New Member: Mookey

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Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 9/4/2010 9:33 AM (GMT -7)   
(Moved from the end of an old post!)

Hi everyone... I've been sick for almost a year and just seem to keep getting worse. I'm going to tell a little story so it all makes sense and most questions will be answered.
My dog Mikey died last year in june of an auto immune disease... it would be shortly after this that I would discover I was sick also, my heart was racing out of control.. I was really devastated and my doctor said I was suffering from severe grief, I'm sure I was too this was very very hard for me... I couldn't have loved him more. So I thought I would get better as the grief resolved and healing took place. Nope.
I've had 2 surgeries and I am still getting sicker.
My symptoms now are much more then they first started out with, here they are.
Almost constant nausea... loose stool that is very very light in color some times orangish and or yellowish? When ever I am feeling bad it get's way worse if I have to go number two... I know this sounds grows but I'm running out of answers and am hoping I can get some info here. Also my tongue is coated white... the sicker I am the whiter it is. I'm starting to have heart palpitations also I'm actually starting to get pretty afraid at this point and I have fallen into the system as far as you have no money now and no insurance... I dont think the doctors I see care at all they just want me to go away at this point. The thing is if they would fix me i would go away... get back to work but now all I can do is lay on the couch and pray. Please help

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 9/4/2010 10:53 AM (GMT -7)   
Mookey - So sorry you are having such troubles.  As many on here will tell you, it takes time to sort out auto immune problems - as there are many of them, their symptoms are variable and somewhat different for each person, and there aren't specific lab tests to give a slam dunk diagnosis - many clinical factors are considered as well.   
A rheumatologist is your best bet for the diagnosing and treatment of an autoimmune disorder.
 
You don't indicate what type of surgery you've had, but you mention nausea and abnormal stools - have you considered celiac disease ?  GI distress is not always, but often one of the tip-off symptms for that.  Could ingestion of gluten or another food source be triggering problems? 
 
The heart racing and palpitations, from my own experience, can be the result of a food reaction - it happened to me after consuming Splenda, for example - but I also have problems with it from time to time for no explanation that has been found.  But  it should be checked, as it isn't normal.  If your doctor isn't listening to you - best advice is to get a second opinion.
 
Sorry about losing your beloved pet - they become like members of our family and it is a difficult loss.  Often auto-immune type illnesses can be triggered by life traumas such as surgery, a virus, or the emotional stress of a significant loss or change.   Don't give up - keep looking for a doctor who will listen to you and try to put your information together in terms of symptoms and problems and a time-line showing the changes.   Be sure to ask for copies of all your lab reports.
 
Best of luck - this forum is full of caring and informed people who have helped me immensely when nothing seemed to make sense. 
Lucy

mookey
New Member


Date Joined Sep 2010
Total Posts : 2
   Posted 4/11/2011 9:53 AM (GMT -7)   
Thanks so much for the reply... I am going to try to get another opinion funding being at an all time low it's getting difficult. I do believe it's food related but I have not been able to pin point it just yet. THANK YOU

panther fern
Regular Member


Date Joined Feb 2011
Total Posts : 163
   Posted 4/15/2011 1:25 PM (GMT -7)   
The white on your tongue is most likely candidiasis. or Thrush is what they call it in children.. it can make you sick because it can go into your esophogus. It is a fungus and easy to get when you are "down or immuno suppressed" i get it all the time. I have lupus, but when i practiced dental hygiene i had many pts that got it from their inhalers or from many sources, or just from being ill. It can make your tongue feel like it is burning at times as well.

If you can not go to a dr. rinse with hydrogen peroxcide because it helps... put a small amount in your mouth gargle and spit do not drink. there is also a product i use called clo_sys you can find it at Walgreens it is an oral rinse it comes with no flavor you add the flavor it comes with it that way the mint doesn't have to be as strong. I have mixed this with hydrogen peroxcide and used it by itself daily, it is used to prevent periodontal disease, u put a little in your mouth after brushing or before swish spit, you can swallow a tiny amount if you think it is affecting your throat like 1/2 of a cap full like 1/4 tsp doesn't seem like much but you don't need much. you don't want to kill good bacteria just the bad.

Brush your teeth and tongue 2 times a day. rinse your tooth brush good and let the head of it soak in hydrogen peroxcide to make sure you are not reinfecting the area.. a shot glass works or soak it in Crest pro health.. it kills bacteria and tastes better...

Hope some of this helps. if you find your tongue getting too sensitive and still white don't brush hard you cant brush it off!!!! brush with a soft tooth brush and you can buy a tongue scraper.. go over it easy.....

take care
fern
or if you go to a dr. they can give you a med.. an anti fungal med and that clears it up... then be sure to keep a close eye so it doesn't come back
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