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BigBry
Regular Member


Date Joined Nov 2008
Total Posts : 106
   Posted 9/5/2010 11:02 PM (GMT -7)   
Hi all,

I haven't posted in awhile so I thought I’d just give you all an update. Well what ever it is I have is progressing affecting my eyes, ears, jaw and temples. For those that don’t know I have joint pain and tendinitis in all major joints and most others with major muscles pain. Now I’m getting some blurred vision, ringing in my right ear, jaw pain and tendinitis and pain in my temples.

ANA is all over the place and high 1:1280, positive Anti-ds DNA 1:640, CRP and ESR remain high. My doctor and all the specialists are stumped. So I’ll just carry on managing the symptoms the best I can.

On a more optimistic note I have been fight to get an accommodation so I may return to work for just over a year now and I have a final meeting to set the terms in a week or so. I am no longer able to do my former job as a marine engine mechanic on large ferries. I have worked out a more sedentary job that I should be able to do. I know it’ll be difficult, but I’m hoping to work for 5 – 10 years if possible. If not well it is what it is and work will be out of the question, but at least I’ll have given it my best shot.

I hope this finds you all doing better.

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 9/6/2010 3:58 PM (GMT -7)   
Hey Bryan! I was hoping the reason I hadnt seen you post in a while is that you were doing better! i am so sorry to see that is not the case!! I pray that your doctors will be able to figure out your case and also be able to manage your pain better!

Sending you gentle hugs!
Amy
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran

If God brings you to it, he will get you through it!!

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 9/8/2010 5:53 AM (GMT -7)   
Hi Bryan. I'm sorry you feel so awful and still don't have a diagnosis. It seems with your positive blood tests and symptoms the docs could arrive at something.
 
I had to get a sedentary job with accomodations in 2005, but I had to go on disability in 2008. I hope you can get the accomodations you want. Good luck! Butterflake

BigBry
Regular Member


Date Joined Nov 2008
Total Posts : 106
   Posted 9/15/2010 2:28 AM (GMT -7)   
Thanks I'm hoping for the best I find out later today if I get my accommodation. I'm sure it'll work out.

Sending you both soft hugs
DX:> NO Sjogren's 09, Fibro, NO Fibro, all over tendinitis...you've got something we just don't no what?????
Life is what you make of it. Just something I try to remind myself every day.

BigBry
Regular Member


Date Joined Nov 2008
Total Posts : 106
   Posted 9/17/2010 5:58 PM (GMT -7)   
I start back to work Monday on my accommodation.
DX:> NO Sjogren's 09, Fibro, NO Fibro, all over tendinitis...you've got something we just don't no what?????
Life is what you make of it. Just something I try to remind myself every day.

FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 9/17/2010 7:33 PM (GMT -7)   
I don't post often, but I wanted to say that you impressed me with your positive outlook! Good Luck on the job and I hope you feel better!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim, Zantac.
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

BigBry
Regular Member


Date Joined Nov 2008
Total Posts : 106
   Posted 10/2/2010 4:05 AM (GMT -7)   
Thanks Fran I believe a positive attitude helps in feeling better. By the way I finished my two weeks of Graduated Return to Work 4 hours for the first week and 6 hours for the second week. Next week I start full 8 hour days. It's going as well as can be expected I've been pretty sore and rather worn out, but I'm enjoying being back to work. What doesn't kill you only makes you stronger or as my dad would say "just walk it off" (which I did with a broken ankle as a kid I played hockey on it too) we just laugh about that now.
DX:> NO Sjogren's 09, Fibro, NO Fibro, all over tendinitis...you've got something we just don't no what?????
Life is what you make of it. Just something I try to remind myself every day.

Blue Wisteria
Regular Member


Date Joined Sep 2010
Total Posts : 39
   Posted 10/2/2010 4:26 AM (GMT -7)   
Good Morning to you, I am new to this site and just read your post......so upbeat. Good Luck to you and here is hoping that you catch a break!

Health and Hugs,
Wishing a good day for all,



Lupus, Sjogren's, Athsma, Diabeties and RA

Plaquinal, Immuran, Rituxian, Pred, Cymbalta, Singular, Theophylline, Advair, Diovan, Mobic, Prandin, Lantus and Moraphine (as needed)
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