I am new to this forum, and I will try to condense everything that I have been through regarding my "issue".
Four years ago I woke in the middle of the night with chest pain, it hurt too much to breathe! At the time I was 49 yrs old. I went by ambulance to the ER. Cardiac work-up, (showed normal), they did a cardiac cath anyway. Spent 2 wks in the hospital having tests and basically just pain management for what they called "plueritic pain".(IV narcotics). At the time I saw every specialist in the hospital. Rheumatologist said that I tested positive for Lupus, but re-did the bloodwork because it was "borderline". He confirmed at that time that it was Lupus and started treatment (Plaquenil, etc.). However, my Primary Dr said that he wasn't convinced that it was Lupus and he also diagnosed with Fibromyualgia.
Now, 4 years later; I have spent at least 5 weeks per year in the hospital for the same symptom (chest pain so intense that it's impossible to breathe). I have most symptoms of SLE, the only exception is the "butterfly rash", but intermittent rashes everywhere else! I realize that many of my symptoms could be attributed to Fibromyalgia, but my Rhuematologist still says Lupus and my Primary says no! I am so confused and frustrated. Of course it goes without saying that I don't want to have Lupus, but who do I believe? End result for me is obviously when I get a flare-up that I am treated and back on a somewhat road to recovery. I told my Dr's that I always feel like crap, it's only when I feel like death that I seek help LOL.
Well, now that I've given the long version of my condensed version (LOL), my question is, if not Lupus, could it be just Fibromyalgia? If so, is pleuritic pain such as mine common? What else could it be.....are my Dr's missing something???
Thanks for reading my 1st post!