Lupus and Fatty Liver

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paige1992
New Member


Date Joined Mar 2013
Total Posts : 2
   Posted 3/20/2013 6:34 AM (GMT -6)   
Hi everyone i have just found out i have Lupus and Very bad LFT. I also have fatty liver disease and its like i can feel my liver swelling inside me i also have very bad joint and muscle pain and of course fatigue which is driving me nuts! im only 20 years old.

My doctor is testing me for everything again in 3 months and if its getting worse he will do a liver biopsy and if my lupus gets worse then it will be aggressive chemo which terrifies me


I was wondering if anyone else has fatty liver disease with no cholesterol problems and lupus?

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5751
   Posted 3/20/2013 10:20 AM (GMT -6)   
I don't recall anyone mentioning that combination but maybe someone will read this and step up to share. Glad you are joining us at HW.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING LUPUS & LUPUS RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12395
   Posted 3/20/2013 5:50 PM (GMT -6)   
Sorry you're having to deal with this.
I don't fatty liver disease.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

paige1992
New Member


Date Joined Mar 2013
Total Posts : 2
   Posted 3/21/2013 6:27 AM (GMT -6)   
Thank you both! yeah im just confused as to what is going on all i can hear when the doctor speaks is Chemo because i am so scared about it.

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2812
   Posted 3/22/2013 12:04 AM (GMT -6)   
Sorry that you're having so many problems with your liver. Sounds like they need to figure out why you have such a problem with a fatty liver. I've had lupus for 25 years and I've not heard it to be a common thing with lupus.

As for the chemo, I've been on it numerous times, I know the thought is scary, but it really isn't as bad as it used to be years ago. I can honestly say I have NEVER once vomited from any of my chemo infusions, they are pretty good with medication on that part.

Did I lose my hair, yes I did when I was on cytoxan, but there are all sorts of hats, scarfs, and wigs out there. I just went out with my bald head and didn't let it bother me. I did lose a fair amount of weight on the cytoxan as I didn't have much of an appetite, I also was fatigued, but I was really fatigued anyway. My lupus was really bad and actually once I got on my cytoxan I felt the best I had in a long time and was able to lower my steroids to an all time low. There is also a chemo drug called methotrexate and it's an oral chemo and I've taken that too, it didn't bother me at all, I've taken it both orally and given myself a weekly injection of the drug.

I'm not trying to diminish the seriousness of chemo, but the chemo drugs they normally use for lupus don't seem to be as hard hitting as say someone whose getting a bone marrow transplant. Usually, with lupus patients who are having kidney issues and CNS issues are on the chemo for 6 months, and it's normally 1 infusion per month. After 6 months the reevaluate and see how you are doing.

So try not to worry so much about the chemo, until you have to deal with it. Stress isn't good for lupus patients and until you need to be focused on the chemo, you're best to focus on getting better and trying to stay as stress free as possible.

Hugs,
Barbara

tenXmom
Regular Member


Date Joined Jan 2013
Total Posts : 62
   Posted 3/27/2013 3:02 PM (GMT -6)   
Have they tested you for Auto Immune Hepatitis? In my case liver failure was the first time any of my AI were diagnosed (or taken seriously).
Laura aka tenXmom
AIH - Lupus - RA

Jaclyn1983
New Member


Date Joined Mar 2013
Total Posts : 3
   Posted 3/29/2013 7:51 AM (GMT -6)   
I'm sorry to hear all this. I found out six months ago that I also suffer from fatty liver disease. My rheumatologist told me that lupus itself will cause it, as I'm barely 100 lbs, and very fit. I eat a gluten free diet, and inquired about the liver at my last gastro appointment. He suggested that prednisone, which I've been on for about 15 years, will cause a fatty liver. Hopefully there will be more answers to come:( Hope things get better for you soon:)

loving caregiver
New Member


Date Joined Apr 2013
Total Posts : 1
   Posted 4/1/2013 8:10 PM (GMT -6)   
Hi everyone.
I just joined the forum. I care for my wife who has Lupus, Hep "C", Diabetes. migraines(several types) and the fatty liver you have been discussing. We have done the best we can over the years with no insurance, until recently she was able to get on medicaid. We have tried many drugs trying to combat the almost constant flares she lived with for years. The trouble with liver problems is when you take prednisone or other drugs for lupus it usually hurts the liver and when you treat the Hep C it causes problems with Lupus. You have to watch both diseases and walk a fine line. She has suffered greatly as you know. We do not have a Rheumatologist due to unavailable funds but we have a wonderful family dr who really cares. He tried a drug called Plaquenil that has reduced her flares a great deal. Since starting she went about 5 months until this weekend we are fighting one now, but hopefully it will not last like the others did. She still has the constant headaches and we are scheduled for a MRI of her brain on 4/2/13. Hope we get some answers. As I am sure everyone here is, she also is a wonderful person that does not deserve this curse. No one does. I see that some of you have had chemo for lupus. This is the first I have heard of this. I want the best for my wife and I have to ask if I should check into this? Does it help? and how? Thank you for any response. Take care everyone.

mnm5278
New Member


Date Joined Jun 2013
Total Posts : 1
   Posted 6/4/2013 4:56 PM (GMT -6)   
I have been diagnosed with Lupus before but then my doctor moved and the new one said no mixed connective tissue and fibro so am still trying to figure it out, but I just found out today that I have a fatty liver. The doctor said eat a low fat diet and exercise. I already eat a pretty low fat diet and try to exercise when I am physically able so we will see. Also to the man who cares for his wife, you might have them check and see if she has pseudotumor cerebri. I suffered for years with headaches and 2 years ago while testing me for MS I found out that my spinal fluid pressure is high and it can cause all types of problems. Sometimes scans are negative even though your pressure is high and from what I have read and been through personally, it seems the only sure way to know is through a lumbar puncture. Hoping everyone is feeling better soon!
 
M

Teddtlove
Veteran Member


Date Joined Jan 2013
Total Posts : 1021
   Posted 6/5/2013 4:02 AM (GMT -6)   
I have UCTD and fatty liver. I am obese though.
30 female. Sherrie, 2007 diagnosed with UC, also have Hypothyroidism, Intercostal Neuralgia, Agoraphobia, Bipolar tendencies, Panic disorder, Acid reflux, Lactose intolerance, Eczema, Migraines, Degenerative disk, Hypertension, and Anemia.
Lialda, Canasa, Hyoscyamine sulfa, digestive ad lactose defense, Cymbalta, lyrica, Lomotil , klor-con20, VSL 3DS, Rainbow light, Vit D, started Humira 12/31

raul25275
New Member


Date Joined Jul 2014
Total Posts : 1
   Posted 7/25/2014 9:23 PM (GMT -6)   
hello my name is Raul i am 22 years old when i was about 9 i was diagnoses with lupus i was on kepra for a few years its been a good 5 or more years i been good no meds no nothing but i went in for a check up and my doc said i had my liver ensis elevated and i am going to school for ultrasound so i had my friends and teacher scan my liver and it was fatty. my teacher said hes not sure if it has to do anything with lupus but for me do start eating better and to cut down on beer .

i hope this help please get back to me on how your doing
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