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challenged nurse
Regular Member


Date Joined May 2010
Total Posts : 69
   Posted 9/5/2010 12:15 PM (GMT -7)   
This is for the lupies that have been approved for SSD or SSI. I called on Friday to check the status of my claim and was told that they have reached a decision and that the county that I live in would contact me with the decision. I was wondering did anyone else go through this and how after the decision did it take to be notified. I am stressing out because I really need to get approved because I can no longer afford my medications. I have not worked since my stroke in May. Any advice would be helpful.
DX: Lupus, Asthma, Mitral Valve Prolapse, Heart Murmur, Anemia, Vitamin D def., B12 def, Hypertension, TIA, muscle weakness, numbness, tingling, headaches, night sweats, IBS.

Meds: Plaquenil, Imuran, Prednisone 10mg, vit d3 50,000, b12, Prevacid, Tramadol, Lyrica, Miralax, Vaseretic/HCTZ, ASA.

I can do all things through Christ that strengthens me.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 9/5/2010 12:38 PM (GMT -7)   
Time lines for SSD vary widely from state to state, county to county. Your best bet is to call your local SS office and ask about the delays or average times in your area.

In my case it took almost 3 years to get to a hearing, the decision was made & delivered within about 6 weeks, and regular payment started quickly after that. The back payment from the almost-3-yr delay took about 8 months to arrive. At least at that point I knew the funds were coming so getting a loan didn't cause as much stress as it would have otherwise.

Good luck for a speedy reply!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

challenged nurse
Regular Member


Date Joined May 2010
Total Posts : 69
   Posted 9/5/2010 12:46 PM (GMT -7)   
Thanks, I called the medicaid office to see if they heard anything on my case and she informed me that I had got approved for SSI and should have been received a check in the mail but I told her that I wasn't notified that I was approved but then I called the social security office and she informed me that no decision had been made. But the DDS told me that she had sent the information to the local office. Just confused.
DX: Lupus, Asthma, Mitral Valve Prolapse, Heart Murmur, Anemia, Vitamin D def., B12 def, Hypertension, TIA, muscle weakness, numbness, tingling, headaches, night sweats, IBS.

Meds: Plaquenil, Imuran, Prednisone 10mg, vit d3 50,000, b12, Prevacid, Tramadol, Lyrica, Miralax, Vaseretic/HCTZ, ASA.

I can do all things through Christ that strengthens me.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 9/5/2010 12:50 PM (GMT -7)   
Yeah, it takes a while for the "real" information to move thru the system. Sounds like things are in the works and you just have to wait for all the paperwork to be finished and arrive in the mail.

Patience can be so hard to come by!!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

challenged nurse
Regular Member


Date Joined May 2010
Total Posts : 69
   Posted 9/5/2010 1:14 PM (GMT -7)   
I know, it been real hard but of course you know that. Thanks for relieving some of my stress. It just didn't make sure how the information was not the same at both offices. So I panic. I didn't think that the Medicaid office was telling me the truth since no one else had any information in their system yet. I dont know who are what to believe. So I guess I'll just wait until I get the letter in the mail. I hate to get to excited and she told me a lie. you know what I mean.
DX: Lupus, Asthma, Mitral Valve Prolapse, Heart Murmur, Anemia, Vitamin D def., B12 def, Hypertension, TIA, muscle weakness, numbness, tingling, headaches, night sweats, IBS.

Meds: Plaquenil, Imuran, Prednisone 10mg, vit d3 50,000, b12, Prevacid, Tramadol, Lyrica, Miralax, Vaseretic/HCTZ, ASA.

I can do all things through Christ that strengthens me.

bella4
Regular Member


Date Joined Jun 2005
Total Posts : 263
   Posted 9/7/2010 2:06 AM (GMT -7)   
hi there...there is no harm in calling your local ssi office repeatedly, if necessary, to get the ball rolling...you don't have to wait for "the letter." i knew threw my atty before i got the letter and they were glad i called and hurried the process along to get my payments to me. my atty made sure that i understood that a judgment had been rendered in my favor and i had the right to request that my payments get made as expediciously as possible...to expect that they would do it was really silly!! what i am saying is...don't sit on your hands, this is important because they won't do it for you...make the calls, request the paperwork, etc...walk into the ssi office if necessary (i assume you didnt hire an atty). if this is a permanent disability case for you then you do have back payments??? they will have to go over your income from the date you filed your claim, etc and that will take a few mos to process...you want to get this going asap. if there is no 'retro' claim then it will be a lot simpler and quicker to process. good luck!!
dx>

sle, fibromyalgia, neutropenia, chronic anemia, neuropathy, interstitial cystitis, raynaud's, migraines,

challenged nurse
Regular Member


Date Joined May 2010
Total Posts : 69
   Posted 9/7/2010 7:43 AM (GMT -7)   
Thanks bella for the feedback. No i didn't get an attorney. But I am afraid that I may be denied. The lady @ DDS said that I didn't have to call her back with anymore updates. So I think that I will call SS office again and see what the hold is.
DX: Lupus, Asthma, Mitral Valve Prolapse, Heart Murmur, Anemia, Vitamin D def., B12 def, Hypertension, TIA, muscle weakness, numbness, tingling, headaches, night sweats, IBS.

Meds: Plaquenil, Imuran, Prednisone 10mg, vit d3 50,000, b12, Prevacid, Tramadol, Lyrica, Miralax, Vaseretic/HCTZ, ASA.

I can do all things through Christ that strengthens me.

bella4
Regular Member


Date Joined Jun 2005
Total Posts : 263
   Posted 9/7/2010 8:29 AM (GMT -7)   
you're welcome but i don't know that i was helpful :(...i know it is a frustrating ordeal which is why i got an atty.  from the time i hired him, it took a year and we were in court, i had my judgment, was receiving payments in 16 mos...AND he got me retro from the time i had tried myself and got denied but i didn't follow through with the appeals process in the time allotted...it was well worth his one third (to me).  i didn't have the energy to fight that battle myself so i applaud your efforts.  don't give up...bella

challenged nurse
Regular Member


Date Joined May 2010
Total Posts : 69
   Posted 9/7/2010 12:16 PM (GMT -7)   
How long did it take you to find out you were denied?
DX: Lupus, Asthma, Mitral Valve Prolapse, Heart Murmur, Anemia, Vitamin D def., B12 def, Hypertension, TIA, muscle weakness, numbness, tingling, headaches, night sweats, IBS.

Meds: Plaquenil, Imuran, Prednisone 10mg, vit d3 50,000, b12, Prevacid, Tramadol, Lyrica, Miralax, Vaseretic/HCTZ, ASA.

I can do all things through Christ that strengthens me.

challenged nurse
Regular Member


Date Joined May 2010
Total Posts : 69
   Posted 9/7/2010 1:27 PM (GMT -7)   
I AM GETTING SO FRUSTRATED WITH THE SOCIAL SECURITY OFFICE. I CALLED TODAY TO FIND OUT THE STATUS OF MY CASE IN THEIR OFFICE AND THEY ARE CLUELESS. THEY TOLD ME THAT JACKSON WOULD SEND ME A LETTER TO INFORM ME OF THE DECISION AND I TOLD HER THAT I HAD SPOKEN WITH JACKSON AND THEY SAID THEY SENT THE INFORMATION TO THEM AND THEY WOULD LET ME KNOW THE STATUS. WHY IS THAT SO HARD TO UNDERSTAND. SHE THEN SAID THAT JACKSON WILL SEND THE INFORMATION ELECTRONICALLY AND IT TAKES 3-4 BUSINESS DAYS TO REACH THEM. WHAT'S REALLY GOING ON?
DX: Lupus, Asthma, Mitral Valve Prolapse, Heart Murmur, Anemia, Vitamin D def., B12 def, Hypertension, TIA, muscle weakness, numbness, tingling, headaches, night sweats, IBS.

Meds: Plaquenil, Imuran, Prednisone 10mg, vit d3 50,000, b12, Prevacid, Tramadol, Lyrica, Miralax, Vaseretic/HCTZ, ASA.

I can do all things through Christ that strengthens me.

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 9/7/2010 1:28 PM (GMT -7)   
it took like 5 months from my initial application to get the first denial. Then I appealed and hired a lawyer. I won the appeal but it took 2 years to get a court date. After I was approved I got my first payment within 2 months but I was a rush case because I was lossing my housing.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Vicodine when things get too bad, prednisone again, various vitamin/mineral supplements, cozar, duragesic patches
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 9/7/2010 2:08 PM (GMT -7)   
challenged nurse,

Please take a deep breath and concentrate on something else. It will come through the system and eventually arrive in the mail.

Talking to 3 different people will just get you 3 different "best guesses". You've posted about this 6 times in only 3 days, 2 of which were not working days for SS! Your case is most certainly in the system, and waiting in a list or a pile behind the other requests that came first. They will get to you asap. And, unfortunately, the more time they spend on the phone the less time they have to process all the claims.

I don't mean to be harsh. I know it's hard to wait but you can easily aggravate your symptoms by obsessing about it and increasing your stress.

Pray, meditate, watch mind-numbing tv, read a book, go to the park, anything to redirect your energy!

Hang in there
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

bella4
Regular Member


Date Joined Jun 2005
Total Posts : 263
   Posted 9/7/2010 4:31 PM (GMT -7)   
i need a deep breath for some can't help but do nothing other than to contradict others...i remember now why i left this forum...i am far less wise than some. sorry nurse, good luck!

Ms. Wonder
Regular Member


Date Joined Aug 2010
Total Posts : 27
   Posted 9/7/2010 5:55 PM (GMT -7)   
Hi bella!!!!!

I just wanted to say, i agree with Lynnwood. It will come throught the system and eventually in the mail.

i know it is frustrating. but it will happen. (the same thing happened to me........and IT CAME) : ) !!!!!!!!!!!!!!!!!!

i have been getting SSI now for almost a year and a half. it took 3 years for them to make the decision.

but my point is this, SSI STILL makes mistakes every month practicly. i don't even bother opening most of their mail. bc thus far......SSI and SSD are not on the same page.

yet practicly every month AND when i finally started getting them, it all worked/works out.

if i call one office, the other has no idea what is going on. and then when i ask "i just got a letter stating you were going to take money away from me?????"

they say, "ooohhhhh..............don't worry about that letter, just throw it out???????????????????"

sssoooooooo.........point being, at the end it ALWAYS works out.

the only thing i wish i do differently almost everytime i end up stressing about it again, is wishing i had never stressed to begin with. (my body would have been and continues to work much better, breathing, praying or watching a movie)

worrying only seems to create a false sense of security and a more aggressive immune system. (none of us need either)

it will come soon. take care

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 9/7/2010 8:20 PM (GMT -7)   
Bella,

You are not giving "bad" advice and there is no reason to leave. We are all adults and we can all have different opinions. They are just that, opinions, not facts. And no-one is right or wrong. There is no reason for you to leave the forum.

My suggestion to leave it alone was meant to say "don't make yourself crazy/sick with it". If it makes you feel better to call by all means do that.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde
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