Scalp injections for Alopecia Areata

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 118
   Posted 11/4/2010 9:28 PM (GMT -7)   
Hi everyone:)

I have been working with my dermatologist for almost a year now trying to get my hair to regrow. Thank the Lord there has been regrowth of about 3 inches now after trying three different creams on the top of my head. However, in the middle of treating that another patch appeared on the back of my scalp. It has now been treated with 3-4 different creams, and combinations thereof to no success. There is no regrowth. I was told by my dermatologist that the patch on the top of my head would grow faster if my lupus meds are increased a bit and that it's not alopecia, but that the patch on the back of my head is caused by alopecia. Weird! I had no idea that you could have two different hair loss causes on the same head. I tell you, I ended up leaving the building laughing out loud to myself.

What the end result of that appointment is is that it's time to try scalp injections in two weeks. Has anyone else been given scalp injections? If so, what was your experience like? I am only slightly nervous about the needles...more nervous about having yet more drugs in my body. I'm on plaquenil and imuran daily. I don't really like the idea of injecting cortecosteriods into my scalp...but I want my hair back at the same time. So, any advice, experiences shared with me would be really appreciated.

Did it hurt much for you? Were there noticeable side effects? How long did it take before you noticed any regrowth? or did you notice any regrowth? I know, a lot of questions here...it's just such a weird idea for me..

-Ellie
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops

Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Imuran, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.

kimberlyrenee
Regular Member


Date Joined Aug 2009
Total Posts : 43
   Posted 11/4/2010 9:52 PM (GMT -7)   
hi Ellie,

I have had two rounds of the steroid injections in my scalp for hair loss caused by "both" alopecia and lupus. The first time I lost my hair, most of it fell out on top and sides (like an old man balding, horrible) and it wasn't growing back at all in those places until I had the shots. The hair started to grow immediately in those places where previously there hadn't been any sign of life. The second time I had the shots was just for the side of my head over my ear... those shots hurt more (on the side) but overall they weren't bad. Nothing worse than getting stuck for blood. Small sharp pricks but over quickly and instant results for me, both times.

Didn't notice any negative effects. I had more energy the day of the shots and then a bit of a crash in days afterwards.

They are expensive but my insurance paid for most of it. More than 20 the first time and 5 the second (they charge by the number of injections).

So... do it! Good luck to you.

xox
24 years old. SLE, Sjogren's, Raynaud's, discoid and pernio lupus

plaquenil (400mg), prednisone (7.5mg), pentoxifylline (400mg), lexapro (20mg), zolpidem (10mg), topimax

supplements: iron, vitamin D and E, omega-3, biotin, green tea

Ellie27
Regular Member


Date Joined Oct 2008
Total Posts : 118
   Posted 11/7/2010 9:11 AM (GMT -7)   
Thank-you Kimberlyrenee for sharing your experience with me:) I hope that I have a similar response to the injections as you have (minus the pain of course). You raised a good point about expense though. I need to phone my dermatologist on Mon morning to find out if it's going to cost me anything. I live in Canada and it's a little different here. Most things are covered in the medical to some extent, but who knows, maybe this will cost me..hmmm...I will ask.

I did see my rheumatologist on Fri as well, and mentioned to him about the injections and my dermatologists opinion as to having two different types of hairloss. The end result is that he's upped my dose of Imuran to 150mg p/day and he agrees that that should speed up the growth of the hair on the top of my head. He doesn't however agree about the steriod injections..he thinks that my lupus is well under control with the meds, but that the skin part of the disease is separating from the rest of the symptoms..he believes that it will require a new daily medicine to get improve the discoid rash on my hands and my hair loss and wants to hear from me in 2 months. Also I might be referred to a dermatologist-rheumatologist (didn't know there were such specialists out there) who can deal with both the lupus and skin elements at the same time. I just want it to work, but also am in a frustrated state of having so many perscription drugs in my system. I don't like it at all..makes me nervous all these drugs..I often think, what could this doing to me? I'm sure I must not be the only one. Sometimes I feel like I'm playing with fire..do I take it, or don't I.

All I know right now (health wise) is that the alopecia on the back of my head is getting worse..pretty soon it'll be either sot works, or possible within a couple months I'm looking at buying a wig or something. I have lots of nice hats..well a few and am looking at buying a hat rack to nicely display o. I've gotta work with what I got. I know that hair loss is not as critical a problem, but for some reason I find that it's harder emotionally for me than some more serious symptoms. Am I that vain? I think sometimes I just get tired is all...I tough and tough and tough it out, and sometimes (like now) it gets the best of me..I try and have fun with the new things to try, but I get frustrated too. Sometimes I just want to wear my hair half up or in a pony tail and not worry about a big bald patch on the back of my head showing or the hairs growing on the top of my head sticking up three inches..ya know? I'm sure that others on this site can empathize..

Anyways, thanks for listening (or rather reading everyone). I'm going to go for a lovely cool, brisk morning walk and enjoy the day. It's very early. I wish you all well.
It is God that gives me the strength to carry on in the valleys of life and the wings to fly to the mountain tops

Dx: Diagnosed with Epilepsy Jan 2005, SLE July 2007, since then, Raynauds, Alopetia Areta, Vasculitis, discoid lesions, Endemetriosis March 2008. Meds: Tegretol, Imuran, Plaquenil, quite often Flurbiprofen and Rabeprezole, as well as various other supplements/vitamins.

anna24
Regular Member


Date Joined May 2009
Total Posts : 27
   Posted 11/7/2010 12:20 PM (GMT -7)   
Hi Ellie - although I don't have your scalp condition, I can relate to the hair loss. Mine began gradually several years ago.
Whether it is due to the meds or lupus or a combination of both, I don't know. But, as you said, it is especially hard
when you used to have a full, thick head of hair. And like you, I wondered, am I really that vain? Recently I went
to a hair stylist and had hair extensions weaved in. Has made all the difference and I feel so much better about
myself. They were pricey but worth it for me.
SLE, vasculitis, nephritis, cellcept, prednisone, plaquenil, & the usual supplements

kimberlyrenee
Regular Member


Date Joined Aug 2009
Total Posts : 43
   Posted 8/9/2011 10:08 PM (GMT -7)   
can you get extensions when there isn't much hair? how does it work, to attach? is there a risk of the hair that the extensions are attached to falling out?

has anyone tried Rogaine for alopecia?

I've done the steroid injections and still my hair is falling out although I have very few other symptoms. SO FRUSTRATING

I did recently taper down from 60 mg Prednisone, but over many weeks. now I'm at 9 mg and still tapering by 1 mg/week.

I wear hats to cover up the hair loss and the most recent patches are right along where the hats hit my head, so maybe they are rubbing and caused the hair to fall out? but there's no visible irritation (no rash like there has been before, or itching, etc.) so I don't know if I should stop wearing the hats... I don't really have many other options at this point though.

thanks for any help

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12552
   Posted 8/10/2011 5:33 PM (GMT -7)   
My niece wears extentions. She's had two different kinds of extentions: one with little combs and the other with little clips.
Have you discussed options with your hairdresser?
Joy

kimberlyrenee
Regular Member


Date Joined Aug 2009
Total Posts : 43
   Posted 8/11/2011 2:58 PM (GMT -7)   
I don't have a hairdresser... haven't needed one in a long time because I just put on a hat every day.

the kind of extensions I'm talking about are the ones Anna mentioned above, that you get woven in. more permanent
24 years old. SLE, Sjogren's, Raynaud's, pernio, alopecia areata

benlysta, plaquenil, prednisone, pentoxifylline, lexapro, zolpidem, topamax

Lologirl
New Member


Date Joined Aug 2011
Total Posts : 1
   Posted 9/19/2011 1:19 PM (GMT -7)   
Hi Kimberlyrenee,
I am new to this forum, I saw your question and thought to share my thoughts with you.I think the hair extention that is been woven in you can get done in an afro-carribean hair salon. I think it also depends on your hair texture as well. You can give it a trial and see what they say. I hope this helps.
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, November 27, 2014 5:01 PM (GMT -7)
There are a total of 2,279,566 posts in 253,360 threads.
View Active Threads


Who's Online
This forum has 158736 registered members. Please welcome our newest member, GERDShooter.
277 Guest(s), 14 Registered Member(s) are currently online.  Details
Rrakkma, rowingmom, epiq12, imagardener2, Ravineman430, creed_three, 4yearsofAnxiety, themiz, Flametiger, FlossieUK, Bane, Redwing57, Mister Mike, Buddy Blank


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer