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jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 7/13/2010 6:02 PM (GMT -7)   
So, is there a rhyme or reason as to how doctors give medications for auto immune diseases? Since the plaquenil wasn't working fast enough for me, I went back to the rheumatologist and he put me on prednisone. Well, I thought it would just be for a short duration but he wants me to stay on 5 mgs for several more months. This stuff makes you depressed and anxious. Also at 5 mgs, it doesn't work. I called and asked for a medication change. Any thoughts on what he can or should do next for me? I need something I can take long term, not prednisone. I know t here are things like 6 mp and methotrexate. Are the side effects a lot worse than prednisone? I don't know enough about these meds to ask him about them. Any suggestions for me? thanks! We are watching the Deadliest Catch. Does anybody else like that? I think this is the tribute to the poor guy who had the stroke.
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, high BP, fibromyalgia, Mixed Connective Tissue Disease
claritin, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, plaquenil, nexium for reflux, wellbutrin, 5 mg prednisone/day.
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive ANA, LOTS of joint pain followed by a recent set back with the colitis.


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/13/2010 6:20 PM (GMT -7)   
I have RA not lupus but when I had a horrible flare (prior to this I was only on an NSAID) my doc had me take 5 mgs of prednisone for 8 months while we let the plaq start working and then started MTX.
There is some variation between doctors of course, and the patient does actually influence treatment (the first time my doctor mentioned mtx I said "I'm not ready to talk about that yet).
However, there really are a limited number of weapons and some things like MTX have limitations-if you are going to want children in the next few years, if you drink more then once a week or so or if you have existing liver damage or abnormal liver enzymes-they won't use MTX unless they have to.

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 7/13/2010 6:32 PM (GMT -7)   
I am 55, so no children for moi~! How is the MYX working for you so far? Are you still on plaquenil? I can't see taking something that might work 4-5 months from now....My doc wants me on it but it messes with my stomach.
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, high BP, fibromyalgia, Mixed Connective Tissue Disease
claritin, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, plaquenil, nexium for reflux, wellbutrin, 5 mg prednisone/day.
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive ANA, LOTS of joint pain followed by a recent set back with the colitis.


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 7/14/2010 4:17 AM (GMT -7)   
If you can tolerate plaquenil i would strongly recommend you listening to your doctor and staying on it. It has been proven that taking plaquenil can help lower the chance of having organ involvement from Lupus. Many people continue to take plaquenil along with another medicine to help control the symptoms. Most drugs that will be used to treat lupus will take several months to work, that is why most of us have been on prednisone at least one time. Low doses of prednisone such as 5 mg shouldnt have near as many side effects as seen when people are taking 20 mg and up. But to throw out a few other drugs used to treat lupus, I will. If you have questions about them, ask. I know many people have been on them and can share their experiences with you.
1. Cellcept
2. Imuran
3. Methotrexate
4. Cyclosporine (not used often anymore)
5. Cytoxan (for severe types of lupus)

I know there are a few others I am forgetting...maybe someone will add them if they know what they are!!

Hope this helps a little

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 7/14/2010 1:13 PM (GMT -7)   
Thank you for the information and insight. I will go back on the plaquenil. Sounds like I need to. I just want to feel better soon. The plaquenil had to be cut back b/c of the stomach issues. I talked to my doc just today and they said they didn't want me on the cortisone after September. Sigh...... I feel like all I do is take pills all day. Thanks again Amy.
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, high BP, fibromyalgia, Mixed Connective Tissue Disease
claritin, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, plaquenil, nexium for reflux, wellbutrin, 5 mg prednisone/day.
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive ANA, LOTS of joint pain followed by a recent set back with the colitis.

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