Thank you for the warm welcomes. As you stated it is hard to deal with at times. This past week, and even now, I am having such a hard time taking deep breathes. At times, it feels as though I am suffocating. I go back to the doctor Wednesday for my blood results, hoping everything will be ok.
I found it really hard dealing with this whole disease yesterday. I went to dinner with a friend of mine, and afterwards she wanted to go walking around. I could not because I was sooo tired!
So far, the sun has yet to bother me, but then again I stay out of it as much as possible. I do have Raynauds, so the cold weather really gets to me and so does the heat. I swell up like a balloon. It is hard for my body to adjust to temeratures.