how do you get disability?

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daniJav
Regular Member


Date Joined Jan 2010
Total Posts : 82
   Posted 7/25/2010 7:02 PM (GMT -6)   
I have lost so many jobs, and can not work..I can not go in the sun...period because it makes my bp drop real real low and i get real sick. I am in pain management and i take 14 pills a day and i am still miserable. I wan to apply for disability but I do not know where to even start...can anyone help me?

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5763
   Posted 7/25/2010 7:26 PM (GMT -6)   
If you are in the USA, start with www.ssa.gov. Of course, your doctors need to agree that you are disabled, so maybe it's better to start with that conversation.

Best of luck,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


Wolf92
New Member


Date Joined Jul 2010
Total Posts : 9
   Posted 7/25/2010 8:58 PM (GMT -6)   
Yes I got disability & it's a very lengthy process but dnt gv up, because if u get approved for it they gv u bk pay starting fr the day u applied. But your first step is 2 apply for it through ur local social security office u can even apply online but I recommend in person.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1402
   Posted 7/27/2010 7:07 AM (GMT -6)   
First you must get a diagnosis of lupus. The direct site online is www.disability.gov Even if you haven't been diagnosed start now by getting copies of all your medical records from all the docs you went to about your illness- even if you no longer see them. I went to 13 docs before I was diagnosed. Social Security will get your records, but things go so much faster when you have all your documentation. Getting records costs money, but it's worth it. Make copies for you to keep and copies for social sec.
 
I applied online and answered every question. I then gathered ALL the info required (medical records, birth certificate, ect) and took it all to my social security office before they even called me.
 
I say to start getting everything together now cause you may be very, very sick by the time you submit. I could only walk using a rolling walker when I quit work. I hope this helps. Good luck! Love, Butterflake
 
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease. Cellcept and lots of other meds.  Donna 


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 7/27/2010 11:34 AM (GMT -6)   
daniJav said...
I have lost so many jobs, and can not work..I can not go in the sun...period because it makes my bp drop real real low and i get real sick. I am in pain management and i take 14 pills a day and i am still miserable. I wan to apply for disability but I do not know where to even start...can anyone help me?


Dear daniJay,

I really feel for you; I've been fortunate enough to work for a sympathetic and generous employer who is letting me work from home now part-time. I'm also on part-time short-term state disability. This may not last much longer, but they have been great! I suspect I will be applying for long-term disability soon, and I have been looking for helpful websites. Here is a great one that I found:

www.anapsid.org/cnd/disability/

She talks about CFS and fibromyalgia, but her advice is applicable to lupus as well.

Good luck!
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, EBV, CMV, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 7/27/2010 4:20 PM (GMT -6)   
I would physically go in to my SSA office to apply for disability because depending on your work history you  may not quallify for SSDI but qualify for SSI. I didn't get SSDI I got SSI instead. Also make sure your doctors are on board with you. I wish you luck.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence


daniJav
Regular Member


Date Joined Jan 2010
Total Posts : 82
   Posted 7/29/2010 1:20 AM (GMT -6)   
i am only 23, that is the part where people look at me like i am crazy, i cannot get ss because i have not been working long enough, i do have a lupus diagnosis and many more, i have not spoke to my doctor about getting disability yet but it was my doc that told me i can not go in the sun because i almost pass out on my way just to the car. it makes my bp drop real low...my doc got it at 77/67 and that was when i had a chance to rest.

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 7/29/2010 10:56 AM (GMT -6)   
daniJav said...
i am only 23, that is the part where people look at me like i am crazy, i cannot get ss because i have not been working long enough, i do have a lupus diagnosis and many more, i have not spoke to my doctor about getting disability yet but it was my doc that told me i can not go in the sun because i almost pass out on my way just to the car. it makes my bp drop real low...my doc got it at 77/67 and that was when i had a chance to rest.


My daughter Cheryl was having the exact same problems in her twenties....she was 26 when she began passing out at work. She was FINALLY diagnosed with lupus but had a long battle to get disability because she was so young; I think it is harder if you're very young. Cheryl finally got her disability last year, she's 30 now.

Redrose is right, if you don't qualify for SSDI because you haven't worked long enough you can apply for SSI. That's the option for those who don't have enough work credits. You should probably get an attorney to help you with your disability claim.....and just keep trying, even if you are denied, you can always appeal! Most people are denied the first time through; you have to be REALLY stubborn and never give up!

(((((hugs)))))
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, EBV, CMV, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


jdrea
Regular Member


Date Joined Aug 2010
Total Posts : 124
   Posted 8/14/2010 10:48 PM (GMT -6)   
Wow, it is sad that this is such a common problem.  I have tried to get SSI and it hasn't happened yet.  I don't qualify for SS disability because I haven't worked for enough years.  As a matter of fact I haven't worked for 8 year because I have 3 disabled children.  Then 2 years ago, I got sick and 1 year ago, I was diagnosed with MCTD and am also suffering with MS symptoms and all I get from SS is that at my age (33) and education level that I can find something that I can do.  I wish that I had an answer for you.  I wish you all the luck in the world and if you figure it out then please pass it on.  And until then eat lots of ice and stay out of the sun.
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