Malar rashes and how long do they last?

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Bumble30
New Member


Date Joined Oct 2010
Total Posts : 16
   Posted 10/20/2010 10:20 PM (GMT -7)   
I have not been diagnosed with anything as of yet, but my doctor is very sure I have lupus. For the last few years I have been going through these strange episodes where I feel pretty bad. My joints will ache and I become weak.. These issues are worse when I ovulate and with PMS. At this time I will get the rash and red botches on my face. The rash will get hot sometimes. I also get it on my left ear consistently. The rash comes mostly at night, if I am tired or stressed. If I spend time in the sun I will get the rash and for a few days I am sore and weaker. Even mentally I am weaker and slower. During these times I do not always have the rash. It comes and goes but mostly comes and goes. It can last for a few hours at a time and then settle or it can last for a few days.

After one of these episodes I can go months without having any issues. Then one day out of the blue it all comes screaming back like waking up from a nice dream into a nightmare.

So my question is about the rash. Can a lupus rash only last for a few hours at a time during a flare up? My flare ups can last a month or more, but I do not have the rash all day everyday. They are also not always as severe as other times. Sometimes it not terrible while other times my face will burn and if I have for a while my skin will actually get flaky where I had the rash..

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/25/2010 12:11 AM (GMT -7)   
Hey bumble one thing I figured out about lupus is this. It is gonna do what it is gonna do! Not everyone even gets rashes. most people will get them at least one time about only about 60% get them often. I get little red freckles that never seem to go away. they have slowly become more of them but I could still count them. they are like litle red freckles. I have cervical cancer at 26 so I never had the lupus flare that coincided with my period. But I have red on here many women do tend to notice it worse about that time. I think you would tend to break out more when you have tired symptoms your body wouldn't be able to battle back as easily.I hope you get some answers soon and get something to help your pain.
blessings
carol
furosemide,spironel,lisinopril,lortab,azithromyazin,detrol.nexium,temazepam,predisone,plaquenil,propanalol
citracal,pottasium,vitB12 ,iron,xopenex,advair,spirivia,soma,b12 shots,Vitamin D, cybalta
Dx lupus, scleroderma, pos. fibro, high bp COPD, need left lung transplant. cervical cancer survivor, osteoporsis, Jesus is a friend of mine.
"We come into this world crying while all around us are smiling. May we so live that we go out of this world smiling while everybody around us is weeping."

Bumble30
New Member


Date Joined Oct 2010
Total Posts : 16
   Posted 11/3/2010 11:06 PM (GMT -7)   
Thank you Okie. I feel like I am a complete psycho right now. As of right now I feel fine. Like nothing is wrong with me, but I know it will not last. In a few weeks I will be back to feeling terrible I wish I could feel this good all of the time.

Post Edited (Bumble30) : 11/3/2010 11:12:42 PM (GMT-6)


pugpuppy
Regular Member


Date Joined Nov 2010
Total Posts : 68
   Posted 11/3/2010 11:30 PM (GMT -7)   
Hi Bumble, I have found that happens to me and when it gets bad for me that is what they call a flare the wolf).
You are not phycho, I thaught the same thing but....your not.
Do you have alot of pain? do thet have you on meds?

Bumble30
New Member


Date Joined Oct 2010
Total Posts : 16
   Posted 11/4/2010 10:50 AM (GMT -7)   
I am still waiting on my diagnosis. As of right no I live on ibuprofen. I was supposed to see the ENT and get the lupus test today, but the doctor canceled again. I am writing in a complaint because this is the second time. I went to see an urgent care doctor and he was really good and he told me I was positive for strep. Funny thing is I feel great even with my strep. Step does not even come close to what i feel like when I am having an episode. My strep has given me a bit of a rash on my arms or something. I do not usually get a rash on my arms so I am thinking it is due to my strep.

Post Edited (Bumble30) : 11/4/2010 10:53:49 AM (GMT-6)


pugpuppy
Regular Member


Date Joined Nov 2010
Total Posts : 68
   Posted 11/4/2010 11:11 AM (GMT -7)   
can you go to another Dr.? I hope that you can get in soon and find out what is wrong, I know the pain can be so bad. So my prayers are with you. Have you tried accupuncture (not sure of the spelling) I did that when I didn't have meds and still do at times and it is wonderful I went in for one of my appmts. and could hardle walk and came out feeling no pain, could walk and went home and slept like a baby for hrs. it was wonderful.
waves of hugs

Bumble30
New Member


Date Joined Oct 2010
Total Posts : 16
   Posted 11/4/2010 11:37 AM (GMT -7)   
A coworker suggested acupuncture so I will look into that. Thanks:)

kimberlyrenee
Regular Member


Date Joined Aug 2009
Total Posts : 43
   Posted 11/4/2010 3:42 PM (GMT -7)   
my rash comes and goes depending on how stressed I am, the weather, my mood, how much sleep I got, how well I've eaten, exposure to the sun, anytime I exert myself physically, ETC ETC ETC

in other words... everything, all the time coming and going
23 years old. SLE, Sjogren's, Raynaud's, discoid and pernio lupus

plaquenil (400mg), prednisone (10mg), pentoxifylline (400mg), methotrexate (7cc injection/week), folic acid (2mg), lexapro (20mg), zolpidem (10mg), topimax

supplements: iron, vitamins D and C, omega-3, biotin, green tea

pugpuppy
Regular Member


Date Joined Nov 2010
Total Posts : 68
   Posted 11/4/2010 10:47 PM (GMT -7)   
I get it on my face and it itches and its warm, and with me it depends on stress,sun,flare etc. I do know it sucks! Well I am not on all of the meds that others are on i am on the Vit. D and should probably get myself on more suplaments and bad me I need to quit smoken for sure!

MV_VHYC24
Regular Member


Date Joined Oct 2010
Total Posts : 28
   Posted 11/4/2010 11:23 PM (GMT -7)   
I have a constant red face, it gets redder in the sun, have stress, and during many hot flashes (very tired of sweating through all my clothes), even my wedding photo looks like I spent two weeks in the sun! I avoid red or pink cause it just makes it worse. I have been told it was rosacea, but it does not respond to the treatment nor does it look like it other than the color. My red face is really more color than blemishes or rash; however it does cover my nose & cheeks only. I've had what has been thought of is psorasis, but the rash is circular and bleeds and usually crusts over several times until it finally goes away! Does anyone else have a rash that acts the same? My doctor is thinking I have Lupus (in addition to everything else) as I have been ill for 8 weeks and my immune system doesn't seems to want to fight any of viral infections my children kepp bringing home.
Dx:Fibromyalgia, Hashimoto's, Sjogren syndrome, +ANA (Speckled), Spondylolisthesis, Scoliosis, Migraines, Anxiety/Depression, Ovarian Cysts, Spinal stenosis, L4/5 herniated discs, Sexual Dysfunction
Meds:Cymbalta, Zanaflex, Synthyriod, MS Contin, Savella, Advair

**Children seldom misquote you. They more often repeat word for word what you shouldn't have **

pugpuppy
Regular Member


Date Joined Nov 2010
Total Posts : 68
   Posted 11/5/2010 11:41 AM (GMT -7)   
i guess I should say after reading my last post that I am on meds just not as many as others plus the vit. d, there now I feel better I guess i should read my post befor I post it LOL.
I to have the same problem with my face it is always there and it redder in the sun,stress, flares, ecs.
I think that I sweat alot because of the Pred. maybe I am wrong but I get real tired of it for sure. i guess I never thaught about red and pink I held up those two colors just now and wow, i won't be wearing them anymore!!! thanks for the tip!!!

I think the one thing I hate the most even over the pain is not being able to remember anything!! I can go from one end of the house to the other on a mision to get or do something and when I get to the other end I don't remember what the heck I was going to do or go after so i have to think about it. I am told its the lupus others say the meds. who knows it just sucks.

Hope you have a great day
waves of hugs
Pugpuppy

zolgher
New Member


Date Joined Nov 2010
Total Posts : 11
   Posted 11/16/2010 7:17 AM (GMT -7)   
Your rash sounds just like mine does what it likes whenever it wants to and no you're not mad but it is hard to understand how things can change so quickly. Find a good gp and keep well

Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 11/18/2010 4:25 PM (GMT -7)   
You are lucky you even have periods of remission! Ever since things really kicked in after I gave birth to my son in 2007, I have never had any remission..yes there are time periods where its lessened but never totally gone. I didnt know what normal felt like until I got pregnant with my daughter back in December of 2009. Even at first it wasn't gone. Not until the 4th month or so. She is now 2 months old and my lupus is coming back...Gotta love it. I get the exact same rash on my nose/cheeks, ears, chest & arms. It is like sunburn only feels deeper beneath the skin and yes it does burn! I am also allergic to sunscreens and they make it worse...so I just have to deal with it as I am highly sensitive to the sun, flourescent lights and even computer screens. Hope you get help soon! I live in a small town and had to travel 3 hrs away(not counting traffic)to even get help with a diagnosis because no dr around here would agree there was even something wrong with me! Now im being evaluated for IBD as well. Keep us posted! *hugs* -Lupie Britt

slm6
Regular Member


Date Joined Aug 2010
Total Posts : 50
   Posted 11/24/2010 5:13 AM (GMT -7)   
Bumble 30, that sounds so similar to myself. I was diagnosed about 6 months ago and the rash comes and goes along with the flareups. I get Hives on my ears often too. I am photosensitive and the pain and rashes come with the sun!! Fun Fun!! I've also had illnesses and not known I've had them because of all the other weird things going on with the Lupus.It is so easy to confuse the aches and pains!! I have also not gone into a remission in over 2 years. Be patient and be strong It has taken me years and a lot of misdiagnosis'. Still working on a medicine that will ease the pain! I was diagnosed with epilepsy 20 years ago and it is the kind that fogs your brain. It can be frustrating at times. Just keep plugging away for answers and keep positive!!

Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 11/29/2010 12:40 PM (GMT -7)   
I was diagnosed with Epilepsy(grand mal seizures)back in 2003 and we still dont know if theyre connected to my Lupus or not....drs wont listen enough to really try and figure out the symptoms so idk....ehh
*Lupie Britt*- Epilepsy Dx: 2003 & SLE Dx: 2009-Expecting Baby # 2! :)-Current Meds:Plaquenil-200mg 2x/day, Keppra-500mg 2x/day, Prenatal Vitamin- 1 pill/day, Folic Acid- 1mg 1x/day
*Due September 25th 2010*
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