is it uctd or lupus

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starlighter50
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/7/2010 12:01 PM (GMT -7)   
hello
       i have been daignosed with uctd but i have almost all of the symptoms of lupus.
i have the joint pain the low feaver headache the one thing i dont have is a positive ana.
im on plaquinell , i wander if anyone else is between diagnoses.
tankyou starlighter50 confused

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 9/7/2010 3:26 PM (GMT -7)   
Sounds like you have an overlapping connective tissue disease which includes symptoms of lupus. It is common for this type of disease to develop over time...until then uctd. It makes little difference as the treatment will be the same in most cases. These diagnoses are not easy and sometimes take years to confirm.

http://www.medicinenet.com/script/main/art.asp?articlekey=16955

One of the diseases will usually become the primary one. I have mctd which is lupus, sclerodrema and polymyositis. Lupus started it and PM became the dominant symptoms. Have very little with scleroderma fortunately. It took about 14 months from the first tests to determine it was mctd which is defined by the anti rnp antibody. However, my docs thought for some time I had it so it was just a confirmation.

Bill
MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 25mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
 
Remain optimistic and you can overcome the odds.

starlighter50
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/7/2010 4:19 PM (GMT -7)   
hey bill thanks for your imput, i think your right but it is aggrevating not to know for sure

thanks starlighter50

starlighter50
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/7/2010 5:44 PM (GMT -7)   
hi Bsime thanks for the insight i really appreicate it . if i can help you please let me know

thankyou starlighter50

Catlady3
Regular Member


Date Joined Aug 2010
Total Posts : 55
   Posted 9/13/2010 12:53 AM (GMT -7)   
I was diagnosed with UCTD until 2005 when I started having seizures and had an MRI and spinal tap and they found I had lupus of the brain. It's very difficult to diagnose lupus due to the changing symptoms. I had ongoing symptoms including joint pain, Raynaud's and the butterfly rash as well as positive ANA for years but until the seizures and the cells they found in the spinal fluid, my rheumatologist was reluctant to give a diagnosis of lupus. Now I'm on Plaquenil and Cellcept for life.
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