I can 100% relate to your posting. I've had Lupus for 10 years & always come to the doc with new symptoms that are just part of Lupus. I'm very much a planner & like to map out my fun activities far in advance - but frequently have to cancel at the last minute when I wake up feeling sick & tired. I do take my meds & follow doctors' orders, but there are times I just do what I want despite the consequences. I'd rather live my life how I want & to the fullest rather than missing out. I hope this is an inspiration for you. Things will get better, I promise!
I have Lupus ... Lupus doesn't have me.
Rx: Pletal 200mg-Norvasc 10mg-Prednisone 10mg-Plaquenil 400mg-Actonel-Lexapro 10mg