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Jenny S.
Regular Member

Date Joined Oct 2007
Total Posts : 80
   Posted 6/22/2010 1:54 PM (GMT -6)   
Hello all,

I recently had a fractured foot for no reason - no injury or accident.  This freak incident in combination with taking prednisone, my podiatrist ordered a dexascan to determine my bone density.  My spine looks good, but my hips are in the osteopenia range (bone deterioration).  So now I’m taking Actonel to combat any more bone loss.  Has anyone else has a similar situation?  I feel like I’m a delicate egg & cannot do anything for fear of breaking/fracturing something … but I’m only 32!  So I try to be careful, but there are times that I really want to do something.  I always end up paying though – having bruises all over the place and achy bones. 


That’s another thing; does anyone else get terrible bruises from using prednisone?  I get these super dark and sore bruises.  Whenever a doctor other than my Rhumy sees them, they seem to freak out!  Some even think my husband hits me – not the case at all but just embarrassing.  I also have permanent discoloration on my shins.      


Any suggestions/advise would be helpful!


I have Lupus ... Lupus doesn't have me. 

Dx: Raynaud's(2000)-Lupus(2001)

Rx: Pletal 200mg-Norvasc 10mg-Prednisone 10mg-Plaquenil 400mg-Actonel-Lexapro 10mg

OTC: Prilosec-Claritin-Asprin-Fiber-Calcium 1200mg


Post Edited (Jenny S.) : 6/22/2010 1:02:03 PM (GMT-6)

Forum Moderator

Date Joined Jun 2008
Total Posts : 1469
   Posted 6/22/2010 5:43 PM (GMT -6)   
Hey Jenny! To answer your question about prednisone...When I am on high doses, I bruise for brushing past a door or lightly bumping into something. Its a deep dark bruise, but doesnt really hurt. I have noticed this only happens to me on 40 mg or higher!!!

Regular Member

Date Joined Jan 2006
Total Posts : 395
   Posted 6/23/2010 10:26 AM (GMT -6)   

Hi! Jenny,

I am so sorry about your fracture. Since I have been on long term pred, my bone density is steadily dropping. I am sitting right on the green/yellow line on the graph. My Vit D is chronically low, and I was found seriously low in B12. I am going to try and wean off the pred as I have just had to resign from my job and file for disability. And the dr. suggested I may need to start cellcept. I have put off the decision on that until my D and B levels are better, I have taken calcium citrate for years, dr. says at least 1200mgs of the calcium and 1000 mg of D, and I already feel better since I have quit going to work everyday. On my 5mg maintenance, I rarely see a bruise, but when I need to take up towards 40mg, I notice them. The dr. does too, but bruises from steroids  should be known as a medical fact by most medical professionals. One time, my dr. commented carefully, about the pattern of one on my upper arm. I was relieved actually, that he cared enough to ask about the cause. Domestic violence is a hard topic. Keep kickin' and know that weight bearing exercise is important for bone health,

hugs, suetoo

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. Vit. B12 2400 mcgs, Vit D 1000U and  Ambien every night.

Veteran Member

Date Joined Nov 2006
Total Posts : 1331
   Posted 6/23/2010 1:00 PM (GMT -6)   
Hi Jenny,
My daughter is 13, and is osteopenic. She has a kidney disorder (hypercalcuria) and due to the loss of calcium pre-diagnosis her bones became fragile.  At her last dexascan, her numbers were -3, if I remember right, it has been a year. For her age, it was tipping the severe scale.  However, she had no fractures, and has continued to stay active. As for the aching in the bones, she had this complaint quite often prior to her diagnosis and the scan. My husband and I had dismissed it as growing pains shakehead We now have her on a script for calcium/vitamin D. Her nephrologist didn't say to limit her activity and encourages her to stay active.

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 6/23/2010 10:43 PM (GMT -6)   
I am 38 and had a bone density test over a year ago and found out I have osteopenia in my right hip. I know I should be taking extra calcium but I don't :( Lupus joint pain also attacks my hips and lower back so I guess I get a double whammy! Just wanted to let you know you are not alone. Hang in there
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)

New Member

Date Joined Jun 2007
Total Posts : 2
   Posted 9/1/2010 2:21 PM (GMT -6)   
You must read the book "The Myth of Osteoporosis".  It will make you realize that your bones are not brittle.   Also on the health boards message board look up osteopenia, many, many people do not and cannot take these drugs like fosomax.  I was one of them.  I also posted my dex scan scores on there and people told me that my numbers were not bad at all and that my doc should be fired.  It was the PA who prescribed it.  I came home and looked it up right away and was amazed at the info I read about.  Please get that book.  Check with your library.  Good luck.

Forum Moderator

Date Joined May 2005
Total Posts : 6923
   Posted 9/1/2010 2:39 PM (GMT -6)   

The situation changes when you have lupus and are taking medications that leech calcium from your bones...osteopenia/osteoporosis are very real issues for us.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde
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