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Forum Moderator

Date Joined Jun 2006
Total Posts : 1531
   Posted 9/5/2010 5:09 PM (GMT -6)   
I am so very tired of lupus. Two weeks ago I fell (again) and bruised my ribs. It has take weeks to get my strength back since being hospitalized for partial bowel obstruction in Aug. I never have lots of energy anyway. sad   I had to postpone my gastric bypass surgery. It was so much work to get letters from all my docs and now I have to get them again.  My hair is thinning again. I don't run fevers, but I get chills most days. I've had plantar faciitis in my feet for many months and finally have taken to wear a foot brace on which ever is hurting the most when I sleep. My heals get so dry and cracked they bleed. It's really painful. I try my best to keep them exfoliated and moisturized, but it's just one more daily battle. Sjogrens makes my lips stick to my teeth and my mouth taste down right bad. I've broken 2 teeth this year. I've never been able to handle my lupus psychologically so I've been seeing a psychiatrist for years and take lots of psych meds. I had sinus surgery in April, but I still have constant post nasal drip. I had sleep studies done this year and am back on a cpap. I've had pleurisy 3 times this year and swine flu in Jan.
I plod along going to every medical visit, but I'm soooo sick of going. I take 13 different medications each day and none of my docs will let me stop any. If you've read this far you're an angel. Love, Butterflake 

challenged nurse
Regular Member

Date Joined May 2010
Total Posts : 69
   Posted 9/5/2010 5:16 PM (GMT -6)   
I hate that you are having such a hard time with this. But we are here to help or just listen. Venting always relieves stress for me. so feel free to vent anytime.
DX: Lupus, Asthma, Mitral Valve Prolapse, Heart Murmur, Anemia, Vitamin D def., B12 def, Hypertension, TIA, muscle weakness, numbness, tingling, headaches, night sweats, IBS.

Meds: Plaquenil, Imuran, Prednisone 10mg, vit d3 50,000, b12, Prevacid, Tramadol, Lyrica, Miralax, Vaseretic/HCTZ, ASA.

I can do all things through Christ that strengthens me.

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 9/5/2010 6:30 PM (GMT -6)   
I am so sorry it is so hard for you. I totally understand about the medications I have more than I list.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Vicodine when things get too bad, prednisone again, various vitamin/mineral supplements, cozar, duragesic patches
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

Forum Moderator

Date Joined May 2005
Total Posts : 6930
   Posted 9/5/2010 10:08 PM (GMT -6)   

So sorry things are piling up on you again. We do heal a lot more slowly than pre-lupus, and it's such a major drag. Easy to run low on hope from time to time.

Please call me if I can do anything to help, even it it's just to listen for a while. I can go to drs with you sometimes, too, if that will help.

Hang in there,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Regular Member

Date Joined Jan 2006
Total Posts : 395
   Posted 9/6/2010 8:39 AM (GMT -6)   
Dearest Butterflake,
It does get to be too, too, much, doesn't it. It seems tougher for me when I start thinking about tomorrow and getting mad when I know it will probably be a tough day. I know what you mean about having to resubmit paperwork, too. I just started the disability process.  Venting is ok, especially with us, because we have so much in common. Hope your day brings you a moment of joy or comfort,
ps. i am going to slice a beautiful, shiny, purple eggplant and make eggplant parmesan today if it kills me. If you were here, I would ask you to help slice and batter the slices for me. I have my little George Forman grill out..... hmmmnnnn  eggplant here I come. Emeril Lagasse... I thank you for the recipe. tongue
pps. and please consider calling Lynnwood. I can tell her offer comes from her heart.
ppps. I try bouncing when I fall, it makes it SO much more fun smilewinkgrin

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. Vit. B12 2400 mcgs, Vit D 1000U and  Ambien every night.

Regular Member

Date Joined Oct 2007
Total Posts : 184
   Posted 9/6/2010 10:23 AM (GMT -6)   
Oh my... that is too much... I'm so sorry... I do hope you can feel better soon...

Forum Moderator

Date Joined Jun 2008
Total Posts : 1469
   Posted 9/6/2010 5:59 PM (GMT -6)   
Thinking about you Donna!!!

Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran

If God brings you to it, he will get you through it!!

New Member

Date Joined Sep 2010
Total Posts : 2
   Posted 9/6/2010 7:19 PM (GMT -6)   
i have lupus is there any chat room where i can talk to people like me?

Regular Member

Date Joined Aug 2010
Total Posts : 124
   Posted 9/7/2010 8:18 PM (GMT -6)   
Butterflake, I will pray for you. I am so sorry that you feel so badly. I will be hoping that you get better soon. hugs

Forum Moderator

Date Joined Jun 2006
Total Posts : 1531
   Posted 9/8/2010 7:42 AM (GMT -6)   
Thanks everyone for the kind words and encouragement. Lynnwood it's so nice of you to offer help when I know you don't feel well either.
Jess.smith Healing Well has many chat rooms. At the top information bar click on chat and log in. I rarely chat, but I think the lupus chat room is busiest at night.
Sue I love eggplant and hope yours turned out great. BTW, your comment about bouncing when you fall made my day. LOL
Thanks for listening. Love ya'll, Butterflake
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