New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

missflorida2010
New Member


Date Joined Aug 2010
Total Posts : 1
   Posted 8/30/2010 8:14 PM (GMT -7)   
Hi All, I've had a rash on my arms and chest for the last 4 yrs, with the rash becoming more severe within the last year.  I've done internet research on Lupus rashes, and none of the pictures look like mine.  I've gone to 2 dermatologists now and they are stumped.  The last derm wants me to get a Lupus test because I have the symptoms and she thinks the rash may be Lupus.  If anyone is familiar with this rash, please let me know.
 
 
 

frstcls
New Member


Date Joined Aug 2010
Total Posts : 2
   Posted 8/31/2010 8:50 AM (GMT -7)   
I was diagnosed with chemically induced lupus - I do get rashes on my legs and arms - so far nothing on the face.  I go to a rheumatologist and she told me the rash is quite common with Lupus.  It will clear up at some point.  I have had the rash for about a month and it is starting to lighten up a bit.

sonyalee
Regular Member


Date Joined Sep 2010
Total Posts : 51
   Posted 9/9/2010 8:49 PM (GMT -7)   
What does your rash look like? I have had one for approx. a year and half that the doctors have been trying to get rid of but can't. They know mine is lupus but now success so far. They have tried taking me off all of meds to see if one was causing it. No luck so they added imuran to my meds and it actually made it worse. I know that's not suppose to happen with it but it did. i was on desonide cr. the entire time now I'm on vanos cr. and prednisone. So far not going anywhere. I don't know what their going to do. I have the rash on both arms, my neck, my face, my back , and my legs. Please let me know if you get any info on yours that may be helpful for me also. Lots of luck hope you see some releif soon.

lunacygotme79
Regular Member


Date Joined Dec 2009
Total Posts : 34
   Posted 9/11/2010 7:19 AM (GMT -7)   
I have rashes similar to that, they come and go. (arms, shoulders,chest, elbows)When they were really bad I had a nasty rash on my elbows too and they did a skin biopsy...maybe one should be done for you? It may give more insight on to what is going on with your skin...that really got the ball rolling for my diagnosis.

Age 31 - Diagnosed in 2008. Rheumatoid Arthritis, SLE, Dermatomyositis, Optic Neuritis. Medications; Prednisone 5mg a day. Methotextrate injections once a week.

sonyalee
Regular Member


Date Joined Sep 2010
Total Posts : 51
   Posted 9/11/2010 12:02 PM (GMT -7)   
When I originally got it 5 yrs ago the dr. did a biopsy and it was discoid lupus. That's how they found out all the other issues with me. He may do another the next time I go in because he is having alot of trouble getting it to improve. What did your biopsy say and how did they treat it? Did it take a long time for it to clear up?. I told my husband, It's funny how many people look at you like your going to infect them by being in public sometimes. and if they would just ask I would tell them what it is. It's not contageous. Thanks for the reply.

lunacygotme79
Regular Member


Date Joined Dec 2009
Total Posts : 34
   Posted 9/11/2010 1:54 PM (GMT -7)   
They found that I had Dermatomyositis, and tumid Lupus, which is a rare skin form, but turned into SLE, but I also have RA, so my treatment is prednisone and methotextrate. It took about 4 months for the rashes to go away, but they come back sometimes sad .  It was awful... it was so hard to work with the skin condition, and then I got bad acne from the prednisone...but work pulled through for me and now I am on long term disability. I am lucky in that respect.
Age 31 - Diagnosed in 2008. Rheumatoid Arthritis, SLE, Dermatomyositis, Optic Neuritis. Medications; Prednisone 5mg a day. Methotextrate injections once a week.

sonyalee
Regular Member


Date Joined Sep 2010
Total Posts : 51
   Posted 9/11/2010 10:46 PM (GMT -7)   
the doctor done blood work for the dermatomyositis, I had the rash and some muscle weakness, but that came back ok. he said my ck levels were ok. I have sle, discoid, sjogrins and acute vasculitis. How are you doing on the metheltrexate? He had talked about putting me on that but i'm a little leary of it. I have heard soo many bad things about it. Sorry about the RA, my aunt had that and it was really rough for her. Thank you sooo much for writing me back. The doctor said that it may not be clearing because i sle is very active right now. So I don't know. I go back to the derma. in a couple of weeks so we'll see. Thank you and God Bless!

lunacygotme79
Regular Member


Date Joined Dec 2009
Total Posts : 34
   Posted 9/14/2010 4:55 AM (GMT -7)   
The methotextrate gives me headaches and makes me pretty ill feeling for a couple days after the shot, I am not sure it's actually helping me... I go back to the doctor tomorrow for another issue that came up (posted a thread "Lump in my arm") I still feel a little better then last year and at least I was able to gain some weight back, and the gottron's papules are gone from my hands , but I don't think the shot is helping the RA... I am snapping and cracking all over the place :)
Age 31 - Diagnosed in 2008. Rheumatoid Arthritis, SLE, Dermatomyositis, Optic Neuritis. Medications; Prednisone 5mg a day. Methotextrate injections once a week.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 3:30 PM (GMT -7)
There are a total of 2,731,793 posts in 300,964 threads.
View Active Threads


Who's Online
This forum has 151130 registered members. Please welcome our newest member, Inhisname.
325 Guest(s), 11 Registered Member(s) are currently online.  Details
imagardener2, countess18, House_rocker, Skyy, Benjawood, Scaredy Cat, getting by, Todd1963, ChickNorris, poohcheez, gilly2


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer