IV port during inflamation...anyone?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Ms. Wonder
Regular Member


Date Joined Aug 2010
Total Posts : 27
   Posted 9/3/2010 8:27 PM (GMT -7)   
I was wondering if anyone has ever had an IV done during an inflamation period. I am nervious. Esp. bc my chest hurts so much...............everything hurts (literally)...........but chest are is getting worse. labored breathing. so of course......i wonder........since they are going to be involved in that area, it will probably cause a lot of invasion. therefore being stressful for body.
 
i seem to get a bit of relief from my chest when i move forward. does anyone know anything about this?

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 9/3/2010 9:26 PM (GMT -7)   
I'm guessing you mean you are going to have an IV port put in?

If your veins are bad enough that they are suggesting the port, then they also believe that the information they can get thru the port ( from your blood) and the medications they can provide you that way will be of overall benefit.

They don't come up with these things unless they believe they'll be of help. They need the blood to be able to help you feel better.

Try not to worry
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 9/3/2010 9:36 PM (GMT -7)   
has anyone listened to your heart with you laying down? If not insist that they do it is one of the ways to catch early pericarditis which causes you to feel like you can't breath and your chest hurts but everything eases slightly if you lean forward. I am not saying that is what is wrong with you but lupus can cause pericarditis and left untreated it can be serious and life threatening.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Vicodine when things get too bad, prednisone again, various vitamin/mineral supplements, cozar, duragesic patches
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

Ms. Wonder
Regular Member


Date Joined Aug 2010
Total Posts : 27
   Posted 9/3/2010 10:06 PM (GMT -7)   
thank you redrose!!! you just reminded me of something...........about 5 years ago before my spine surgeries started and a lot of tthese symptoms began that i kept ignoring, my doctor did that. (the lay down thing and it was different)

i will bring it up to my rheum. on tues. THANK YOU!!!!

he gave me a medicine today called, colchine which is supposed to help with my chest.

the pain gets worse by the hours. why, did this ever happen to you? do you think i should call my doctor now and tell him? i have been keeping my symptoms to myself for so long out of guilt and fear.......i am get really confused. my mind has definatly gotten effected by all this. and i do NOT mean my psychological mind. (i had a really incompetent psych doc. that kept telling me everything was in my head. it's obivously my faulty for not trusting in myself more....i know this. which is why she is no longer my doctor, as of a few months ago. which is now why, i have trusted MORE in my rheum. and am getting my lab works done and pulmonary exams....etc......which lead to all thes other findings.........lupus, polymysoitis.....god knows what else.....hopefully nothing)


i know............i must sound nuts. none of this is in my head. i swear. (my doctors now believe me 100%. i feel safe. finally)

still scared though.

Ms. Wonder
Regular Member


Date Joined Aug 2010
Total Posts : 27
   Posted 9/3/2010 10:25 PM (GMT -7)   
sorry Lynnwood. i did not see your response before.

yes, my veins are horrible to say the least. 22 times poked last week. nothing. i think and this week i stoped counting at 22.

i know they are doing the right thing by putting the port in. i had the pre-op today. i have the surgery wed. (it's not if it is a good idea or not...........i trust them on that) they have to do this to start infusions. plus my doctor wants this for when i go to ER's.

my question is, did anyone have a flare up and it get worse during/after an IV port access surgery.

obviously i am not good at this discussion forumn yet. also, i am not doing well. so i am not getting my point or questions across.

what is most frustrating is i have often been told how well i am at expressing myself. that it is a gift?????????? hahahahahaha!!!!

NOT NOW IT IS NOT!!!!!!!!!!!!!!!!! :)

i really appreciate your response Lynnwood. thank you.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 9/4/2010 8:32 AM (GMT -7)   
I guess my point was is that they must think the benefit from a port outweighs the possibility of a flare from inserting the port.

We have at least 2 members here that have ports and neither seem to have their flares affected by putting them in. (Or taking them out, one poor soul the port keeps messing up & has had to be repaired or replaced several times!)
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 7:44 AM (GMT -7)
There are a total of 2,735,828 posts in 301,337 threads.
View Active Threads


Who's Online
This forum has 151440 registered members. Please welcome our newest member, stevclemon.
275 Guest(s), 6 Registered Member(s) are currently online.  Details
Bucko, fibrocushie, ChickenArise, trumpet123, iPoop, LanieG


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer