Hello all! I'm new here. Just wanted to give a short version of my story and get some input. I am a 35 year old mother of 5 boys (yes 5!) I also work as a full time nurse, well for now I am on FMLA. Let me start with my symptoms which have been going on for about
the past 10 years.
Pain in hips.knees,ankles,wrists, fingers, and bottom of feet
Muscle cramps in legs and feet
Strange rash to both lower legs that come and go
Swelling every night in both my legs
Chronic sore throats
Sores in mouth, throat, and nose
Sore/swollen lymph nodes behind ears, down neck, under right arm, and groin/pubic area
Low grad fevers
Butterfly rash across face (not really a "rash" it's a flush that is hot to touch) on chest too comes and goes
High Blood Pressure
Nephritis, kidney pain, hematuria- often
Kidney stones- often
Kidney infections- often
Feeling very "flu like" very ill, like someone has sucked my life force out (for 3 months now)
Neck and back pain
"Foggy head" very forgetful and can not concentrate at all
Severe pneumonia 2 years ago
Very susceptible to chest colds since then.
Being a nurse this list screams Lupus to me. However my ANA was negative. Today at my Drs appt he diagnosis me with Pernicious Anemia and says I have to come in every week for a shot in the butt. No problem, makes since my Vit B12 is very low. I asked about
the other issues I'm having like with my kidneys, pain, rashes, hair loss, and all the other symptoms I've had forever. He tries to ignore me so I have to flat out ask if his diagnosis of Pernicious Anemia could explain all my other symptoms and he reluctantly said no and refused to sign my fmla letter. I asked for a referral to see a Rheumatologist and he reluctantly gave me one. This is a little ridiculous.
I may have PA but that did not cause all the other symptoms like hair loss, swollen lymph node, sore throats, sores in mouth, nose, and throat and the butterfly flush over my face and chest. I already have to have shots in my butt for the rest of my life. I'd like to save my kidneys and lungs before it's too late. What do you have to do to get a Lupus diagnosis! My ANA may say negative but my symptoms say positive to me!
Any input you have would be greatly appreciated. Im so sick of feeling like this