroid tests irrelevant, its hard to tell. My rheumy did a great job of taking care of what they thought was subclinical thyroid disease, but actually I have less than half a working thyroid and nodules, though the highst my TSH has been is 6.
 
I hope you feel better. The voltaren gel really helps.
 
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

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