10 year old with dual ana pattern

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

cgray10
New Member


Date Joined May 2010
Total Posts : 5
   Posted 7/11/2010 5:59 PM (GMT -7)   
Hi...I have a ton of questions but one that I would love some insight on is about my daughter having a dual ana pattern. She has a speckled pattern 1:1280 and a centromere pattern 1:640. Any ideas of what this could mean?
She has had alot going on...just recently in hospital diagnosed with hemicrania continua. Joint pains , days of virus type symptoms, blood in urine/stool to name a few things. We are waiting to see a rheumatologist and nephrologist...so any insight on this would be greatly appreciated. Thanks :)

cgray10
New Member


Date Joined May 2010
Total Posts : 5
   Posted 7/12/2010 4:45 AM (GMT -7)   
OK...is there not anyone that has an idea about a dual speckled and centromere patteren? Maybe that is why I can't find any info on it? HELP :)

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 7/12/2010 7:24 AM (GMT -7)   
Well, I've been reading every post in this forum for several years, and I can't recall any mention of a "centromere" pattern. So maybe it's very rare or something? Could they have given you incorrect information?

Please let us know what you find out so we can be better informed in the future!

I hope your daughter feels better soon,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 7/12/2010 7:29 AM (GMT -7)   
Oh - I did find Centromere Pattern: Seen in PSS with CREST syndrome (scleroderma is usually the main part of CREST)
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


cgray10
New Member


Date Joined May 2010
Total Posts : 5
   Posted 7/12/2010 8:19 AM (GMT -7)   
From what I have been reading the centromere pattern is pretty specific for CREST....but speckled could mean several things. Would this be more leaning toward a connective tissue disorder or maybe have lupus & CREST??? Sorry, this whole thing confuses me :(

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 7/12/2010 8:40 AM (GMT -7)   
en.wikipedia.org/wiki/Scleroderma & Lupus are auto-immune disorders. Most of the auto-immune disorders have overlapping symptoms, and there are no clear single tests that determine one or the other -- it's more like "choose the group of symptoms that most likely match X", where X is the diagnosis they decide is best fit.

The diagnosis is NOT the most necessary part of the problem -- controlling symptoms IS. And, like I said, the symptoms overlap....or just make sure your dr is symptom-oriented, and everything will work out. If you have a dr that insists on a firm DX *before* treatment -- get another opinion!!!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


jdrea
Regular Member


Date Joined Aug 2010
Total Posts : 124
   Posted 8/17/2010 7:02 AM (GMT -7)   
I'm very sorry to hear abour your daughter. I will pray for her and your family. It is hard to have a sick child. I agree with Lynnwood. It is hard to get a definate DX with autoimmune diseases because so many overlap. My pattern is speckled and I am still trying to get a straight answer. Take care and ttry to enjoy each day, the best I can, is how I face each day.
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 1:28 PM (GMT -7)
There are a total of 2,734,855 posts in 301,251 threads.
View Active Threads


Who's Online
This forum has 151362 registered members. Please welcome our newest member, RubberDucky.
350 Guest(s), 11 Registered Member(s) are currently online.  Details
PeteZa, Laker7491, RubberDucky, hateuc, dismissed, blksteeda, gilly2, straydog, rcmark, multifacetedme, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer