does anyone know how to get rid of moon face from predisone??

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daniJav
Regular Member


Date Joined Jan 2010
Total Posts : 82
   Posted 12/3/2010 5:17 PM (GMT -7)   
I was on steroids for a few months and I have a terrible moon face and I can not stand it!! How long does it take to go away and can I speed up the process in any way?!
Dani,
SLE (lupus), Fibromyalgia, and a solitary kidney
Neurontin 600mg x2 3 times a day, Plaqunil 200mg x2 a day B-12, Omega 3 fish oil.

anna24
Regular Member


Date Joined May 2009
Total Posts : 27
   Posted 12/3/2010 5:22 PM (GMT -7)   
Dani - I know how you feel. It took about 3 months for mine to go down. I don't know of anything
to speed it up. Perhaps someone else here will have a suggestion.
SLE, vasculitis, nephritis, cellcept, prednisone, plaquenil, & the usual supplements

daniJav
Regular Member


Date Joined Jan 2010
Total Posts : 82
   Posted 12/3/2010 5:30 PM (GMT -7)   
I am someone who takes a lot of pride in her appearance and this is driving me nuts. I have a oval face so seeing this chipmunk face in the mirror makes me wana cry. I dont even want to leave the house in case I run into someone I know. My doctor said that I look like a umpa lumpa :'(
Dani,
SLE (lupus), Fibromyalgia, and a solitary kidney
Neurontin 600mg x2 3 times a day, Plaqunil 200mg x2 a day B-12, Omega 3 fish oil.

kharma
New Member


Date Joined Nov 2010
Total Posts : 10
   Posted 12/3/2010 5:51 PM (GMT -7)   
Nice doctor! I totally know how terrible this is! I was on prednisone for years (all different doses..mostly high) I had a terrible moon face. Even when my body thinned out I had it. I am still on prednisone but its every other day and only 5mg. It has finally gone down and everyone tells me I look normal again, but I don't know if its because I had it so long but I don't feel the same as I did. I remember it taking months after we lowered my dose but it happened so gradually it was hard to say.

i wish there was something for it, I assume that because you were only on it a couple of months it was a pretty high dose to have caused it to be that noticeable. I remember the moon face coming on kind of gradually when I first started prednisone(I think I started at 60mg after being diagnosed) and it took a few good months to get really bad.

It won't be long and it will feel doubly better when you get all those compliments from everyone AND you will appreciate your face so much more:)

Post Edited (kharma) : 12/3/2010 5:16:22 PM (GMT-7)


J.P.
Regular Member


Date Joined Oct 2010
Total Posts : 86
   Posted 12/3/2010 7:40 PM (GMT -7)   
It will go away, I know how much i hated it too( and the mustache). I remember my cousin laughing at me cause I looked so funny, which I thought was very rude. I don't remember how long it took to go away. I have an oval face also and while I had the moon face one guy actually said he liked the big cheeks, but I think maybe he was being nice. Oh yeah, my boyfriend dumped me because of my appearance, I almost forgot about that. It's funny how everyone remembers that as the time I was sick. I don't bother to explain I'm still sick just not taking prednisone right now.

pugpuppy
Regular Member


Date Joined Nov 2010
Total Posts : 68
   Posted 12/4/2010 2:08 AM (GMT -7)   
I was on pred. for a while, gained it fast all over, lost it slow. I do remember how my family said that they didn't think I got the moon face that bad. I am now back on it and then just got a big dose pre. surgery, wow i am ballooning like you wouldn't beleave but not hurting much in my joints!!!!! i have never been this big it sucks and don't want to go out eather.
I was real shocked the other day, I have to use a cane at times because my balence is messed up...whole other story but anyway I went into our little tore here in our little town have nown this lady forever and I saw her stare at me and she mumbled something to her co worker....well it is eather the weight or the cane i will probably never know but she then wouldn't even look at me and went to the back of the store.
I have to say that hurt alot, I have not gone back in there. if people only new how it hurts to stare and talk about others they wouldn't do it.
"Start every day off with a smile and get it over with." W.C. Fields

kharma
New Member


Date Joined Nov 2010
Total Posts : 10
   Posted 12/4/2010 10:39 AM (GMT -7)   
Oh JP...my boyfriend at the time dumped me too....he just couldn't handle it, he said..I went from being in my prime at 25 to having pretty much everything go wacky on my body, my immune system was going crazy and he didn't even stick around to see the worst of it! That may have been a good thing for me:) oh well have a terrific guy now...so in your face!

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1434
   Posted 12/4/2010 11:34 AM (GMT -7)   
I was on 60-80 mg for 2 years. During that last year I was on about 40 mg orally with weekly IV's of Solu-Medrol! Needless to say my face go so big all over. I could see my cheeks just looking straight ahead and also, since it got so big so quickly, I couldnt even see to shave my armpits!! Talk about a big face. LOL! My moon face has gone down a bit but nothing close to what it was. I went to a cousin's wedding a few weeks ago and noone recogized me until I smiled!! My own mother didnt recognize me at first either! I have the lovely buffalo hump with the moon face and also have those lovely stretch marks all over my body that is about 1 in thick all over! None of it has really gotten better but I guess once I get to stay on a lower dose, it will get better! I like to call myself a zebra cause that is what i remind myself of!!!

My doctor has told me that most of the time the moon face will go away but sometimes it will not! Just depends on the person!! Good luck :)
Amy
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Mobic, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram,

If God brings you to it, he will get you through it!!

J.P.
Regular Member


Date Joined Oct 2010
Total Posts : 86
   Posted 12/4/2010 11:38 AM (GMT -7)   
Pugpuppy,

That would've made me mad,too. I hope the side effects pass soon and you feel better.

Dani,


i hope you feel better, too. This stuff will pass.

J.P.
Regular Member


Date Joined Oct 2010
Total Posts : 86
   Posted 12/4/2010 12:19 PM (GMT -7)   
Hi Amy, didn't see your post because I was posting mine. I remember the buffalo hump, all that fluid retention hurts. hope you feel better. I think the moon face will go away but you probably meant when you have to stay on a low dose long term. I don't know much about that.

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1228
   Posted 12/4/2010 4:12 PM (GMT -7)   
Dani,
 
Moon face, pred belly, camel hump are all the result of prednisone changing where you store fat.  All are harmless and as you taper down or get off pred the effect goes away but it can take time.  It is a small price to pay for the beneficial effect of controlling your immune system.
 
It will go away in time and there is nothing you can do to speed it up that I know about.  It took several months for mine to go away once I hit about 15mg daily.
 
Bill

pugpuppy
Regular Member


Date Joined Nov 2010
Total Posts : 68
   Posted 12/7/2010 3:20 AM (GMT -7)   
Hi all I see you said something about the buffalo hump, what in the world is that?
"Start every day off with a smile and get it over with." W.C. Fields

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1434
   Posted 12/7/2010 5:07 AM (GMT -7)   
A buffalo hump is Accumulation of fat on the back of the neck!!
Amy
Kidney Diseases & Disorders and Lupus Moderater
Cyclosporine, Prednisone, Lisinopril, Mobic, Vitamin D 50,000 units
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram,

If God brings you to it, he will get you through it!!

pugpuppy
Regular Member


Date Joined Nov 2010
Total Posts : 68
   Posted 12/7/2010 11:14 AM (GMT -7)   
Oh great I would say I have it, just another fun thing that goes along with this wonderful gift we have been so blessed with!!!!!!!!!!
Well I just pray that my two beutiful girls don't get it and it stops with me.

My dads moms sisters both were sick one had MS the other LUPUS and my grandma died of cancer at 54. None of the kids are sick with any of those. I just have been wondering if my problems that I am going to go see the Nuero. for could be MS, I know I shouldn't worry and I have been told to stop looking so muck up on my comp. about my issues but I say why not I need to know what to look for and what I could be in for later on. I am in hopes that my isues do ot get any worse but we just don't know what Lups has in store for our future now dowe.

hugs to all
"Start every day off with a smile and get it over with." W.C. Fields

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5806
   Posted 12/7/2010 1:06 PM (GMT -7)   
Nothing really works but time, but here are some things that might help

- drink plenty of water everyday
- some sort of exercise everyday, even if it's just a 5 minute walk
- stay away from "white" carbs - breads, cakes, potatoes chips,
stick with vegetables instead

Mine wasn't all that bad, but did improve after I slowly weaned from 20 mg/daily to about 4mg daily -- taking about a month per mg drop.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

pugpuppy
Regular Member


Date Joined Nov 2010
Total Posts : 68
   Posted 12/9/2010 1:10 AM (GMT -7)   
Hi Lynnwood, I am exsited the Dr. just dropped mine down to 5 mg . per day today so happy. I have never been over 15 mg. I don't think I could handle more then that .
My hubby said I don't look bad he said I see myself different then others do, bless his heart hes wonderful to me, loves me so, I am blessed for sure;o)
"Start every day off with a smile and get it over with." W.C. Fields

J.P.
Regular Member


Date Joined Oct 2010
Total Posts : 86
   Posted 12/9/2010 2:15 AM (GMT -7)   
Wow, about the buffalo hump, I thought I had fluid or something building up in my back and shoulders... didn't know it was fat but that makes sense. I did gain about 40 or 50 pounds(can't remember for sure) but I do remember it hurt and was hard to move my shoulders and neck--and leg cramps one night that made me cry. I was taking 60mg a day at my highest dose and I took the pred for about 6 or 7 months. It's hard to remember, that was 11 years ago.

pugpuppy, i already said this but I'm glad your down to a lower dose and I hope you do ok on it, too.

pugpuppy
Regular Member


Date Joined Nov 2010
Total Posts : 68
   Posted 12/9/2010 12:17 PM (GMT -7)   
J.P., I hope it works to I am in hopes that I can loose a fue pounds so I will feel better about myself.
"Start every day off with a smile and get it over with." W.C. Fields

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1228
   Posted 12/9/2010 1:03 PM (GMT -7)   
Prednisone will change where you store fat in your body.  It will concentrate it in your belly, face and neck/back.  Everyone is a little different but I had a moon face and prednisone belly.  The moon face went away on its' own when my dosage was reduced from 60 to 20mg but it took several months.  The belly took a lot longer and was more a result of working out.  I am pushing 70 so losing belly fat is not particularly easy but it can be done.
 
This redistribution of fat is one of the more cosmetic side effects of pred but not one of the more serious or even life threatening ones that does happen occasionally.  The only serious effect I had was hypertension which started after about 10 months on pred....I am still fighting that 5 years later.  That is something to worry about not a moon face.
 
One of my granddaugthers (14) has ulcerative colitis and gets a very round moon face when she has to take pred.  At that age it is not fun but she has learned to cope with it pretty well and understands that pred saved her life and is keeping her awful disease in check when necessary.  Fortunately, she takes something else for a maintenance med.  We all need to remember the awful power and consequences of an unchecked case of lupus and having a cosmetic side effect is a small price to pay for good health...particularly since it is only transitory.
 
Bill

kiwivm
New Member


Date Joined Dec 2010
Total Posts : 2
   Posted 12/11/2010 1:16 PM (GMT -7)   
hi! the only thing that ever help me to dont get the moon face is staying away from salt , forget about carbonated drinks and try to drink as much water as you can,  i tried it once and it worked, but now when im with high doses of prednisone i dont care if i get fat because i know eventually i will look normal again, so dont get frustratet and desperate, when the medicine start to work the dr will decrease the dose and we can start to diet and exercise! cheer up!!
ps.- sorry for the english, im mexican!

DEN2010
New Member


Date Joined Dec 2010
Total Posts : 1
   Posted 12/21/2010 6:32 PM (GMT -7)   
Just to share my story.

My wife was diagnosed with APS in Oct when she got stroke and pulmonary embolism. Doctor(rheumatologist) gave her very high dose of steroid like 1g/day to keep my wife alive as her condition is critical. After that, they gave her IVIG for 5 days in total 2g/kg. After discharged from hospital, my wife is taking 40mg predisolone, 200mg plaquenil, 1000mg cellcept, 3mg warfarin, 75mg plavix daily. After 5 weeks, now my wife is taking 7.5mg predisolone, 400mg plaquenil, 2000mg cellcept, 4.5mg warfarin and 75mg plavix daily. Cellcept is for steroid sparing. At the end, we want to get rid of predisolone and stay with cellcept alone though cellcept is very expensive and some claim might cause skin cancer but doctor claim it has no side effect. But I don't understand why doctor prescribe plaquenil, according to him, it will help my wife to get full remission. I hope he is right. My wife condition is very good now with no pains or serious fatigue. She can walk, talk, cook but her hand still feel numb due to the stroke. I pray she will not get another flare up. We bet on 1g/day steroid and very expensive IVIG, they saved her. We bet on cellcept now. Hopefully in few years time doctor will find a way to completely cure my wife.

All these happens in 2 months time and I have spent more than my annual income in 2 months. I am thinking to buy insurance for myself as my wife quit her job now and I am the only bread maker now.

sonyalee
Regular Member


Date Joined Sep 2010
Total Posts : 51
   Posted 12/23/2010 12:29 AM (GMT -7)   
Wow, Den2010. I will pray for you and your wife. God Bless you for being such a wonderful support for her, even with all the stress. I am currently on cellcep also. was on 40 mg of prednisone a day. I am now down to 25 due to the cellcept. we are still reducing so I pray that the cellcept continues to work. Hopefully it will work for her also. Bless you both.
SLE, Discoid lupus, acute cutaneous, acute vasculitis and sjogrens

Prednisone, ultram, mobic, cellcept, plaquinel and ambien.

Jayslo
New Member


Date Joined Sep 2013
Total Posts : 2
   Posted 9/29/2013 10:56 AM (GMT -7)   
So glad I found this forum. I'm so upset with my moon face from months on prednisone. I a tapering off & down to 7.5mg per day. I feel awful & even my sinuses & nose are swollen & feel like they will close off at times. Especially hard to breath at night.
I hope you are all right about it going away. I hate looking in the mirror!
Thanks all for your input.

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1228
   Posted 9/29/2013 8:56 PM (GMT -7)   
Your moon face will go away on its' own.  Do not diet or limit your fluids in the meantime.  It is an annoying but completely harmless side effect of prednisone...changes where fat is deposited in your body to the face, neck/back, and belly.
 
Be patient and you will be just fine.
 
Bill

Jayslo
New Member


Date Joined Sep 2013
Total Posts : 2
   Posted 9/30/2013 5:56 AM (GMT -7)   
Thanks Bill. It's hard to believe it will go away but I appreciate the encouragement. It really means a lot.
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