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DMF
New Member


Date Joined Sep 2010
Total Posts : 17
   Posted 9/8/2010 11:36 AM (GMT -7)   
Hi, my name is Dawn and I was diagnosed with mctd yesterday, my ANA, RNP and CRP are high. I am glad to have found a place with a supportive group who understands the challenges of these diseases.

I was started on Plaquenil and Ultram <for when pain is bad>, hopefully I will get good results from the Plaq, I am ever hopeful.


Love, faith and best wishes to everyone! :-)

The Watcher
New Member


Date Joined Aug 2010
Total Posts : 16
   Posted 9/8/2010 12:03 PM (GMT -7)   
Welcome to this site , I have been able by reading what others are going thru to somehow find a lot of comfort in knowing we are all going thru something so lets sort it out together ....good luck
44 year old female , I have survived three strokes, 2 bouts of cervical cancer, I have fibromyalgia , Degenerative disc disease, arthritis in my hip, neck and both shoulders and my new condition is hypersensitivity pneumonitis, interstitial lung disease, pulmonary fibrosis and wegeners granulamatosis currently taking IMURAN , sulindac, skelaxin

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 9/8/2010 12:28 PM (GMT -7)   
just to warn you it can take MONTHS or even a year to get full benifits from plaquenil and most of us don't realize how much it does until we decide it is doing nothing and go off of it. but it is one of the safest drugs we can take and can slow the diseases down drastically.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Vicodine when things get too bad, prednisone again, various vitamin/mineral supplements, cozar, duragesic patches
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

DMF
New Member


Date Joined Sep 2010
Total Posts : 17
   Posted 9/8/2010 12:36 PM (GMT -7)   
Okay thank you for the warning, I had the feeling it would be a long haul. I guess my worst trouble right now is 3 weeks ago I started having PVCs, ended up in hosp. and now under my cardiologist care. She has me doing several tests trying to find the sudden cause, they do not go away it's a daily event now. I hope to have news on that within 2 weeks, I am hoping its not connected to the mctd.

jdrea
Regular Member


Date Joined Aug 2010
Total Posts : 124
   Posted 9/12/2010 8:30 AM (GMT -7)   
Welcome Dawn. I haven't been on here very long and I have read some very helpful stuff. I can't find any groups locally and this is probably better because even on days that I hurt, I can still stay in touch with others who are going through similiar situations. Glad you found this site....
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