Just got my old medical records back with test results going to new DR

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LAWCHICK
Regular Member


Date Joined Jul 2010
Total Posts : 468
   Posted 7/23/2010 12:04 PM (GMT -7)   

My test showed  I had a ANA Band of 1:160 and that I tested positive.

 

Also the test showed the SSA and SSB antibodies were observed with the highest frequency  in Sjorgens syndrome and with in patients with SLE.

 

I had no idea what Sjorgen syndrome was but I looked up symptoms and I do have some. My eyes are very very dry all the time, I actually have to sometimes open my eyes myself by using my fingers because they are so dry they cannot open on their own. Also sometimes when I drink a lot I’m still thirsty and I have very dry skin. I always contributed this to allergies and eczema. When I had all this testing done my DR never mentioned anything about Sjorgen syndrome.

 

I guess it is time to make an appt with another doctor I am still scared though. Thanks everyone who replied to or read my first post :-)

Post Edited (LAWCHICK) : 7/23/2010 1:21:38 PM (GMT-6)


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 7/23/2010 1:07 PM (GMT -7)   
sounds like you really need to see a good rheumy about all of this. Make sure whoever you see is a lupus specialist not all rheumys are.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 7/24/2010 7:08 AM (GMT -7)   
Hi Lawchick. Redrose is right that your rheumatologist treats lupus, sjogrens, fibromyalgia, arthritis, lupus CNS, and more. I know cause I have all these. My sjogrens pet peeve is when I'm talking and my lips stick to my teeth. Dental issues are a big problem with sjogrens cause without enough saliva bacteria stick to the teeth. I use OTC Biotene toothpaste, non-alcohol mouthwash, oral balance gel at night and good OTC eyedrops. Healing Well has a sjogrens topic you may want to check out.  Love, Butterflake
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease. Cellcept and lots of other meds.  Donna 

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