Test Back- Lymes, Lupus, Vitamin D deficiency: Still Confused :(

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LAWCHICK
Regular Member


Date Joined Jul 2010
Total Posts : 468
   Posted 8/10/2010 7:43 PM (GMT -7)   
So I am still confused about everything that is going on with me. I went to Dr (lupus specialist) to go over my test results. First thing he told me was that I have a severe vitamin D deficiency. He said that the lowest average is 40 and I only have a 10!. I have no idea how this can be I eat cheese alot and drink milk and my vitamin D count is horribly low.

Then I was told that I had lymes disease. He said that all 5 band tiers tested positive. He is starting me on lymes medication. I was told 4 years ago that I tested positive for lymes but then I was told that it was a false positive and that lupus could cause this to happen. My Dr at the time took me off of the lymes medication.

Now the Dr I saw today said that I had a "touch of lupus". His exact words were you have lymes with a touch of lupus; sounds like a cocktail to me. I asked him what he meant by  this touch of lupus business. He told me that I show all the signs of lupus and also my ANA has been positive(I have also had the face rash in the past). He said that we will have to wait until I take the lymes medication to see what is going on with how I am feeling before he can be 100 percent sure of lupus.

It is my understanding that Lupus can cause severe vitamin D deficiencies and also can cause false positives for lymes test. Is this true?

I go see another specialist on Monday. I was just hoping to finally get lupus answers today but I feel like it is 4 years ago happening all over again(No one knowing what is wrong, having test done, being told I had diseases such as Lymes then being told that I don't). I just hope my Dr was right 4 years ago and that I have not had undiagnosed lymes reeking havoc on my body this whole time.

Anyone have any advise or has been through something similar to this?

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 8/11/2010 3:43 PM (GMT -7)   
Hey lawchick! My vit D level is a 8, I have taken 50000 IU weekly for the last few months with no improvement (yet). Do you stay out of the sun? Most Vit D is absorbed through the sun, so if you do, of course your levels are so low. I personally avoid the sun because it makes me feel horrible for days.

I have not heard about lupus causing lymes tests to go haywire, but I have been told by many people that they had been diagnosed with lupus and eventually found out it was lymes when they went to another doctor and the doctor treat the lyme with strong and long course of antibiotics and their symptoms got so much better! I would wait and see how you respond to the lyme treatment, I am hopeful that you will feel better and the thought of lupus will dissapear.

Let us know how your pat goes on Monday!!! Hopefully they will explain a lot more and help you understand things better.
Amy
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran


If God brings you to it, he will get you through it!!

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/11/2010 10:21 PM (GMT -7)   
I would under go the treatment for lymes and still explore the other issues you are having. Lymes is a nasty disease and to have all the tests come back positive sounds like you had lymes all those years ago when you were told you didn't.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Vicodine when things get too bad, prednisone again, various vitamin/mineral supplements, cozar, duragesic patches
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence
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