coconut oil..or no

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shoeless
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Date Joined Dec 2009
Total Posts : 130
   Posted 3/16/2013 1:59 PM (GMT -6)   
has anyone used coconut oil for lupus or oregano oil?im on plaquenil,so if it increases your immune system,isnt that a contradiction..?

couchtater
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Date Joined Jul 2009
Total Posts : 12286
   Posted 3/16/2013 2:19 PM (GMT -6)   
In my opinion, anything that boosts your immune system is bad for people with Lupus.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Bsime
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Date Joined Apr 2006
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   Posted 3/16/2013 3:23 PM (GMT 0)   
Anyone with an autoimmune disease, lupus or any other, does not have a weak immune system...just a misdirected one.  Amping up your immune system is exactly the wrong thing to do.  I would doubt that coconut oil would boost it that much anyway.  Many of the claims about supplements are either overstated or false.
 
Doctors give us med to SUPPRESS our immune system, not the other way around.
 
Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

Lynnwood
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Date Joined May 2005
Total Posts : 5705
   Posted 3/16/2013 3:30 PM (GMT -6)   
Anything that says "good for immune system", "boosts your immune system", etc should be avoided at all costs.

Lupus isn't a weak immune system, it is a WILD and overactive immune system going haywire without direction!

Our meds work to keep our immune systems quiet -- adding immune "support" just counteracts the meds!!

Another reminder to report any and all supplements, helpful foods or diets, even changes in drinking to your Doctor to make sure you aren't doing harm! Lupus makes us just backward enough from normal that common sense no longer works normally for us!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

shoeless
Regular Member


Date Joined Dec 2009
Total Posts : 130
   Posted 3/16/2013 3:38 PM (GMT -6)   
yeah,I know it works wildly.Finally diagnosed after almost 5 years of hell.But ya know, ya just dont know what to believe as Ive looked online and all the reports say its puts your immune system back where it should be.I know I cant take melatonin,made me flare for almost 3 weeks!guess Ill jes use it on my hair!8o)

Lynnwood
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Date Joined May 2005
Total Posts : 5705
   Posted 3/16/2013 4:20 PM (GMT -6)   
The reports are written for normal people --- which we aren't anymore!

Coconut oil would make your hair smell good, at least!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

lemonandolive
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Date Joined Aug 2014
Total Posts : 3
   Posted 8/6/2014 11:06 AM (GMT -6)   
Lupus or other autoimmune diseases could not be prevented by weakenning the immune system, the medicine given such as corticosteroids is just for suppressing the immune system which is different than weakenning. So it is very good to boost your immune system through green vegetables, walnuts, ginger,black cumin, olive oil and yes with coconut. It heals the gut and when gut becomes to function normal recovery from lupus starts. Eat coconut everyday if you can, sleep well and stay away from animal proteins and processed food :)

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 264
   Posted 8/6/2014 11:41 AM (GMT -6)   
Coconut oil is beneficial to people with lupus. It has anti inflammatory and healing properties. It balances the immune system in a good way and helps the body work better. It doesn't cause it to go berserk or haywire.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 264
   Posted 8/6/2014 12:14 PM (GMT -6)   
I was trying to find a way to explain how some "immune boosters" are good for autoimmune disease.

Rest for example is an immune booster, as is exercise, sleep - another good immune booster. These all help our immune systems by balancing them in a good way. That is how things like coconut oil work to enhance the immune system and help it work properly. It balances, reduces the negative immune response by recognizing antigens that are actually harmful rather than healthy tissue.

It's all confusing and complicated with our t cells and b cells, antigens, histamine, yadda yadda. It's also scary when told our immune systems are for all intents and purposes are "broken". I can understand and also had the same thought when told something would boost the immune system. I thought, "well there is NO way I'm eating/ingesting that then!"

So the easiest way to put it without a long scientific jargon 3 page essay is to say that just as sleep is an ok immune booster so is a plant based oil (in this case coconut oil) as they work the same way, helping the immune system to function normally.

I feel it's important to comment here as I have suggested coconut oil as a wonderful thing for most of us lupies and I would never recommend anything that I haven't researched. It can be extremely good, unless one has an allergy to coconuts! And if anyone would like the 3 page scientific jargon explanation just let me know! ;)
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

Bsime
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Date Joined Apr 2006
Total Posts : 1218
   Posted 8/6/2014 12:43 PM (GMT -6)   
Can you site any controlled scientific studies that show beneficial effects ingesting coconut oil? All that I have read comes from those who are trying to sell something. Coconut oil is not the "bad" oil that was portrayed for decades but does it actually help immune function?

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 264
   Posted 8/6/2014 3:42 PM (GMT -6)   
Hi Bsime, I will see what I can dig up for you. Unfortunately most controlled scientific studies are conducted by pharmaceutical companies who generally can't make money from natural foods so most of the research (that I know of )has been done by naturopaths.

Off the top of my head I know it has a very high concentration of lauric acid which is also found in breast milk.

Let me switch from my tablet to the computer (easier to post links lol)

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 264
   Posted 8/6/2014 3:55 PM (GMT -6)   
Ok, lauric acid....



Lauric acid, a medium-chain fatty acid found mainly in coconut oil, is one of these prized substances. Pure coconut oil contains about 50 percent lauric acid, and is the most abundant natural source of lauric acid available.

How the Body Uses Lauric Acid

When lauric acid is present in the body, it is converted into monolaurin, a monoglyceride compound which exhibits antiviral, antimicrobial, antiprotozoal and antifungal properties. It acts by disrupting the lipid membranes in organisms like fungus, bacteria and viruses, thus destroying them.

The compound monolaurin is an effective treatment for candida albicans and fungal infections like ringworm and athlete's foot. Monolaurin also specifically targets bacterial infections as well as lipid-coated viruses like herpes, the measles, influenza, hepatitis C and HIV. Researchers in the Philippines have even begun studies to prove the effectiveness of lauric acid against HIV/AIDS because of its strong antiviral properties. Plus, lauric acid is basically non-toxic, which gives it a distinct advantage over modern pharmaceutical drugs that are typically used to fight viruses, bacterial infections and fungal infections.

Without a plentiful source of lauric acid, the body cannot produce monolaurin, and all of these important benefits are lost. Many people who regularly consume coconut oil experience less sickness. Breast milk is the only other natural source that contains such a high concentration of lauric acid, which could explain the drastic decrease of infections of all types in breast-fed babies.

Learn more: http://www.naturalnews.com/026819_lauric_acid_coconut_oil.html#ixzz39eBw3s7k

Here's a great link that cites scientific studies! Not surprising the majority of them weren't done in the western world of medicine lol.

http://www.bioriginal.com/page-articles/the-science-behind-coconut-oil/
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1218
   Posted 8/6/2014 4:11 PM (GMT -6)   
Actually I am very familiar with the chemistry of coconut oil having owned the largest brokerage firm trading in it and having an office in Manila in the past. There are a lot of claims but little science behind them like so many other homeopathic remedies. It is accepted in the Philippines that is has great value. In the USA it was demonized in the 70s and 80s due to the hardness (high % of saturated fats) in the oil. The reality was that it was a disinformation campaign by the American Soybean Assoc to discredit coconut, palm and palm kernel oils because they would be much cheaper than our primary oil, soybean oil, and palm and pk oil in particular would be available soon in massive quantities worldwide. It is good that coconut oil is getting its' due but I am not sure that helping with AI disease is one of them.

Coconut oil production has declined significantly in recent decades due to a viroid disease called cadang cadang. To my knowledge it is still not under control but there are probably hybrids now that are resistant. Coconut trees take many years to become productive and often live to 100 years. Most of the production is from small holders with less than 5 hectares who intercrop with other things.

Your references are commercial. No matter where the research is done it would be listed at PubMed. I will search more when I have time.

There is no harm ingesting it. I like coconut milk and candy with copra in it myself but just for pleasure.

Bill

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 264
   Posted 8/6/2014 4:44 PM (GMT -6)   
I became interested in coconut oil because there is a manufacturer of it just outside the town I live in. I thought, "a coconut factory?! In rural Ontario, Canada?!" so I looked up their website and that is where I read about it being beneficial for eczema and psoriasis. I figured what the heck and then heard people talking about it's other benefits so I started looking into it more.

If you find some on pubmed let me know, the second link had references to university studies. I don't think those would be considered commercial. The site itself was but under each claim was cited the study whether it be Columbia University, etc. Unless I'm mistaken.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 264
   Posted 8/6/2014 4:54 PM (GMT -6)   
yes, here are the studies..

Am J Clin Nutr. 2003 May;77(5):1146-55. Effects of dietary fatty acids and carbohydrates on the ratio of serum total to HDL cholesterol and on serum lipids and apolipoproteins: a meta-analysis of 60 controlled trials. Mensink RP, Zock PL, Kester AD, Katan MB. Department of Human Biology, Maastricht University, Maastricht, Netherlands.

Pharm Biol. 2010 Feb;48(2):151-7. Anti-inflammatory, analgesic, and antipyretic activities of virgin coconut oil. Intahphuak S, Khonsung P, Panthong A. McCormick Faculty of Nursing, Payap University, Chiang Mai, Thailand.


Skin Pharmacol Physiol. 2010;23(6):290-7. Epub 2010 Jun 3. Effect of topical application of virgin coconut oil on skin components and antioxidant status during dermal wound healing in young rats. Nevin KG, Rajamohan T. Department of Biochemistry, University of Kerala, Thiruvananthapuram, India.

Dermatitis. 2008 Nov-Dec;19(6):308-15. Novel antibacterial and emollient effects of coconut and virgin olive oils in adult atopic dermatitis. Verallo-Rowell VM, Dillague KM, Syah-Tjundawan BS. Skin and Cancer Foundation, Pasig, Philippines.

Dermatitis. 2004 Sept;15(3):109-16. A randomized double-blind controlled trial comparing virgin coconut oil with mineral oil as a moisturizer for mild to moderate xerosis. Agero AL, Verallo-Rowell VM. Department of Dermatology, Makati Medical Center, Makati City, Philippines.

J Cosmet Sci. 2003 Mar-Apr;54(2):175-92. Effect of mineral oil, sunflower oil, and coconut oil on prevention of hair damage. Rele AS, Mohile RB. Research and Development Department, Nature Care Division, Marico Industries Ltd., Mumbai, India.
(this one may be commercial)


Lipids – 2009 Jul;44(7):593-601. Epub 2009 May 13, Effects of dietary coconut oil on the biochemical and anthropometric profiles of women presenting abdominal obesity. Assunção ML, Ferreira HS, dos Santos AF, Cabral CR Jr, Florêncio TM. Faculdade de Nutrição, Universidade Federal de Alagoas, Maceió, AL 57072-970, Brazil.

Am J Clin Nutr. – 2005 Jan;81(1):7-15. Dietary fats, teas, dairy, and nuts: potential functional foods for weight control? St-Onge MP. Institute of Human Nutrition, College of Physicians and Surgeons, Columbia University, Obesity Research Center, St. Luke’s/Roosevelt Hospital Center, New York, NY, USA.


Nutr Hosp. 2012 Jan-Feb;27(1):103-8. doi: 10.1590/S0212-16112012000100011. Influence of the dietary intake of medium chain triglycerides on body composition, energy expenditure and satiety: a systematic review. Rego Costa AC, Rosado EL, Soares-Mota M. Instituto de Nutrição Josué de Castro, Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brasil.

Eur J Nutr. 2013 Sep;52(6):1579-85. doi: 10.1007/s00394-012-0463-9. Epub 2012 Nov 20. Combined medium-chain triglyceride and chilli feeding increases diet-induced thermogenesis in normal-weight humans. Clegg ME, Golsorkhi M, Henry CJ. Functional Food Centre, Faculty of Health and Life Sciences, Oxford Brookes University, Gipsy Lane, Oxford, OX3 0BP, UK.

I'm guessing maybe you saw that it was a commercial site and missed these?
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1218
   Posted 8/6/2014 5:03 PM (GMT -6)   
Will take a look at them when I have time. I am not arguing that coconut oil is not a beneficial nutrient or topical treatment. Taking it will not be harmful unless you take too much. It has been shown decades ago to be a good fat in some ways but it is still a fat and we should limit our consumption of fats to about 30% of our calories.

Interesting that the bio chemist hired to diss coconut oil years ago was from the Netherlands......

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

lemonandolive
New Member


Date Joined Aug 2014
Total Posts : 3
   Posted 8/7/2014 11:03 AM (GMT -6)   
I started eating coconut,I'll let you know of the results in two weeks time.

I have SLE, Sjogren, Alpecia, Migrane and Rocasea Acne. I also have proteinuria (kidney disease signals). I dont read scientific studies, but I can experience if a food is good or bad for me by checking my rose face. If it worsens, SLE worsens. I had leukopenia few months ago which indicates weak immune system. I tried a teaspoon of black cumin seeds every morning before breakfast and in one month without medicine my leukopenia dissappeared. My rose face was better.

What is more important than coconut or its oil is not taking ANY stomach acid inhibitors or talcids. I know that plaqeunil and steroids harm the stomach so people use these stuff but the reason for the autoimmune response is at the very beginning caused by the lack of stomach acids (if you dont genetically have food allergy). so please dont use stomach protecting stuff, it unfortunately will worsen your case in the future. I hope that these will be beneficial for you guys :)

greenjuice
New Member


Date Joined Aug 2014
Total Posts : 1
   Posted 8/22/2014 7:59 PM (GMT -6)   
I am a coconut oil believer and user. I ingest it daily and use it on my skin. I have many rashes and it works instantly on some (not all). I also use it on my son for a fungal rash he gets in the summer and it will take away the redness and itching overnight (much like an OTC anti-fungal will w/out any chemicals or toxins). My integrative doctor has me taking 1t per day ingested and using it on my skin where it helps. I have RX for skin rashes too but always try this first. Sometimes it works! It's a good fat (needed for brain function) in small doses.

acquiesce
Regular Member


Date Joined Jan 2014
Total Posts : 264
   Posted 8/23/2014 8:04 AM (GMT -6)   
I've been using it as a mouth wash after reading about "oil pulling". I don't know that it's a miracle anti-toxin whatever like some people say but I swish it around in my mouth every morning and then spit it out before I brush my teeth. It's totally disgusting and I just about throw up every time but honestly I haven't had a mouth sore since. And my pearly whites are pearlier and whiter (insert big toothed smiley here). :D
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

entero
New Member


Date Joined May 2014
Total Posts : 12
   Posted 8/24/2014 6:21 AM (GMT -6)   
Quote "Lupus or other autoimmune diseases could not be prevented by weakenning the immune system, the medicine given such as corticosteroids is just for suppressing the immune system which is different than weakenning. So it is very good to boost your immune system through green vegetables, walnuts, ginger,black cumin, olive oil and yes with coconut. It heals the gut and when gut becomes to function normal recovery from lupus starts. Eat coconut everyday if you can, sleep well and stay away from animal proteins and processed food :)"

it is so good to see a person who speaks my language around here. well said my friend, well said. Specially this point"... It heals the gut and when gut becomes to function normal recovery from lupus starts..."

Post Edited (entero) : 8/24/2014 5:29:18 AM (GMT-6)


entero
New Member


Date Joined May 2014
Total Posts : 12
   Posted 8/24/2014 6:26 AM (GMT -6)   
Quote"Coconut oil is beneficial to people with lupus. It has anti inflammatory and healing properties. It balances the immune system in a good way and helps the body work better. It doesn't cause it to go berserk or haywire."

Wow!. yes yes yes. Once we begin to accept and understand these concepts the better for those who have this decease.

lemonandolive
New Member


Date Joined Aug 2014
Total Posts : 3
   Posted 9/16/2014 3:04 AM (GMT -6)   
Entero thank you for your support. I think it is easy to believe when they hear "if you continue the medicine you'll be fine, eat whatever you like, even chocolat pie". Its easy because no one wants to quit eating dairy and grains.

Some say we need an alkaline diet, but we dont have to eat more veggies and less meat, no. Alkali food helps as we lack pancreatic fluid containing sodium bicarbonate because the pancreas is under attack and cannot balance the acidic environment in the body. Rosacea, seborheic dermatitis as well as lupus rash diminishes with alkali diet but if you continue feeding the problem by eating grains and dairy it wont help.

I believe that there is no remision but healing. After a while, I will be able to eat rice, tomatoes, buckwheat, eggs and yoghurt again, I'm sure but I will continue the diet for at least three more months (already doing it for 2 months) till my gut heals and then start with eggs but I will never go back to "gluten" for sure.

:-)

iubooklover
New Member


Date Joined Sep 2014
Total Posts : 5
   Posted 9/27/2014 6:56 PM (GMT -6)   
Lemonandolive, please do share your results. I definitely feel better and have fewer/milder flares, if any, when I avoid sugar and processed foods, and eat lots of fruits and veggies. But I do still eat whole grains and dairy (in the form of yogurt), and it would be good to know if that's okay or not.

Post Edited (iubooklover) : 9/27/2014 6:00:07 PM (GMT-6)


entero
New Member


Date Joined May 2014
Total Posts : 12
   Posted 9/28/2014 12:03 AM (GMT -6)   
lemonandolive said...
Entero thank you for your support. I think it is easy to believe when they hear "if you continue the medicine you'll be fine, eat whatever you like, even chocolat pie". Its easy because no one wants to quit eating dairy and grains.

Some say we need an alkaline diet, but we dont have to eat more veggies and less meat, no. Alkali food helps as we lack pancreatic fluid containing sodium bicarbonate because the pancreas is under attack and cannot balance the acidic environment in the body. Rosacea, seborheic dermatitis as well as lupus rash diminishes with alkali diet but if you continue feeding the problem by eating grains and dairy it wont help.

I believe that there is no remision but healing. After a while, I will be able to eat rice, tomatoes, buckwheat, eggs and yoghurt again, I'm sure but I will continue the diet for at least three more months (already doing it for 2 months) till my gut heals and then start with eggs but I will never go back to "gluten" for sure.

:-)


You are welcome Lemonandolive, as i said before, i love to see people who speak my language around here. I'm with you as far as remission is concern, i dont care for it, what i'm interested in is healing, and healing can not be accomplished by suppressing the immune system, it can only be done by modulating(balance) the immune system. again, heal the gut, detox, detox, detox(Chelation might be a most) and immune balancing. All of these can only be done with natural supplements. It is mostly all about the Microbium my friends.
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