More confused then ever after seeing DR. Is this normal?

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LAWCHICK
Regular Member


Date Joined Jul 2010
Total Posts : 468
   Posted 9/15/2010 7:15 AM (GMT -7)   

Hi everybody, I am sorry about all of my post regarding my situation but I am just really confused  I went to see my DR yesterday to find out what I should do as my lymes treatment did nothing to help me. My DR told me at my appointment that he felt as though I did not actually have lymes, he said that the 21 days of doxy should be

sufficient and that if I had lymes I would have had improvement. He told me the next step of treatment would be IV antibiotic treatment but he feels I do not need it and told me he is sure I do not have lymes.

 

Ok so I asked him if I had it for many years maybe 21 days is not enough treatment he then told me that I do not have symptoms of long term lymes so this is not the case. Well I then asked him about the purple lupus elephant that has been in the room of every DR appointment I have ever been to dating back to 4 years ago. He said that he thinks I may have a mild form of lupus since I am not too sick ( I actually do feel tired and have pain throughout my body everyday but tend not to show it). He said he will order another ANA test and go from there, I have to wait however another 4 weeks for my blood test because I am not yet done with my vitamin D deficiency  treatment. He mentioned treating me with plaquil (spelling?).

 

At the end of the conversation I asked him what is wrong. He said quote "it can be lupus" "it can be growing pain" by the way I am 24 years old and have been done growing for years, plus I doubt all this pain and fatigue is from growing pains and then he said "or it can be a little bit of everything", yeah I do not even know where to begin with that one. He then looked at me and said hey at least its not fibromyalgia.

 

So I am just wondering is it normal to feel this confused after seeing your Dr. I mean a few times he looked at me and said well I dont know what is going on. If I don’t get real answers at my next appointment in a month I am  honestly going to give up like I did a few years ago and never go to a Dr again.

 

I just want to be ok. I am thinking about going back to school in spring to become a psychologist (I need 5 more years before I can be licensed to practice. I just don’t want my health  to get in the way, it makes me nervous.

 

 

Post Edited (LAWCHICK) : 9/15/2010 8:34:16 AM (GMT-6)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 9/15/2010 8:59 AM (GMT -7)   
Is this Dr a rheumotologist? He doesn't sound very helpful in any case and you might consider getting a second opinion.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

DMF
New Member


Date Joined Sep 2010
Total Posts : 17
   Posted 9/15/2010 10:13 AM (GMT -7)   
I would definitly recommend a new doctor, he seems as if he treats things like they're trivial. I can sure see how you'd be confused, i would think some annoyance would be in order also.

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 9/15/2010 10:19 AM (GMT -7)   
I would run fast and far from this doctor and see 2 specialists 1 in lupus and 1 in lymes. I would also find a new pcp just simply because this guy sounds like he could care less what is happening with you. I have NEVER heard of waiting for vitamin D treatment to test ANA levels.

If it walks like a duck and talks like a duck then it must be a duck and what do ducks say? (trying to add some humor to the situation)

But seriously time to FIRE the doctor.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Vicodine when things get too bad, prednisone again, various vitamin/mineral supplements, cozar, duragesic patches
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

LAWCHICK
Regular Member


Date Joined Jul 2010
Total Posts : 468
   Posted 9/15/2010 10:29 AM (GMT -7)   

Thank you all for your replies. The thing is that he is a Rheumy and he is actually a Lupus specialist, that is why I am so confused by his answers. Red Rose I think he is waiting to check my blood because he wants me to finish the vitamin D treatment so that he can run all the testing in one shot. He did recommend I start taking moltrin but my pains are so random throughout the day I don’t know if that would help or not. I am so afraid of medication and needles and going to dr's a lot of it stems from when I was very sick when I was a kid with a blood disease and almost died.  I spent so much time in the hospital I had to be held back a grade in school. Anyways I guess I should start looking for a new doc.

Post Edited (LAWCHICK) : 9/15/2010 11:38:27 AM (GMT-6)


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 9/16/2010 9:14 AM (GMT -7)   
Hi Lawchick,

I see from your profile that you are a New Yorker.....are you actually in NYC? If so, please email me privately and I can give you the name of an LLMD that I know of in the city. He's one of the top LLMDs on the East Coast, I believe. I have a friend who lives in the Midwest who flies out to see him; he's been her doctor for a while now. She has very good things to say about him.

Take care,
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Mepron, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

autoimmunediseasesgfliving.blogspot.com

LAWCHICK
Regular Member


Date Joined Jul 2010
Total Posts : 468
   Posted 9/16/2010 4:01 PM (GMT -7)   
Hi Nasalady,

I recently relocated (starting to regret it) but I am only a short ride away from the city. That would be great if you can give me the docs information. I am actually going to be spending time in manhattan next month.

sonyalee
Regular Member


Date Joined Sep 2010
Total Posts : 51
   Posted 9/16/2010 8:33 PM (GMT -7)   
Hi Lawchick. sorry to hear about your pain. The doctors had tested me for 10 years for lupus and it was always negative until I have a very bad flare and then they finally got the confirmation in my blood work. I would definately get a second opinion. Don't give up even though I know sometimes it seems like a dead end but eventually it will show itself. Hang in there and please let us know what you find out.

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 9/16/2010 9:58 PM (GMT -7)   
LAWCHICK said...
Hi Nasalady,

I recently relocated (starting to regret it) but I am only a short ride away from the city. That would be great if you can give me the docs information. I am actually going to be spending time in manhattan next month.


Well, in the Lyme forum we're not supposed to post Lyme doctors names because so many of them have been persecuted (and prosecuted!) for treating patients with long-term illnesses. If you click on the little envelope icon under my name on the left panel, it will let you send me a private email...I'd be happy to give you his name and contact info!
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Mepron, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

autoimmunediseasesgfliving.blogspot.com

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 9/17/2010 1:15 PM (GMT -7)   
LawChick,

Here is the website that will help you locate this doctor....since he advertises himself on the Internet, <clip>

Good luck with everything!! Please keep us posted!
JoAnn

<Sorry, links to individual dr sites are not permitted. we can't comment good or bad on any individual dr - y'all need to catch up by email thanks>

Post Edited By Moderator (Lynnwood) : 9/17/2010 3:10:42 PM (GMT-6)

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