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lorit43
New Member


Date Joined Jul 2010
Total Posts : 2
   Posted 7/3/2010 5:26 AM (GMT -7)   
I am a 38 year old woman with two children. I was diagnosed with lupus this week and have nobody to talk to about it. I'm scared and confused because I am a single mother with no health insurance. I don't know what I'm asking for here, just someone to talk to.

challenged nurse
Regular Member


Date Joined May 2010
Total Posts : 69
   Posted 7/3/2010 7:08 AM (GMT -7)   
Hi lori, welcome to the forum. Tell us about yourself. There are a lot of good people here to help you through this.
DX: Lupus(UCTD), Asthma, Mitral Valve Prolapse, Heart Murmur, Anemia, Vitamin D def., B12 def, Hypertension r/t lupus, TIA, muscle weakness, numbness, tingling, headaches, night and day sweats and IBS.

Meds: Imuran 100mg, Prednisone 60mg, drisdol 50,000 units weekly, b12 injections monthly, Protonix, Zantac, Tramadol 4 times daily prn, Align, Kapidex, Amitza, Miralax, Vaseretic/HCTZ Aspirin.

Allergies: Cipro and Bactrim
I can do all things through Christ that strengthens me.


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 7/3/2010 10:27 AM (GMT -7)   
Hey Lori! So glad you have found us! This forum is filled with very kind and helpful people. I hope you stick around and get a chance to know us and for us to know you!

I am Amy and I was diagnosed with lupus 4 years ago. A few months after my diagnosis I found this forum and the people on it have been a life savor for me and helped me understand so much about this disease. I am single and have no kids, well I have a furry son but he is a cat yet i still love him to death :)!

Have you been put on any medications to help control your lupus? Are you seeing a Rheumatologist? If you have any questions that you can think of just ask!!!

Welcome to Healing well :)!

pluslouie
Regular Member


Date Joined Feb 2010
Total Posts : 55
   Posted 7/3/2010 11:09 PM (GMT -7)   
Welcome to the club! I was diagnosed nearly 2 years ago, but didn't talk to family and friends about it for 4 months (I was traveling and doing research.) I look at dozens of books about it, but I didn't want to read one written by a doctor. Finally, I found a book in The First Year series. It's written by a patient, but with a doctor, so everything is medically correct. It is an awesome book that walks you through the first year after your diagnosis- what to expect, what questions to ask, what to be worried about (and not worried about.)

This forum is an awesome place to get questions answered and concerns voiced.

lorit43
New Member


Date Joined Jul 2010
Total Posts : 2
   Posted 7/9/2010 5:52 PM (GMT -7)   
Thanks for your replies. I can remember saying a few years ago that I don't really ever remember feeling well. As a child and adolescent, I took a lot of naps and was considered "lazy" by some family members. In recent years I have worked full time while pursuing and achieving a Bachelor's degree in psychology and a Master's degree in counseling. This was all during a divorce and readjustment of becoming a single mother. I have worked up to three jobs at once to make ends meet. I used all of this life stress as rationalization for feeling fatigued, achy and sick. I considered my swollen joints, muscle pain and increasing blood pressure to just be a natural part of getting older. Now, the pieces are coming together. A few months back I broke out in a weird rash after being in the sun for fifteen mins. My ankle, elbows and fingers have been swelling and aching for months now. The "rosy cheeks" I've always had are not a coincidence.
It's been two weeks now since my family doc mailed me my labs. It took another week of phone calls for her to explain to me what it meant. And here I sit, waiting for a referral to a rheumatologist and wondering what damange could be occurring while I wait.
I know that I have been brushed off for years by doctors because I don't have medical insurance. I hope that doesn't continue to happen now when I so desperately need help.

sicklyone
New Member


Date Joined Jul 2010
Total Posts : 2
   Posted 7/27/2010 5:55 PM (GMT -7)   
Hi im new to this site and would really appreciate some advice on lupus from someone that understands, as i seem to have the symptoms of it. i must add that my doctors are useless and very unhelpful.

I'm 25 and have a bit of a medical history. I was firstly diagnosed with glandular fever at 16, tonsillectomy, then bowel adhesions, gallstones with surgical removal (also adhesions all over my diseased gallbladder), raynauds disease with nodules and finger ulcers.

Since my cholecystectomy 2 and a half years ago i am having the same pain and symptoms, which showed up to be another stone in my common bile duct, which has yet to be removed.

My ANA antibodies came back positive 1.80 recently. For the last year i have really bad headaches, dizziness, fainting spells, blacking out, increased heart rate, low blood pressure,blothy and or sore raised lumps on my skin (much worse in the sun), joint and muscle pain, no energy, nausea, severe night sweats, blue hands and feet in cold weather, swollen feet and hands in warm weather, a swollen parotid gland for several months flaring up randomly. The list goes on. I saw a rheumatologist who diagnosed the raynauds disease and took my bloods, however when the ANA Antibodies came back positive they said i 'may have a mild connective tissue disease', and i am still awaiting a follow up appointment with the consultant.

Also, for the past two years my whitecell count, calcium and ferritin have been low. with a low urea and chloride also.

I am so fed up. Does anyone know what the best course of action is, for other bloods or scans?? I would just like to get a diagnosis so i know what exactly im dealing with. Also has anyone else had any of the same complaints?

Please help!

Wolf92
New Member


Date Joined Jul 2010
Total Posts : 9
   Posted 7/27/2010 9:34 PM (GMT -7)   
Hey Newbie
Just want to let you know you are already heading in the right direction, by signing up in this chat room. I am new to this site as well but I've had lupus over 18yrs I was dx: when I was 12. So hang in there as long as you have a good support team you'll be just fine. & if you have any questions feel free to ask anytime I'm a little night owl these days I don't sleep that much unfortunately it comes with the territory lol
Well I wish you & your family the best of luck
Neo80
Dx: 10/1992-SLE Lupus, 05/2010-Fibro, hypertension , insomnia, raynauds, cataracts
Meds- plaquenil, prednisone, iron, cellcept, potassium, celebrex, lasix, norco, zyrtec, singular, zestril


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 7/28/2010 4:06 AM (GMT -7)   
Hey sicklyone and wolf! Welcome to healing well! Don't really have time to say much right now except this is a wonderful forum filled with supportive and kind people! The people here are what helped me through the most challenging part of my lupus so far! Hope to get to know yall better :)

sicklyone
New Member


Date Joined Jul 2010
Total Posts : 2
   Posted 7/28/2010 4:46 PM (GMT -7)   
hey thanks guys, appreciate the quick replies! i think im gona need support from people that understand it. going for more blood tests tomorrow and hopefully il get some more answers soon. did you have any of the same health problems before being diagnosed with it? thanks again for replying so fast :)

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 7/29/2010 11:34 AM (GMT -7)   
hey again :)! I did not have any problems before I started having lupus problems. I started out in extreme pain one day and 3 months later had my lupus diagnosis. Before that I maybe got a good cold once every other year or so!!!
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