elevated muscle enzymes?

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kaitlynn elizabeth
New Member


Date Joined Mar 2012
Total Posts : 17
   Posted 11/3/2012 12:47 PM (GMT -6)   
My rheumy said that my muscle enzymes are elevated...
This rheumy doesnt think that I have lupus, which i have no idea why he thinks that as I have every symptoms; he says its beccause my ANA is only the lowest positive it can be and its probably a false-positive and we will retest. But every ANA level has come back slightly elevated.
Anyhow, he thinks I have sjogrens which is possible, I have to get a saliva gland biopsy, nervous about that. and he also said hes a little concerned as to why my muscle enzymes are elevated...we retested and he said if hes still concerned about it, ill have to have other tests and possibly a muscle biopsy =\ i think he said it could maybe be polymyositis or something auto immune related involving muscle inflammation and said it was pretty bad and id have to be on very heavy doses of immunosuppresants.
He said my enzymes were at 460 i think...is that really high or just a little higher than normal? Do I need to be concerned? I feel kind of left in the dark right now with all these tests and diagnoses up in the air =[

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12135
   Posted 11/3/2012 1:10 PM (GMT -6)   
((((((((((gentle hug))))))))))))))))

It's scary not knowing the answer and sitting in medical limbo.
I'm hoping that it's not as bad as you're imagining. Try to relax and not worry too much until your doctor finds the answers needed.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

kaitlynn elizabeth
New Member


Date Joined Mar 2012
Total Posts : 17
   Posted 11/3/2012 2:44 PM (GMT -6)   
Do you know what normal muscle enzymes are supposed to be?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12135
   Posted 11/3/2012 4:44 PM (GMT -6)   
No, but I'm sure you can find the answer on labsonline.com.

I did google high muscle emzymes. I wasn't sure if it could answer your question or just make you worry more. Sometimes too much info can scare you, because most of it is worse senerio.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1210
   Posted 11/9/2012 10:52 PM (GMT -6)   
Kaitlynn,
 
Assume you are referring to your cpk or ck number.  460 is elevated but not terribly high.  I have pm and mine was 13000 and I have talked to those who had 100-200,000.  Cpk is not a direct test for pm but it is an indication of inflammation in your muscles...spillage of creatine phosphokinase out of the cells.  This is a complex subject and diagnosis of myositis is made by clinical symptoms, labs, emg, mri, and often it takes a muscle biopsy to confirm the diagnosis.
 
If you have pm there is a distinct pattern of weakness..symmetrical, weakness around the hip and shoulder girdles.  The first signs are difficulty getting out of a chair, off the toilet, going up stairs, raising your arms above your head, and sometimes swallowing.
 
Like all AI diseases myositis can be mild to life threatening and every case is unique.  Prednisone is the 1st line of treatment but does not always work.  It is important to have a doc who is experienced treating AI diseases like lupus and myositis.
 
 
 
Let me know if you have more questions.  I have pm and lupus and had an extreme case but survived and have made a great recovery.
 
Bill
 
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