Hi there, I understand where you are coming from. My first reaction to this dz was denial. I had the flu or ...whatever I could muster up. HOWEVER once this dz begins affecting your kidneys or perhaps other vital organs, its really hard to stop it. Amy is right about what she says.
I would like to add that after 6+ yrs of this and debilitating pain that destroyed my career and left me bedridden for yrs, I did recently turn to Eastern Medicine practices...out of curiosity really....and there are several books written by a Dr. Sha that is a western trained MD as well as Eastern...and you know what? For the first time in nearly 7 yrs I am OFF pain meds, immune suppressants and on a tapering small dose of prednisone. I have realized that FOR ME ...I had it in me, that I was strong enough and educated enough (yes,..I am a medical professional - Pharm.D- though I offer no direct advice as per rules) to make decisions WITH the blessing of my MDs.
Ive been practicing Tai Chi, meditation and Dr. Sha's books ...and I am in complete remission for the first time ever. My message to you is to NOT give up hope, pray for your soul to heal yourself, have graditude for what health you DO have and have a partnership with your Physician. They are there to help us...yes...but sometimes we must help ourselves too.
Pain< esp chronic pain changes the way we reason, think, respond.
I decided 2 wks ago that I was going to make an...agreement with God (or the Divine, Allah, Powers that be..whatever you call what I call God) - I asked that God release me from the constant pain and misery NOT FOR ME ...but so that I might serve Him/humanity in whichever way necessary. I don't care anymore about material belongings, social status, etc.(not that i have in these last several yrs anyhow!) I am here to make the world a better place. I dont know what my mission is yet...but I have one< i do know this! And BOOM! I WAS released fro the pain. Coincidental? i dont believe so. It took me 7 yrs to get the BIG PICTURE. I hope it doesnt take you as long. Love and healing to you!
age 41, Mom of 2 great kids (10 & 8), Diagnosed in 2007
MCTD(LUPUS), RAYNAUDS, FIBROMYALGIA, L4L5 disc herniation, fracture in L3 fro EPIDURAL in childbirth
Meds: Prednisone, Nifedipine, estropipate, cyclobenzaprine, Cymbalta, sulfasalazine(on hold)gabapentin, hydrocod, fentanyl patch, methotrexate - MTX (on hold), clonaxepam (sleep), vit D, PRILOSEC, Vit B12 shots.