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Pepley
New Member


Date Joined Aug 2010
Total Posts : 3
   Posted 8/6/2010 12:22 PM (GMT -7)   
I was diagnosed with MS in '98......didn't really believe the diagnosis so I went to 3 neurologists.....and each said that I had MS. about 3 years ago, I didn't feel well....and my Medical dept personnel at work ran an ANA........it came back elevated. I didn't pursue anything until about a month ago. I was familiar with MS symptoms but I started having weird stuff like a pressure in my left side, gas, pain in my legs, my arms would break out when I got in the sun.
 
Any way, I went to a Rheumatologist and he did some specialized testing as far as blood work and ANA.........the following items came back:
Anti-nuclear AB          Positive
ANA Titer                    1:160
ANA Pattern               Speckled
ANA Pattern               Nucleolar
Anti-RO AB (SS-A)-EIA       Moderate Positive
Anti--DS DNA AB By FARR   7.7   (Normal <7.0)
Thyroid microsomal P AB    >1300    (Normal <60)
 
When the nurse called back with my results, she said that my bloodwork results were consisten with a diagnosis of Lupus.
 
Based upon the results above.......does that diagnosis look consistent?
 
Also, does anybody else have MS and Lupus.....or is that unusual?
 

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 8/7/2010 4:24 PM (GMT -7)   
Welcome to our forum Pepley. I'm not familiar with the thyroid microsomal AB, but I do know that a positive anti-ds dna is a pretty good indicator of lupus. There have been a couple of folks who visited our forum who had MS and lupus. It's rare, but does happen. I sure hope you don't have both. Be sure to keep us updated okay? Love, Butterflake
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease. Cellcept and lots of other meds.  Donna 

Pepley
New Member


Date Joined Aug 2010
Total Posts : 3
   Posted 8/9/2010 6:15 AM (GMT -7)   
Thanks for responding back to me. Lupus is a new thing for me. I don't know much about it. I kept talking to my neurologist about the joint pain, muscle pain, and some other issues that I was experiencing. I think he thought that I was a complainer.....he acted like it was all in my mind.....so I quit mentioning anything....and would just tell him that I was fine. It was very frustrating and I had started to believe that I was somewhat crazy.
 
I hope that the Rheumatologist can offer relief with some of my issues.....I really don't know what is Lups, MS....or just something else. If I list some things that I can't explain....I would really like some input as to if the issue might be related to Lupus. So here I go:
 
1. Major indigestion.
2. Pain and pressure under left rib cage - major gas.
3. Reoccuring pain in large muscles in back of thighs.
4. Dizziness (I think this is MS related?)
5. Pain in hands and feet.....stiffness
 
Any clarification is appreciated.
 
Also, what should I really be concerned about.....as far a Lupus? They did a check of protein in my urine...and that was fine..so I assume my kidneys are ok.
 
 

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 8/9/2010 7:51 AM (GMT -7)   
Hi Pepley. I saw four neurologists before my lupus diagnosis and none seemed to care about my complaints. My experience, they run tests only because they're obligated. Luckily one referred me to a rheumatologist cause of an ANA 1:360. That rheumy wouldn't diagnose me until a year later and I switched rheumys. I've had my rheumy since 2006 and he listens and notes all my complaints.
 
I continue to have balance issues and fall often. I walk with a cane or walker. I haven't have vertigo for a few years, but it does occur with lupus too. 
Most of my muscle pain is fibromyalgia (also treated by rheumy). Both of my legs often hurt. 
I'm on Nexium for chronic heartburn, but I rarely have indigestion.
Pain under the rib cage needs to be diagnosed cause it could be serious. The pain I get under my ribcage is pleurisy which is extremely painful.
Lastly the pain and stiffness in your hands and feet sure sounds like classic lupus.
I'm so sorry you have to go thru all this. I really hope your rheumy starts you on medication soon. Love, Butterflake
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease. Cellcept and lots of other meds.  Donna 

Pepley
New Member


Date Joined Aug 2010
Total Posts : 3
   Posted 8/9/2010 11:59 AM (GMT -7)   
I have difficulty sleeping at night.......sometimes its because my legs hurt.......sometimes I just can't sleep. What can help with the pain?

Also, I wake up several times a night........my arms and hands go to sleep......except for my little fingers?

I still work full time.........so my inability to sleep.........is not because......I'm not tired.

Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 8/9/2010 7:39 PM (GMT -7)   
You have some of the same things I have had... It is all rough..I'm sorry you have to go through all this...Just hang in there...
I say.. rest and hot water are my friends.... and my meds...

jdrea
Regular Member


Date Joined Aug 2010
Total Posts : 124
   Posted 8/14/2010 8:19 PM (GMT -7)   
Dear Pep,
I am in a similiar situation as you.  I am waiting for a diagnosis of MS.  But my ANA is Speckled also.  My MD (not a specialist) told me that when the ANA comes back speckled it indicates MCTD.  MCTD and MS can share some similiar symptoms.  I hope that you don't have both and I hope that I don't either.  The Lupus is rough, I am starting to have more and more signs of the Scleraderma and I am also afraid that some of the signs of polyMyotisis may be starting.  Definately get to a dr and find out as soon as you can so maybe your dr can help you feel as good as poosible.  Good luck. 
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