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Regular Member

Date Joined Feb 2010
Total Posts : 55
   Posted 7/24/2010 1:12 AM (GMT -6)   
So, my fatigue is impressively bad these days. My PA at my rheumatologist's put me on Provigil to see if that would help. Has anyone taken it? It's a stimulant that works with the central nervous system to keep you awake. Most of the people who take it have sleep apnea, work swing shift (swing disorder?) or have narcolepsy. I started it this morning, but would love to hear anyone's thoughts on it.

Or, do you have a better way to keep me awake during the day? I keep missing days of work because I can't be awake more than a few hours, but I hate the thought of taking a stimulant to function. Thoughts?

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 7/24/2010 11:16 PM (GMT -6)   
Hi louise, well I can't offer much about it but the doctor tried me on it a couple of years ago and it did nothing at all for me. but my friend have leukimia and she swears by it. She says if she didn't take it she couldn't get up in the morning. So I guess it depends on the person or maybe how many drugs they are taking. I do have sleep apnea.
good luck I hope it helps.
nexium,temazepam,predisone,plaquenil,propanalol,citracal,pottasium, vitB12 ,iron,xopenex,advair,spirivia,soma,Vitamin D, cybalta
Dx lupus, scleroderma, pos. fibro, high blood pressure. COPD, need left lung transplant. cervical cancer survivor, osteoporsis
Jesus is a friend of mine
We come into this world crying while all around us are smiling. May we so live that we go out of this world smiling while everybody around us is weeping.

Forum Moderator

Date Joined Jun 2006
Total Posts : 1534
   Posted 7/25/2010 4:25 PM (GMT -6)   
Hi Pluslouie. I had some success with provigil, but after a while it didn't seem to do much. Every day I felt like poo so I came up with other ideas. 
1) I bought a coffee maker with a timer and placed it in my bedroom. All I had to do was roll my dead butt over, fix a cup and wait for results.
2) I brought an alarm clock to work and on my lunch break I would nap in my car and later I slept/rested on a thin camping mat under my desk. No I didn't care what my co-workers thought.
3) Bathe or shower at night. It's one less morning spoon. (See )
4) Take your work clothes to a drive up cleaners once a week.
5) Don't wash your hair each night and choose an easy style.
6) If you have a job where it doesn't matter if you wear make-up, don't wear it. Once again don't care what they think.
So yeah, you look like something the cat coughed up, but it saves your job. I also think this dogged determination helped me get approved for disability faster. Let us know how it's going ok? Love, Butterflake
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease. Cellcept and lots of other meds.  Donna 

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