Anybody have blue feet?

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louise47
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Date Joined Feb 2010
Total Posts : 138
   Posted 9/8/2010 1:50 PM (GMT -7)   
 Mine have been sore lately. They burn and turn bright red on the bottems. Last night they turned blue and my toes too. confused

aimsgirl16
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Date Joined Jun 2008
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   Posted 9/9/2010 3:06 PM (GMT -7)   
Have you been diagnosed with Raynaud's syndrome?
Amy
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran

If God brings you to it, he will get you through it!!

jdrea
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Date Joined Aug 2010
Total Posts : 124
   Posted 9/12/2010 8:18 AM (GMT -7)   
Are you diabetic?

Ms. Wonder
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Date Joined Aug 2010
Total Posts : 27
   Posted 9/13/2010 12:09 AM (GMT -7)   
yes, i have and it was Raynauds.

(sort of serendipitous......it happened when that movie Avatar came out and the people were blue.....seriously) :)))

louise47
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Date Joined Feb 2010
Total Posts : 138
   Posted 9/13/2010 2:29 PM (GMT -7)   
No I havn't I thought reynauds was in your hands?

Wolf92
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Date Joined Jul 2010
Total Posts : 9
   Posted 9/13/2010 9:07 PM (GMT -7)   
Raynauds can affect your hands, feet, ears & nose. You just have to keep warm in those places
Neo80
Dx: 10/1992-SLE Lupus, 05/2010-Fibro, hypertension , insomnia, raynauds, cataracts
Meds- plaquenil, prednisone, iron, cellcept, potassium, celebrex, lasix, norco, zyrtec, singular, zestril

aimsgirl16
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Date Joined Jun 2008
Total Posts : 1469
   Posted 9/14/2010 3:51 AM (GMT -7)   
Yes, it can effect your hands feet, ears and nose! Before my hands started turning blue (well before I noticed) People used to tell me my nose and ears were turning blue when I smoked oustside in the winter. Then shortly after that my hands and feet also started the color change but only in cold weather.
Amy
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Integra Plus, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram, Darvocet, Zofran

If God brings you to it, he will get you through it!!

Lynnwood
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Date Joined May 2005
Total Posts : 7018
   Posted 9/14/2010 7:23 AM (GMT -7)   
Although it may very well be Raynauds, you should still talk to your doctor about it. Raynalds can be more serious and has other remedies besides keeping warm.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

kimberlyrenee
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Date Joined Aug 2009
Total Posts : 43
   Posted 9/15/2010 9:04 PM (GMT -7)   
Raynaud's can be a huge issue if you let it become one. Fingers/toes can fall off. If you're still unconvinced, look up pictures of cases on Google Image.

My fingers get really crazy in cold weather. I've been told to keep them covered in any temperature situation less than 50 degrees... I would assume that would be the same for toes, too.

Do your toes tingle at all? Lose feeling?
23 years old w/ sle, sjogren's, raynaud's, pernio
meds: plaquenil, prednisone, nifedipine, pentoxifylline, paroxetine, zolpidem
supplements: iron, vitamin D, omega-3, biotin
starting methotrexate 4/14... wish me luck!

Catlady3
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Date Joined Aug 2010
Total Posts : 55
   Posted 9/16/2010 9:13 PM (GMT -7)   
I've had Raynaud's since I was a child but never realized this was not "normal". All my sisters had the same problem so didn't realize until about 10 years ago and my Dr noted my purple hands and feet that this is a concern. I went to a podiatrist for a different issue and he tried to put me on a medication that would increase circulation(Nifedipine), unfortunately, it also gives me migraine headaches. I was diagnosed with UCTD up until 2005 when I started having seizures and after many tests and a lumbar puncture, was diagnosed with lupus of the brain. Raynaud's, I was told is one of the diseases lupus patients also can have. I don't like taking so many medications - I currently take about 12 - so I choose to keep my hands and feet constantly warm. Unfortunately it's worsening and I get cold so easily, I can hardly stand to be in air conditioning. I can't wear summer sandals - even my feet get cold in tennis shoes. My hands and feet turn different colors constantly. I'm 51 and have been living with Raynaud's all my life as long as I can remember. I wish you luck with this - would like to say it gets better but for me it's not.

louise47
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Date Joined Feb 2010
Total Posts : 138
   Posted 9/17/2010 12:42 AM (GMT -7)   
 I am so sorry to hear that. I still havn't been back to the Doc. It seems like every month I have more symptoms. My feet have been freezing since I started getting sick about a year and a hlaf ago. No matter what I do. I have a heating pad at my feet at night. Sometimes my feet even sweat cause I have them so bundled but they are still cold. My hands are fine so far. My nose gets cold a lot but havn't noticed it turning colors. I started swimming this week I went twice. They have a theropy pool thats great! I really think that it helped with my circulation. The first night I went my feet were warm all night I was shocked. I'm going to keep going twice a week. I have Fibro too and I havn't any pain in days since I started. I really hope that's what's helping. That and prayer. prayin for all of you too.
 
                                                                            Gwen

Ellie27
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Date Joined Oct 2008
Total Posts : 119
   Posted 9/18/2010 12:30 PM (GMT -7)   
Hi :) I haven't signed onto the forum in ages it seems. But I looked at your post, because it caught my eye. Last winter was the first one that I discovered that I have raynaud's in my feet. I have had it in my hands for a few years now. I had been told, upon examination by my Rheumatologist that I had it in my feet. I was sitting in the exam room with a gown on, and bare feet. He noted how red my feet were. They were soooooo cold to the touch. That being said, for me it took a few months to grasp the seriousness of it. I found that I would be just freezing inside my apartment. I'd bundle up, and all it took was a drink of tap water, or a lukewarm beverage to make me shiver. I couldn't seem to warm up. I didn't know why. Weeks later, I started having a "pain" on the bottom of my toe. It felt like I was walking around on a bad blister. Naturally I looked at my toe to see what was up. I noticed a small spot, black in color, about the size of a piece of pearl barley. It was VERY painful. I went and got it looked at by my GP. She told me that I had burst a blood vessel (vasculitus). It's the raynauds that can cause that if you don't keep your feet always warm. It can get very serious. She advised me to by warm 100% wool socks, and look into super warm foot wear. I can't wear just your average winter shoes. I went out and bought a pair of lined boots, good for up to -30 degrees celcius. Even , sometimes my feet get cold. In the apartment, during the winter, I MUST wear wool socks, and lined warm boot slippers..or else my body gets really cold. A trick that I've used last winter (and plan on this winter) is to warm my feet and stimulate circulation by giving them a warm water soak in the tub a few times throughout the day. Just in a few inches of water...doing that seems to help prevent the athletes foot from coming. I've found that my feet can get clammy too, with all the warm socks, etc...but without them, my feet can't seem to hold any warmth..that becomes dangerous. It's not that they sweat so much from being too hot... clammy is a good word though. I hope that helps some. It's only my second winter like this, so I'm hoping to use what I've learned, through trial and error last winter, and gain some more experience through listening to others, and from just living with it I guess. I'm sure you'll find your own way, as I did. Best of care for you.

-Ellie

louise47
Regular Member


Date Joined Feb 2010
Total Posts : 138
   Posted 9/18/2010 8:30 PM (GMT -7)   
I apreciate all of your input.
Cymbalta,tramadol,tylonol 4, nexium,verapamil,325 mils of asprin,multi vit,duloxetine hcl,vit D,vit b-6, and simvastatin

High blood pressure,high cholesterol, Carpel tunnel synd,acid reflux,insomnia,fibromialgia, High ANA possibliy Lupus ( no diagnoses) Vitamin D defficient, arthritis in most of my joints.

Catlady3
Regular Member


Date Joined Aug 2010
Total Posts : 55
   Posted 9/19/2010 4:34 PM (GMT -7)   
Louise - there are also some very knowledgeable people on the GERD site as well - I just recently had surgery for the acid reflux as it got so bad- I wish you luck with the Raynaud's I know I'm going to mention mine to my rheumatologist when I see her - I just dread winter coming even though I've struggled during the summer too with the AC.

Catlady3
Regular Member


Date Joined Aug 2010
Total Posts : 55
   Posted 9/20/2010 9:10 PM (GMT -7)   
Does anyone have suggestions other than gloves, socks etc for increasing circulation when you have this disease? It's extremely frustrating and would like to be able to find a treatment that helps increase circulations.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 9/21/2010 9:14 AM (GMT -7)   
You might try placing your feet in a warm (or hot) water bath, that generally increases circulation. So does elevating your feet over your heart, or mild exercise.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Catlady3
Regular Member


Date Joined Aug 2010
Total Posts : 55
   Posted 9/21/2010 10:10 PM (GMT -7)   
Thanks - I do try walking alot plus my hand Dr suggested a hot wax bath for my hands as I have bad arthritis in my hands - It feels absolutely wonderful - I do tend to go towards heat as much as possible. I live in Colo and our seasons are already changing and it's already getting too cold at night for me. I'm going to see if my rheumatologist has any other options as I'm totally dreading winter. We have a wonderful deep bathtub and I use it constantly in winter but I'm already wanting to use it. Can't yet as just had acid reflux surgery and can't submerge the incisions yet. Thanks for the suggestions.

louise47
Regular Member


Date Joined Feb 2010
Total Posts : 138
   Posted 9/24/2010 1:54 AM (GMT -7)   
It's funny my feet are always freezin but the last 2 days they are warm but burning on the bottem and beat red. wish theyd make up thier minds. I use a heating pad in my bed at the bottom every night. It shuts off after so long on it's own.
Cymbalta,tramadol,tylonol 4, nexium,verapamil,325 mils of asprin,multi vit,duloxetine hcl,vit D,vit b-6, and simvastatin

High blood pressure,high cholesterol, Carpel tunnel synd,acid reflux,insomnia,fibromialgia, High ANA possibliy Lupus ( no diagnoses) Vitamin D defficient, arthritis in most of my joints.
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