I share the diagnosis of UCTD with you. I was diagnosed a year ago. I presented with joint pain, extreme fatigue after a horrible case of shingles a couple of months beforehand. I have always gotten sick easily, and have dealt with the fatigue for years before I was diagnosed. My ANA was 1:320 and my CRP was elevated. My disease hasn't differentiated itself yet. Although, my rheumatologist feels that lupus will present itself at some point (not sure why she chose lupus, but that's the way she feels).
I was on Prednisone for a year and just recently was able to taper off completely. I'm on Plaquenil which took a while to help but does help. I can tell after a couple days of forgetting, so I know it's working for me to some extent. After continuing to have the extreme fatigue and my rheumy putting me on Wellbutrin for energy (to no avail) they decided to run thyroid tests and I now have the new diagnosis of hypothyroidism as well, which my rheumy has said is also auto-immune related. I finally am feeling up to par again-- hoping to stay that way since my big move back to New Orleans is in two weeks!
I can understand being fearful and overwhelmed. I am a single mom of a 9 year old girl and I have no choice but to remain working full time. My best advice is to give yourself rest periods. On weekdays that I work, I come home, cook dinner, and clean a little bit before putting myself to bed at the same time as my daughter. I feel that the extra sleep helps me since I'm on my feet all day long at work for 12 hours. On days off, I make sure to do something special and fun for my daughter but I allow rest periods- she may watch a movie while I rest. Rest is very important! My mom has always told me not to burn the candle at both ends and with this disease that's very important- that will foretell how you feel in the future.
Keep posting and reading on here. Although I don't post as often as others, I read this a lot so I can see what others are going through and what advice everyone gives. It's a great comfort to be surrounded by people that know what you're going through- even though it's only online.
Keep your chin up!