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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/8/2010 7:49 PM (GMT -7)   
Anyone know of any medication that helps with fatigue? Especially while trying to lower prednisone dosage. My rhemuy decided we need to lower my prednisone to help my bones have a fighting chance but it is adding to my fatigue and to make things worse I am off the provigil so none of that to help anymore. I remember reading somewhere about some older drug you can use with plaquenil that is in the same drug class and helps but can't recall what it is called. I know you have to get it from a compounding pharmacy instead of a regular one too.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/9/2010 12:23 PM (GMT -7)   
called my doctor about the fatigue. It appears my thyroid may be acting up again he is sending me in for thyroid testing.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Vicodine when things get too bad, prednisone again, various vitamin/mineral supplements, cozar, duragesic patches
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

vanae
Regular Member


Date Joined Apr 2006
Total Posts : 46
   Posted 8/11/2010 8:06 AM (GMT -7)   
 Hi Redrose. I am getting ready to leave the house so have to make this short. I take the medicine you are asking about and I get it from a compounding pharmacy. It is called quinacrine HCL. I am on 50 mgs right now and we are thinking about increasing it to 75 mgs if my joint pains increase as we decrease prednisone to 10 mgs. I feel like it helps me as I had severe fatigue in the beginning and now I just sleep at night from around 10 or 11 to about 7 in the morning and I am fine all day. Hope this helps and that you can find something that works for you.

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/11/2010 10:23 PM (GMT -7)   
Vanae, thank you for the name of the med. I have to wait and see how my thyroid tests but will be asking about quinacrine as soon as I can because I hear good things about it. I need something for the fatigue.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Vicodine when things get too bad, prednisone again, various vitamin/mineral supplements, cozar, duragesic patches
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence
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